Maximising the impact of patient reported outcome assessment for patients and society

Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols

(2018) Melanie Calvert et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Incorporating the patient experience into regulatory decision making in the USA, Europe, and Canada

(2018) Paul G Kluetz et al.   LANCET ONCOLOGY

Long-term Patient-Reported Outcomes in Postmastectomy Breast Reconstruction

(2018) Katherine B. Santosa et al.   JAMA Surgery

Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment

(2017) Ethan Basch et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Patient-Reported Outcomes — Harnessing Patients’ Voices to Improve Clinical Care

(2017) Ethan Basch   NEW ENGLAND JOURNAL OF MEDICINE

Making Patients and Doctors Happier — The Potential of Patient-Reported Outcomes

(2017) Lisa S. Rotenstein et al.   NEW ENGLAND JOURNAL OF MEDICINE

Presenting comparative study PRO results to clinicians and researchers: beyond the eye of the beholder

(2017) Michael Brundage et al.   QUALITY OF LIFE RESEARCH

Patient-reported outcomes and survival in multiple sclerosis: A 10-year retrospective cohort study using the Multiple Sclerosis Impact Scale–29

(2017) Joel Raffel et al.   PLOS MEDICINE

2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure

(2016) Piotr Ponikowski et al.   EUROPEAN HEART JOURNAL

Lessons From Large-Scale Collection of Patient-Reported Outcomes: Implications for Big Data Aggregation and Analytics

(2016) Jeff A. Sloan et al.   INTERNATIONAL JOURNAL OF RADIATION ONCOLOGY BIOLOGY PHYSICS

Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial

(2016) Ethan Basch et al.   JOURNAL OF CLINICAL ONCOLOGY

Reflections on the national patient-reported outcome measures (PROMs) programme: Where do we go from here?

(2016) Derek Kyte et al.   JOURNAL OF THE ROYAL SOCIETY OF MEDICINE

Analysing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: a start in setting international standards

(2016) Andrew Bottomley et al.   LANCET ONCOLOGY

How to select outcome measurement instruments for outcomes included in a “Core Outcome Set” – a practical guideline

(2016) Cecilia A. C. Prinsen et al.   Trials

Quality and Outcomes Framework: what have we learnt?:

(2016) Martin Roland et al.   BMJ-British Medical Journal

Quality and Outcomes Framework: what have we learnt?:

(2016) Martin Roland et al.   BMJ-British Medical Journal

Framework and guidance for implementing patient-reported outcomes in clinical practice: evidence, challenges and opportunities

(2016) Ian Porter et al.   Journal of Comparative Effectiveness Research

Planning and reporting of quality-of-life outcomes in cancer trials

(2015) S. Schandelmaier et al.   ANNALS OF ONCOLOGY

Putting patient-reported outcomes on the ‘Big Data Road Map’

(2015) Melanie Calvert et al.   JOURNAL OF THE ROYAL SOCIETY OF MEDICINE

Integrating the Use of Patient-Reported Outcomes for Both Clinical Practice and Performance Measurement: Views of Experts from 3 Countries

(2014) PHILIP J. VAN DER WEES et al.   MILBANK QUARTERLY

Integrating health-related quality of life findings from randomized clinical trials into practice: an international study of oncologists’ perspectives

(2014) Julie Rouette et al.   QUALITY OF LIFE RESEARCH

Patient-Reported Outcome Measures in Safety Event Reporting: PROSPER Consortium Guidance

(2013) Anjan K. Banerjee et al.   DRUG SAFETY

The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative

(2013) Jordi Alonso et al.   Health and Quality of Life Outcomes

Patient-Reported Outcome Alerts

(2013) Derek Kyte et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Measure once, cut twice—adding patient-reported outcome measures to the electronic health record for comparative effectiveness research

(2013) Albert W. Wu et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Patient reported outcome measures could help transform healthcare

(2013) N. Black   BMJ-British Medical Journal

Cemented, cementless, and hybrid prostheses for total hip replacement: cost effectiveness analysis

(2013) M. Pennington et al.   BMJ-British Medical Journal

U.S. Food and Drug Administration Approval: Ruxolitinib for the Treatment of Patients with Intermediate and High-Risk Myelofibrosis

(2012) A. Deisseroth et al.   CLINICAL CANCER RESEARCH

Effects of cardiac resynchronization therapy on long-term quality of life: An analysis from the CArdiac Resynchronisation-Heart Failure (CARE-HF) study

(2009) John G.F. Cleland et al.   AMERICAN HEART JOURNAL

Development of EMPRO: A Tool for the Standardized Assessment of Patient-Reported Outcome Measures

(2008) Jose M. Valderas et al.   VALUE IN HEALTH