Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities

Patient and public engagement in priority setting: A systematic rapid review of the literature

(2018) Elizabeth Manafò et al.   PLoS One

Patient engagement in type 2 diabetes mellitus research: what patients want

(2018) Kristina F Simacek et al.   Patient Preference and Adherence

Early assessment of the 10-step patient engagement framework for patient-centred outcomes research studies: the first three steps

(2017) Yewande Sofolahan-Oladeinde et al.   FAMILY PRACTICE

An empirically based conceptual framework for fostering meaningful patient engagement in research

(2017) Clayon B. Hamilton et al.   HEALTH EXPECTATIONS

Patient and Researcher Engagement in Health Research: A Parent’s Perspective

(2017) Israel Amirav et al.   PEDIATRICS

Methods and impact of engagement in research, from theory to practice and back again: early findings from the Patient-Centered Outcomes Research Institute

(2017) Laura Forsythe et al.   QUALITY OF LIFE RESEARCH

Patient engagement: What partnering with patient in research is all about

(2017) Lisa Duffett   THROMBOSIS RESEARCH

Emerging Guidelines for Patient Engagement in Research

(2017) John R. Kirwan et al.   VALUE IN HEALTH

Implementing a pragmatic framework for authentic patient–researcher partnerships in clinical research

(2016) Maureen B Fagan et al.   Journal of Comparative Effectiveness Research

Patient and Stakeholder Engagement in the PCORI Pilot Projects: Description and Lessons Learned

(2015) Laura P. Forsythe et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Lessons Learned from Developing a Patient Engagement Panel: An OCHIN Report

(2015) J. Arkind et al.   Journal of the American Board of Family Medicine

Conceptual and practical foundations of patient engagement in research at the patient-centered outcomes research institute

(2015) Lori Frank et al.   QUALITY OF LIFE RESEARCH

Involving Advocates in Cancer Research

(2015) Jane Perlmutter et al.   SEMINARS IN ONCOLOGY

Evaluating patient and stakeholder engagement in research: moving from theory to practice

(2015) Laura Esmail et al.   Journal of Comparative Effectiveness Research

Project Stakeholder Management in the Clinical Research Environment: How to Do it Right

(2015) Seithikurippu R. Pandi-Perumal et al.   Frontiers in Psychiatry

What Difference Does Patient and Public Involvement Make and What Are Its Pathways to Impact? Qualitative Study of Patients and Researchers from a Cohort of Randomised Clinical Trials

(2015) Louise Dudley et al.   PLoS One

Patient engagement in research: a systematic review

(2014) Juan Pablo Domecq et al.   BMC HEALTH SERVICES RESEARCH

A Systematic Review of Approaches for Engaging Patients for Research on Rare Diseases

(2014) Laura P. Forsythe et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Building new roles and relationships in research: a model of patient engagement research

(2014) Nancy Marlett et al.   QUALITY OF LIFE RESEARCH

From plans to actions in patient and public involvement: qualitative study of documented plans and the accounts of researchers and patients sampled from a cohort of clinical trials

(2014) Deborah Buck et al.   BMJ Open

Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech?

(2014) Danielle C Lavallee et al.   Expert Review of Pharmacoeconomics & Outcomes Research

Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies

(2013) Kristin L. Carman et al.   HEALTH AFFAIRS

Involving patients in clinical research: the Telescot Patient Panel

(2013) Peter Fairbrother et al.   HEALTH EXPECTATIONS

Patient and service user engagement in research: a systematic review and synthesized framework

(2013) Nathan D. Shippee et al.   HEALTH EXPECTATIONS

A practice-based tool for engaging stakeholders in future research: a synthesis of current practices

(2013) Jeanne-Marie Guise et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Engaging hard-to-reach patients in patient-centered outcomes research

(2013) Karen S Kauffman et al.   Journal of Comparative Effectiveness Research

Mapping the impact of patient and public involvement on health and social care research: a systematic review

(2012) Jo Brett et al.   HEALTH EXPECTATIONS

A New Taxonomy for Stakeholder Engagement in Patient-Centered Outcomes Research

(2012) Thomas W. Concannon et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Stakeholder engagement in comparative effectiveness research: how will we measure success?

(2012) Danielle C Lavallee et al.   Journal of Comparative Effectiveness Research

Stakeholder participation in comparative effectiveness research: defining a framework for effective engagement

(2012) Patricia A Deverka et al.   Journal of Comparative Effectiveness Research

Community Engagement in Research: Frameworks for Education and Peer Review

(2010) Syed M. Ahmed et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

How Best To Engage Patients, Doctors, And Other Stakeholders In Designing Comparative Effectiveness Studies

(2010) Ari Hoffman et al.   HEALTH AFFAIRS

Patient participation as dialogue: setting research agendas

(2010) Tineke A. Abma et al.   HEALTH EXPECTATIONS

Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement

(2009) David Moher et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Community-Based Participatory Research: A Review of the Literature With Strategies for Community Engagement

(2009) Madeleine U. Shalowitz et al.   JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS

The Value and Challenges of Participatory Research: Strengthening Its Practice

(2008) Margaret Cargo et al.   Annual Review of Public Health