A review of quality of life themes in Duchenne muscular dystrophy for patients and carers
Published 2018 View Full Article
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Title
A review of quality of life themes in Duchenne muscular dystrophy for patients and carers
Authors
Keywords
Duchenne muscular dystrophy, Literature review, Quality of life, Thematic analysis, Wider family impact
Journal
Health and Quality of Life Outcomes
Volume 16, Issue 1, Pages -
Publisher
Springer Nature
Online
2018-12-19
DOI
10.1186/s12955-018-1062-0
References
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Note: Only part of the references are listed.- Quality of life of patients with Duchenne muscular dystrophy: from adolescence to young men
- (2016) Yi-Jing Lue et al. DISABILITY AND REHABILITATION
- Pain experience, expression and coping in boys and young men with Duchenne Muscular Dystrophy – A pilot study using mixed methods
- (2016) Anne Hunt et al. EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY
- What factors influence parents’ perception of the quality of life of children and adolescents with neurocardiogenic syncope?
- (2016) Teresa Grimaldi Capitello et al. Health and Quality of Life Outcomes
- Factors Associated With Health-Related Quality of Life in Children With Duchenne Muscular Dystrophy
- (2016) Yi Wei et al. JOURNAL OF CHILD NEUROLOGY
- Quantifying the burden of caregiving in Duchenne muscular dystrophy
- (2016) Erik Landfeldt et al. JOURNAL OF NEUROLOGY
- Health-related quality of life and functional changes in DMD: A 12-month longitudinal cohort study
- (2016) Sonia Messina et al. NEUROMUSCULAR DISORDERS
- The quality of life in boys with Duchenne muscular dystrophy
- (2016) Gholamreza Zamani et al. NEUROMUSCULAR DISORDERS
- Prevalence of Fatigue, Pain, and Affective Disorders in Adults With Duchenne Muscular Dystrophy and Their Associations With Quality of Life
- (2015) Robert F. Pangalila et al. ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
- Quality of life in Duchenne muscular dystrophy: the disability paradox
- (2015) Robert Pangalila DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
- Health-related quality of life in patients with Duchenne muscular dystrophy: a multinational, cross-sectional study
- (2015) Erik Landfeldt et al. DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
- Mothers’ psychological adaptation to Duchenne/Becker muscular dystrophy
- (2015) Holly L Peay et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- A mixed methods study of age at diagnosis and diagnostic odyssey for Duchenne muscular dystrophy
- (2015) Siaw H Wong et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- Burden, professional support, and social network in families of children and young adults with muscular dystrophies
- (2015) Lorenza Magliano et al. MUSCLE & NERVE
- Is functional dependence of Duchenne muscular dystrophy patients determinant of the quality of life and burden of their caregivers?
- (2015) M. Soares de Moura et al. NEUROMUSCULAR DISORDERS
- Physical activity in boys with DMD is lower and less demanding compared to healthy boys
- (2015) L. Heutinck et al. NEUROMUSCULAR DISORDERS
- Health related quality of life in European adults with DMD: Results from the Care-NMD-project
- (2015) B. Steffensen et al. NEUROMUSCULAR DISORDERS
- Construction of a Quality of Life Questionnaire for slowly progressive neuromuscular disease
- (2015) Antoine Dany et al. QUALITY OF LIFE RESEARCH
- Participation in daily life activities and its relationship to strength and functional measures in boys with Duchenne muscular dystrophy
- (2014) Roxanna M. Bendixen et al. DISABILITY AND REHABILITATION
- G.P.304
- (2014) A. Madsen et al. NEUROMUSCULAR DISORDERS
- Self-Reported Quality of Life of Young Children With Conditions From Early Infancy: A Systematic Review
- (2014) J. Jardine et al. PEDIATRICS
- The level of agreement between child self-reports and parent proxy-reports of health-related quality of life in boys with Duchenne muscular dystrophy
- (2014) Yoonjeong Lim et al. QUALITY OF LIFE RESEARCH
- Measuring quality of life in mental health: Are we asking the right questions?
- (2014) Janice Connell et al. SOCIAL SCIENCE & MEDICINE
- The Relationship Between Sexual Function and Quality of Sleep in Caregiving Mothers of Sons with Duchenne Muscular Dystrophy
- (2014) Karen T. Nozoe et al. Sexual Medicine
- Comparison of child self-reports and parent proxy-reports on quality of life of children with attention deficit hyperactivity disorder
- (2013) Juliana CB Marques et al. Health and Quality of Life Outcomes
- Health-Related Quality of Life and Its Relation to Disease Severity in Boys With Duchenne Muscular Dystrophy
- (2013) S. L. S. Houwen–van Opstal et al. JOURNAL OF CHILD NEUROLOGY
- P.2.20 Prioritizing the worries of parents of children with Duchenne muscular dystrophy using best-worst scaling
- (2013) H. Peay NEUROMUSCULAR DISORDERS
- Self-Reported Quality of Life and Depressive Symptoms in Children, Adolescents, and Adults with Duchenne Muscular Dystrophy: A Cross-Sectional Survey Study
- (2013) Julia Schmid et al. NEUROPEDIATRICS
- Identifying Potential Themes for the Child Amblyopia Treatment Questionnaire
- (2013) Jill Carlton OPTOMETRY AND VISION SCIENCE
- Sleep disorders in boys with Duchenne muscular dystrophy
- (2012) Clemens Bloetzer et al. ACTA PAEDIATRICA
- POSTERS: Neuromuscular Disease
- (2012) ANNALS OF NEUROLOGY
- Evidence-based path to newborn screening for duchenne muscular dystrophy
- (2012) Jerry R. Mendell et al. ANNALS OF NEUROLOGY
- Emotional impact of genetic trials in progressive paediatric disorders: a dose-ranging exon-skipping trial in Duchenne muscular dystrophy
- (2012) M. E. Garralda et al. CHILD CARE HEALTH AND DEVELOPMENT
- Quality of life of people with mental health problems: a synthesis of qualitative research
- (2012) Janice Connell et al. Health and Quality of Life Outcomes
- Participation and quality of life in children with Duchenne muscular dystrophy using the international classification of functioning, disability, and health
- (2012) Roxanna M Bendixen et al. Health and Quality of Life Outcomes
- Dependence on Care Experienced by People Living With Duchenne Muscular Dystrophy and Spinal Cord Injury
- (2012) Bente Martinsen et al. JOURNAL OF NEUROSCIENCE NURSING
- Health-Related Quality of Life in Children and Adolescents With Duchenne Muscular Dystrophy
- (2012) K. Uzark et al. PEDIATRICS
- Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy
- (2011) Robert F. Pangalila et al. DISABILITY AND REHABILITATION
- 1FC2.2 Correlation of quality of life with disease course and severity in an Irish Duchenne Muscular Dystrophy (DMD) population
- (2011) N. McSweeney et al. EUROPEAN JOURNAL OF PAEDIATRIC NEUROLOGY
- Quality of Life in Duchenne Muscular Dystrophy: The Subjective Impact on Children and Parents
- (2011) Ilaria Baiardini et al. JOURNAL OF CHILD NEUROLOGY
- Health status of boys with Duchenne muscular dystrophy: A parent's perspective
- (2011) Paula Bray et al. JOURNAL OF PAEDIATRICS AND CHILD HEALTH
- P1.36 Evaluation of the quality of life in patients with Duchenne Muscular Dystrophy
- (2011) V.A. Simon et al. NEUROMUSCULAR DISORDERS
- Health- related quality of life in patients with Duchenne Muscular Dystrophy
- (2011) B Geers et al. NEUROPEDIATRICS
- Diagnosis and management of Duchenne muscular dystrophy, part 1: diagnosis, and pharmacological and psychosocial management
- (2009) Katharine Bushby et al. LANCET NEUROLOGY
- Two Perspectives of Proxy Reporting of Health-Related Quality of Life Using the Euroqol-5D, An Investigation of Agreement
- (2008) Steven McPhail et al. MEDICAL CARE
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