The AMBER care bundle for hospital inpatients with uncertain recovery nearing the end of life: the ImproveCare feasibility cluster RCT

Cancer patients hospitalised in the last week of life risk insufficient care quality – a population-based study from the Swedish Register of Palliative Care

(2019) Sixten Elmstedt et al.   ACTA ONCOLOGICA

A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS)

(2019) Fliss EM Murtagh et al.   PALLIATIVE MEDICINE

Managing uncertain recovery for patients nearing the end of life in hospital: a mixed-methods feasibility cluster randomised controlled trial of the AMBER care bundle

(2019) J. Koffman et al.   Trials

The feasibility of a randomised controlled trial to compare the cost-effectiveness of palliative cardiology or usual care in people with advanced heart failure: Two exploratory prospective cohorts

(2018) Miriam J Johnson et al.   PALLIATIVE MEDICINE

What information and the extent of information research participants need in informed consent forms: a multi-country survey

(2018) Juntra Karbwang et al.   BMC Medical Ethics

Factors associated with older people’s emergency department attendance towards the end of life: a systematic review

(2018) Anna E Bone et al.   EUROPEAN JOURNAL OF PUBLIC HEALTH

The Effect of Communication Skills Training for Generalist Palliative Care Providers on Patient-Reported Outcomes and Clinician Behaviors: A Systematic Review and Meta-analysis

(2017) Lucy Ellen Selman et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Seeing is believing – healthcare professionals’ perceptions of a complex intervention to improve care towards the end of life: A qualitative interview study

(2017) Katherine Bristowe et al.   PALLIATIVE MEDICINE

‘Difficult Conversations’: evaluation of multiprofessional training

(2017) Lisa Jane Brighton et al.   BMJ Supportive & Palliative Care

How does uncertainty shape patient experience in advanced illness? A secondary analysis of qualitative data

(2016) Simon Noah Etkind et al.   PALLIATIVE MEDICINE

Defining Feasibility and Pilot Studies in Preparation for Randomised Controlled Trials: Development of a Conceptual Framework

(2016) Sandra M. Eldridge et al.   PLoS One

A Systematic Review of Predictions of Survival in Palliative Care: How Accurate Are Clinicians and Who Are the Experts?

(2016) Nicola White et al.   PLoS One

Emergency Department Attendance by Patients With Cancer in Their Last Month of Life: A Systematic Review and Meta-Analysis

(2015) Lesley A. Henson et al.   JOURNAL OF CLINICAL ONCOLOGY

Screening for Depression in Advanced Disease: Psychometric Properties, Sensitivity, and Specificity of Two Items of the Palliative Care Outcome Scale (POS)

(2015) Bárbara Antunes et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Capture, Transfer, and Feedback of Patient-Centered Outcomes Data in Palliative Care Populations: Does It Make a Difference? A Systematic Review

(2015) Simon Noah Etkind et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Patient and carer experiences of clinical uncertainty and deterioration, in the face of limited reversibility: A comparative observational study of the AMBER care bundle

(2015) Katherine Bristowe et al.   PALLIATIVE MEDICINE

Discovering the hidden benefits of cognitive interviewing in two languages: The first phase of a validation study of the Integrated Palliative care Outcome Scale

(2015) Eva K Schildmann et al.   PALLIATIVE MEDICINE

Process evaluation of complex interventions: Medical Research Council guidance

(2015) G. F. Moore et al.   BMJ-British Medical Journal

Process evaluation of complex interventions: Medical Research Council guidance

(2015) G. F. Moore et al.   BMJ-British Medical Journal

A short generic patient experience questionnaire: howRwedevelopment and validation

(2014) Tim Benson et al.   BMC HEALTH SERVICES RESEARCH

Maximising the value of combining qualitative research and randomised controlled trials in health research: the QUAlitative Research in Trials (QUART) study – a mixed methods study

(2014) Alicia O’Cathain et al.   HEALTH TECHNOLOGY ASSESSMENT

Place and Cause of Death in Centenarians: A Population-Based Observational Study in England, 2001 to 2010

(2014) Catherine J. Evans et al.   PLOS MEDICINE

Supporting patients with uncertain recovery: the use of the AMBER care bundle in an acute hospital

(2014) Simon Noah Etkind et al.   BMJ Supportive & Palliative Care

Improving care for patients whose recovery is uncertain. The AMBER care bundle: design and implementation

(2014) Irene Carey et al.   BMJ Supportive & Palliative Care

Evaluating complex interventions in End of Life Care: the MORECare Statement on good practice generated by a synthesis of transparent expert consultations and systematic reviews

(2013) Irene J Higginson et al.   BMC Medicine

Dignity in death: the triumph of politics over evidence

(2013) The Lancet Oncology   LANCET ONCOLOGY

If you had less than a year to live, would you want to know? A seven-country European population survey of public preferences for disclosure of poor prognosis

(2013) R. Harding et al.   PSYCHO-ONCOLOGY

Time for a prospective study to evaluate the Amber Care Bundle

(2013) David C Currow et al.   BMJ Supportive & Palliative Care

Preferences for place of death if faced with advanced cancer: a population survey in England, Flanders, Germany, Italy, the Netherlands, Portugal and Spain

(2012) B. Gomes et al.   ANNALS OF ONCOLOGY

A Psychometric Validation of Two Brief Measures to Assess Palliative Need in Patients Severely Affected by Multiple Sclerosis

(2012) Katherine E. Sleeman et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

‘It makes me feel that I’m still relevant’: A qualitative study of the views of nursing home residents on dignity therapy and taking part in a phase II randomised controlled trial of a palliative care psychotherapy

(2012) Sue Hall et al.   PALLIATIVE MEDICINE

Symptoms and Quality of Life in Late Stage Parkinson Syndromes: A Longitudinal Community Study of Predictive Factors

(2012) Irene J. Higginson et al.   PLoS One

CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study

(2012) Louise Jones et al.   BMJ Open

After you: conversations between patients and healthcare professionals in planning for end of life care

(2012) Kathryn Almack et al.   BMC Palliative Care

Bereaved relatives’ views about participating in cancer research

(2011) Jonathan Koffman et al.   PALLIATIVE MEDICINE

Feasibility, acceptability and potential effectiveness of Dignity Therapy for older people in care homes: A phase II randomized controlled trial of a brief palliative care psychotherapy

(2011) Sue Hall et al.   PALLIATIVE MEDICINE

An uncertain future: The unchanging views of care home residents about living and dying

(2011) Elspeth Mathie et al.   PALLIATIVE MEDICINE

Study Protocol: The Behaviour and Pain in Dementia Study (BePAID)

(2011) Sharon Scott et al.   BMC Geriatrics

Variations in the quality and costs of end-of-life care, preferences and palliative outcomes for cancer patients by place of death: the QUALYCARE study

(2010) Barbara Gomes et al.   BMC CANCER

What is a pilot or feasibility study? A review of current practice and editorial policy

(2010) Mubashir Arain et al.   BMC Medical Research Methodology

What Is the Evidence That Palliative Care Teams Improve Outcomes for Cancer Patients and Their Families?

(2010) Irene J. Higginson et al.   CANCER JOURNAL

The importance of communication in collaborative decision making: facilitating shared mind and the management of uncertainty

(2010) Mary C. Politi et al.   JOURNAL OF EVALUATION IN CLINICAL PRACTICE

Psychological Well-Being and Quality of Care: A Factor-Analytic Examination of the Palliative Care Outcome Scale

(2010) Richard J. Siegert et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Early Palliative Care for Patients with Metastatic Non–Small-Cell Lung Cancer

(2010) Jennifer S. Temel et al.   NEW ENGLAND JOURNAL OF MEDICINE

Engaging the oldest old in research: lessons from the Newcastle 85+ study

(2010) Karen Davies et al.   BMC Geriatrics

The illness uncertainty concept: A review

(2009) Lisa Johnson Wright et al.   Current Pain and Headache Reports

Effects of a Palliative Care Intervention on Clinical Outcomes in Patients With Advanced Cancer

(2009) Marie Bakitas et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Vulnerability in palliative care research: findings from a qualitative study of black Caribbean and white British patients with advanced cancer

(2009) J Koffman et al.   JOURNAL OF MEDICAL ETHICS

Capturing the Costs of End-of-Life Care: Comparisons of Multiple Sclerosis, Parkinson's Disease, and Dementia

(2009) Paul McCrone   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Assessing the feasibility, acceptability and potential effectiveness of Dignity Therapy for people with advanced cancer referred to a hospital-based palliative care team: Study protocol

(2009) Sue Hall et al.   BMC Palliative Care

Is the qualitative research interview an acceptable medium for research with palliative care patients and carers?

(2008) Marjolein Gysels et al.   BMC Medical Ethics

Associations Between End-of-Life Discussions, Patient Mental Health, Medical Care Near Death, and Caregiver Bereavement Adjustment

(2008) Alexi A. Wright   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

“I Will Do It If It Will Help Others:” Motivations Among Patients Taking Part in Qualitative Studies in Palliative Care

(2008) Marjolein Gysels et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Developing and evaluating complex interventions: the new Medical Research Council guidance

(2008) Peter Craig et al.   BMJ-British Medical Journal