Participatory Disease Surveillance Systems: Ethical Framework

Informed Consent

(2017) Christine Grady et al.   NEW ENGLAND JOURNAL OF MEDICINE

Participatory Online Surveillance as a Supplementary Tool to Sentinel Doctors for Influenza-Like Illness Surveillance in Italy

(2017) Daniela Perrotta et al.   PLoS One

Meta Consent - A Flexible Solution to the Problem of Secondary Use of Health Data

(2016) Thomas Ploug et al.   BIOETHICS

Participatory Syndromic Surveillance of Influenza in Europe

(2016) Caroline Guerrisi et al.   JOURNAL OF INFECTIOUS DISEASES

Infectious Disease Surveillance in the Big Data Era: Towards Faster and Locally Relevant Systems

(2016) Lone Simonsen et al.   JOURNAL OF INFECTIOUS DISEASES

Big Data for Infectious Disease Surveillance and Modeling

(2016) Shweta Bansal et al.   JOURNAL OF INFECTIOUS DISEASES

Flu Near You: Crowdsourced Symptom Reporting Spanning 2 Influenza Seasons

(2015) Mark S. Smolinski et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Big Data in medical research and EU data protection law: challenges to the consent or anonymise approach

(2015) Menno Mostert et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Opinion about seasonal influenza vaccination among the general population 3 years after the A(H1N1)pdm2009 influenza pandemic

(2015) Karine Boiron et al.   VACCINE

Ten-year performance of Influenzanet: ILI time series, risks, vaccine effects, and care-seeking behaviour

(2015) Sander P. van Noort et al.   Epidemics

Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research

(2015) T. Ploug et al.   BMJ-British Medical Journal

Ethical Challenges of Big Data in Public Health

(2015) Effy Vayena et al.   PLoS Computational Biology

Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research

(2015) T. Ploug et al.   BMJ-British Medical Journal

Public Health Practice Is Not Research

(2014) Jean Lin Otto et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Traditional and Electronic Informed Consent for Biobanking: A Survey of U.S. Biobanks

(2014) Christian M. Simon et al.   BIOPRESERVATION AND BIOBANKING

The representativeness of a European multi-center network for influenza-like-illness participatory surveillance

(2014) Pietro Cantarelli et al.   BMC PUBLIC HEALTH

Predictors of eHealth Usage: Insights on The Digital Divide From the Health Information National Trends Survey 2012

(2014) Emily Kontos et al.   JOURNAL OF MEDICAL INTERNET RESEARCH

The Parable of Google Flu: Traps in Big Data Analysis

(2014) D. Lazer et al.   SCIENCE

Harvard Personal Genome Project: lessons from participatory public research

(2014) Madeleine P Ball et al.   Genome Medicine

Informed Consent, Big Data, and the Oxymoron of Research That Is Not Research

(2013) John P. A. Ioannidis   AMERICAN JOURNAL OF BIOETHICS

Sample and data sharing barriers in biobanking: consent, committees, and compromises

(2013) Flora Colledge et al.   Annals of Diagnostic Pathology

Impossible, Impractical, and Non-Identifiable? New Criteria Regarding Consent for Human Tissue Research in the Declaration of Helsinki

(2013) Flora Colledge et al.   BIOPRESERVATION AND BIOBANKING

Web-based participatory surveillance of infectious diseases: the Influenzanet participatory surveillance experience

(2013) D. Paolotti et al.   CLINICAL MICROBIOLOGY AND INFECTION

Broad consent versus dynamic consent in biobank research: Is passive participation an ethical problem?

(2013) Kristin Solum Steinsbekk et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Influenza A (H7N9) and the Importance of Digital Epidemiology

(2013) Marcel Salathé et al.   NEW ENGLAND JOURNAL OF MEDICINE

Preparing for Responsible Sharing of Clinical Trial Data

(2013) Michelle M. Mello et al.   NEW ENGLAND JOURNAL OF MEDICINE

Evaluating the Feasibility and Participants’ Representativeness of an Online Nationwide Surveillance System for Influenza in France

(2013) Marion Debin et al.   PLoS One

Effectiveness of 2012–2013 influenza vaccine against influenza-like illness in general population

(2013) Marion Debin et al.   Human Vaccines & Immunotherapeutics

Ethical Issues in Health Research With Novel Online Sources

(2012) Effy Vayena et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Digital Epidemiology

(2012) Marcel Salathé et al.   PLoS Computational Biology

In Defense of Broad Consent

(2011) GERT HELGESSON   CAMBRIDGE QUARTERLY OF HEALTHCARE ETHICS

Location-Related Privacy in Geo-Social Networks

(2011) Carmen Ruiz Vicente et al.   IEEE INTERNET COMPUTING

Biobanks--When is Re-consent Necessary?

(2011) K. S. Steinsbekk et al.   Public Health Ethics

Can Broad Consent be Informed Consent?

(2011) M. Sheehan   Public Health Ethics

Global capacity for emerging infectious disease detection

(2010) E. H. Chan et al.   PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA

The Obligation to Participate in Biomedical Research

(2009) G. Owen Schaefer   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Digital Disease Detection — Harnessing the Web for Public Health Surveillance

(2009) John S. Brownstein et al.   NEW ENGLAND JOURNAL OF MEDICINE

Internet-based monitoring of influenza-like illness in the general population: Experience of five influenza seasons in the Netherlands

(2009) I.H.M. Friesema et al.   VACCINE

Ethics in Public Health Research

(2008) Julie Myers et al.   AMERICAN JOURNAL OF PUBLIC HEALTH