Article
Oncology
Amandine Bertrand, Veronique Veyet, Florence Goy, Marie Cervos, Matthias Schell
Summary: The study found that home nurses play a crucial role in pediatric palliative care, with most of them having reservations about accepting these duties but also showing significant personal involvement in the cases. Key influencing factors include the availability and proactiveness of the HCU team, as well as communication and planning with the families.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Nursing
Angela M. H. J. Mengelers, Vincent R. A. Moermans, Michel H. C. Bleijlevens, Hilde Verbeek, Elizabeth Capezuti, Frans Tan, Koen Milisen, Jan P. H. Hamers
Summary: This study aimed to investigate the demand, use, and associated factors of involuntary treatment in people with dementia (PwD) receiving professional home care in the Netherlands and Belgium. The findings revealed that more than half of the PwD living at home received involuntary treatment, including nonconsensual care, psychotropic medication, and physical restraints. The use of involuntary treatment was influenced by living status, ADL dependency, cognitive ability, caregiver burden, and the country where home care was received. The study highlights the need for further research on variations in prevalence and the prevention of involuntary treatment in dementia.
JOURNAL OF CLINICAL NURSING
(2022)
Article
Geriatrics & Gerontology
Yoon Jae Lee, Deirdre M. Johnston, Melissa Reuland, Constantine G. Lyketsos, Quincy Samus, Halima Amjad
Summary: This study aims to describe the reasons for hospitalizations among community-living persons with dementia participating in a dementia care coordination study, and how these reasons vary by disease stage. The results show that infections and falls are the most common reasons for hospitalization, and the reasons vary based on the severity of functional impairment.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2022)
Article
Geriatrics & Gerontology
Aaron Jones, Laura C. Maclagan, Connie Schumacher, Xuesong Wang, R. Liisa Jaakkimainen, Jun Guan, Richard H. Swartz, Susan E. Bronskill
Summary: The COVID-19 pandemic had differing impacts on home care services for individuals with dementia, with personal care and therapy decreasing significantly in the early months, while nursing services were only minimally affected. Overall rates had recovered by September 2020, with nursing and therapies surpassing historical levels. The changes were largely consistent across sociodemographic strata, although rural populations experienced larger declines in personal care and smaller rebounds in nursing services.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2021)
Article
Geriatrics & Gerontology
Vimal Sriram, Crispin Jenkinson, Michele Peters
Summary: This study examines the experiences and impact of Assistive Technology (AT) on carers of persons with dementia. The survey results show that smartphones and tablet computers are the most frequently used AT, primarily for safety, communication, and reminders. The study also finds that AT has a positive impact on the physical, mental, and social well-being of carers, and strengthens caring relationships.
Article
Geriatrics & Gerontology
Hsin-Feng Su, Malcolm Koo, Wen-Li Lee, Huei-Chuan Sung, Ru-Ping Lee, Wen- Liu
Summary: The 12-week dementia care training program significantly improved the knowledge, attitude, and competence of home care workers on dementia care, with lasting effects even 12 weeks after the end of the intervention.
Article
Public, Environmental & Occupational Health
Gillian Smith, Karen Rodham
Summary: This study examines the experiences and challenges faced by adult daughters who support a parent with dementia to remain living in their home, highlighting the ethical dilemmas, competing demands, and the importance of proactive support from service providers to prevent compassion fatigue.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2022)
Article
Nursing
Ragnhild Hedman, Per-Olof Sandman, David Edvardsson
Summary: This study aims to develop a theoretical understanding of providing person-centred home care for people with dementia. Through grounded theory, a model for person-centred home care was outlined, emphasizing the importance of establishing and continuously fostering familiarity in the care process. The study provides insights that can inform education and administration of home care for people with dementia.
JOURNAL OF CLINICAL NURSING
(2022)
Article
Health Care Sciences & Services
Yu Sun, Masao Iwagami, Jun Komiyama, Takehiro Sugiyama, Ryota Inokuchi, Nobuo Sakata, Tomoko Ito, Satoru Yoshie, Hiroki Matsui, Keitaro Kume, Masaru Sanuki, Genta Kato, Yukiko Mori, Hiroaki Ueshima, Nanako Tamiya
Summary: A retrospective cohort study in Japan examined the effect of post-discharge care by conventional or enhanced HCSCs on readmission rates in elderly heart failure patients. The study found that patients receiving care from conventional or enhanced HCSCs had lower readmission rates but more emergency house calls. These findings suggest that both conventional and enhanced HCSCs may be effective in reducing the risk of rehospitalization.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2023)
Article
Health Care Sciences & Services
Julia G. Burgdorf, Aditi P. Sen, Jennifer L. Wolff
Summary: This study shows that home health agencies experience significantly higher costs when providing care for patients with cognitive impairment. Policies and models should consider patient cognitive function in order to incentivize agencies to provide care for those with cognitive impairment. Monitoring of home health access among Medicare beneficiaries with cognitive impairment is recommended.
HEALTH SERVICES RESEARCH
(2022)
Article
Nursing
Vincent R. A. Moermans, Jan P. H. Hamers, Hilde Verbeek, Bernadette Dierckx de Casterle, Koen Milisen, Michel H. C. Bleijlevens
Summary: District nurses' experiences with involuntary treatment were influenced by their involvement in the decision-making process. They found that while involuntary treatment use was appropriate care to some extent, they also felt it might be unjust as they wanted to respect the wishes of PLWD. Ultimately, they viewed the use of involuntary treatment as necessary from a professional perspective, with safety being prioritized over autonomy, leading to stress due to conflicting values.
Review
Nursing
Angela Schnelli, Melanie Karrer, Hanna Mayer, Adelheid Zeller
Summary: This article aims to outline and examine the aggressive incidents of persons with dementia towards professional caregivers in the home care setting. It highlights the lack of literature on this topic and the hindrances to solving the problematic behavior. It suggests that specific education and training for home caregivers may help to deal with aggressive behavior.
JOURNAL OF CLINICAL NURSING
(2023)
Article
Geriatrics & Gerontology
Linda Sandberg, Lena Borell, Lena Rosenberg
Summary: The study found that home care staff face various dilemmas in their daily work, including strategies for tracking risks, deciding when to act, and dilemmas when acting on risks. The research shows that staff have to balance respecting the autonomy of persons with dementia with ensuring their safety.
AGING & MENTAL HEALTH
(2021)
Review
Medicine, General & Internal
Tiago Ribeiro, Alyson Mahar, Angela Jerath, Adom Bondzi-Simpson, Victoria Barabash, Austin A. Barr, Frances C. Wright, Ekaterina Kosyachkova, Julie Deleemans, Natalie G. Coburn, Julie Hallet
Summary: Patient-centred care is important in cancer management. Patients need accessible information on outcomes important to them, such as days at home (DAH). This review aims to consolidate information on DAH in cancer care and review definitions and terms used, to guide future use of DAH as a patient-centred care tool.
Article
Geriatrics & Gerontology
Anita M. Y. Goh, Meg Polacsek, Sue Malta, Colleen Doyle, Brendan Hallam, Luke Gahan, Lee Fay Low, Claudia Cooper, Gill Livingston, Anita Panayiotou, Samantha M. Loi, Maho Omori, Steven Savvas, Jason Burton, David Ames, Samuel C. Scherer, Nadia Chau, Stefanie Roberts, Margaret Winbolt, Frances Batchelor, Briony Dow
Summary: This study aimed to explore the definition of 'good' in-home care for people living with dementia from the perspectives of those receiving and providing care. The results identified five key themes considered important for good in-home dementia care: home care workers' understanding of dementia, person-centred care and empathy, relationships and communication, knowledge of positive strategies for changed behaviors, and effective workplace policies and culture. These findings can inform the development of training programs and service design for home care workers, ultimately improving the delivery of home care services for people with dementia.
Article
Psychiatry
Nadine Dougall, Paul Lambert, Margaret Maxwell, Alison Dawson, Richard Sinnott, Susan McCafferty, Carole Morris, David Clark, Anthea Springbett
BRITISH JOURNAL OF PSYCHIATRY
(2014)
Article
Multidisciplinary Sciences
Guy C. Warner, Jesse M. Blum, Simon B. Jones, Paul S. Lambert, Kenneth J. Turner, Larry Tan, Alison S. F. Dawson, David N. F. Bell
PHILOSOPHICAL TRANSACTIONS OF THE ROYAL SOCIETY A-MATHEMATICAL PHYSICAL AND ENGINEERING SCIENCES
(2010)
Article
Geriatrics & Gerontology
Alison Bowes, Alison Dawson, Ruth Jepson, Louise McCabe
Article
Environmental Sciences
Louise McCabe, Alison Dawson, Elaine Douglas, Nessa Barry
Summary: The restrictions imposed in response to the COVID-19 pandemic pose significant risks to the human rights of older people, particularly in terms of social engagement and technology usage. A rights-based approach is needed to protect and uphold the human rights of older people.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2021)
Review
Gerontology
Jan Pringle, Ruth Jepson, Alison Dawson, Louise McCabe, Alison Bowes
Summary: Research suggests that physical activity may have the potential to delay cognitive decline in people with dementia by reducing hippocampal atrophy and increasing neural recruitment, among other effects. It is recommended that physical activity be incorporated into on-going lifestyle and combined with social interaction for optimal benefit.
QUALITY IN AGEING AND OLDER ADULTS
(2021)
Article
Gerontology
Alison Bowes, Alison Dawson, Corinne Greasley-Adams, Ruth Jepson, Louise McCabe
Summary: Research suggests that cultural beliefs about physical activity, influenced by stereotypes of dependency, may impact physical activity in care homes. The attitudes of managers, staff, and residents towards physical activity can vary, reflecting or challenging dominant societal views. The closed boundaries of care homes can contribute to sedentary behavior, with resident involvement in physical activity ranging from voluntary to enforced. Management commitment has the potential to positively influence physical activity levels, but addressing cultural change and individual preferences is essential for sustainable interventions.
Article
Gerontology
Alison Bowes, Alison Dawson, Rosalie Ashworth
Article
Gerontology
Alison Bowes, Alison Dawson, Corinne Greasley-Adams, Louise McCabe
Article
Gerontology
Alison Bowes, Alison Dawson, Louise McCabe
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE
(2018)
Review
Ophthalmology
Alison Bowes, Alison Dawson, Corinne Greasley-Adams, Louise McCabe
BRITISH JOURNAL OF VISUAL IMPAIRMENT
(2016)
Article
Communication
Alison Bowes, Alison Dawson, David Bell
INFORMATION COMMUNICATION & SOCIETY
(2012)
Article
Business
Peter Rosa, Alison Dawson
ENTREPRENEURSHIP AND REGIONAL DEVELOPMENT
(2006)
Article
Law
Tamara Hervey, Abigail Stark, Alison Dawson, Jose-Luis Fernandez, Tihana Matosevic, David McDaid
JOURNAL OF SOCIAL WELFARE AND FAMILY LAW
(2012)