Development of an internationally agreed minimal dataset for juvenile dermatomyositis (JDM) for clinical and research use

Developing Core Outcome Measurement Sets for Clinical Trials: OMERACT Filter 2.0

(2014) Maarten Boers et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

The COMET Initiative database: progress and activities from 2011 to 2013

(2014) Elizabeth Gargon et al.   Trials

Registries in idiopathic inflammatory myopathies

(2013) Ingrid E. Lundberg et al.   CURRENT OPINION IN RHEUMATOLOGY

PReS-FINAL-2012: Introducing a new approach to clinical care of juvenile dermatomyositis: the juvenile dermatomyositis multidimensional assessment report

(2013) GC Varnier et al.   Pediatric Rheumatology

Pediatric Patient-Reported Outcome Instruments for Research to Support Medical Product Labeling: Report of the ISPOR PRO Good Research Practices for the Assessment of Children and Adolescents Task Force

(2013) Louis S. Matza et al.   VALUE IN HEALTH

Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1—Eliciting Concepts for a New PRO Instrument

(2011) Donald L. Patrick et al.   VALUE IN HEALTH

Measures of adult and juvenile dermatomyositis, polymyositis, and inclusion body myositis: Physician and Patient/Parent Global Activity, Manual Muscle Testing (MMT), Health Assessment Questionnaire (HAQ)/Childhood Health Assessment Questionnaire (C-HAQ),

(2011) Lisa G. Rider et al.   ARTHRITIS CARE & RESEARCH

Preliminary criteria for global flares in childhood-onset systemic lupus erythematosus

(2011) Hermine I. Brunner et al.   ARTHRITIS CARE & RESEARCH

Using the Delphi Technique to Determine Which Outcomes to Measure in Clinical Trials: Recommendations for the Future Based on a Systematic Review of Existing Studies

(2011) Ian P. Sinha et al.   PLOS MEDICINE

GRADE guidelines: 2. Framing the question and deciding on important outcomes

(2010) Gordon H. Guyatt et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Treatment Approaches to Juvenile Dermatomyositis (JDM) Across North America: The Childhood Arthritis and Rheumatology Research Alliance (CARRA) JDM Treatment Survey

(2010) E. STRINGER et al.   JOURNAL OF RHEUMATOLOGY

International consensus for a definition of disease flare in lupus

(2010) N Ruperto et al.   LUPUS

A national registry for juvenile dermatomyositis and other paediatric idiopathic inflammatory myopathies: 10 years' experience; the Juvenile Dermatomyositis National (UK and Ireland) Cohort Biomarker Study and Repository for Idiopathic Inflammatory Myopathies

(2010) Neil Martin et al.   RHEUMATOLOGY

Validation of manual muscle testing and a subset of eight muscles for adult and juvenile idiopathic inflammatory myopathies

(2010) Lisa G. Rider et al.   ARTHRITIS CARE & RESEARCH

The Paediatric Rheumatology International Trials Organisation provisional criteria for the evaluation of response to therapy in juvenile dermatomyositis

(2010) Nicolino Ruperto et al.   ARTHRITIS CARE & RESEARCH