Biomedical Data Sharing and Reuse: Attitudes and Practices of Clinical and Scientific Research Staff

Systematic archiving and access to health research data: rationale, current status and way forward

(2016) Manju Rani et al.   BULLETIN OF THE WORLD HEALTH ORGANIZATION

Bumps and bridges on the road to responsible sharing of clinical trial data

(2014) Jesse A Berlin et al.   Clinical Trials

Four Health Data Networks Illustrate The Potential For A Shared National Multipurpose Big-Data Network

(2014) Lesley H. Curtis et al.   HEALTH AFFAIRS

The Rare Diseases Clinical Research Network’s Organization and Approach to Observational Research and Health Outcomes Research

(2014) Jeffrey P. Krischer et al.   JOURNAL OF GENERAL INTERNAL MEDICINE

Policy: NIH plans to enhance reproducibility

(2014) Francis S. Collins et al.   NATURE

Clinical Trial Transparency and Orphan Drug Development: Recent Trends in Data Sharing by the Pharmaceutical Industry

(2014) D. So et al.   Public Health Genomics

Improving the Transparency of Prognosis Research: The Role of Reporting, Data Sharing, Registration, and Protocols

(2014) George Peat et al.   PLOS MEDICINE

Genomic data-sharing: what will be our legacy?

(2014) Shawneequa Callier et al.   Frontiers in Genetics

Sample and data sharing: Observations from a central data repository

(2013) Mary-Anne Ardini et al.   CLINICAL BIOCHEMISTRY

Wearable motion sensors to continuously measure real-world physical activities

(2013) Bruce H. Dobkin   CURRENT OPINION IN NEUROLOGY

The ethics of secondary data analysis: Considering the application of Belmont principles to the sharing of neuroimaging data

(2013) Beth Brakewood et al.   NEUROIMAGE

Sharing individual level data from observational studies and clinical trials: a perspective from NHLBI

(2013) Sean A Coady et al.   Trials

The Importance of Clinical Trial Data Sharing

(2012) Joseph S. Ross et al.  

Translational Bioinformatics: Data-driven Drug Discovery and Development

(2012) A J Butte et al.   CLINICAL PHARMACOLOGY & THERAPEUTICS

The conundrum of sharing research data

(2012) Christine L. Borgman   JOURNAL OF THE AMERICAN SOCIETY FOR INFORMATION SCIENCE AND TECHNOLOGY

Mine, Yours, Ours? Sharing Data on Human Genetic Variation

(2012) Nicola Milia et al.   PLoS One

Overview of Electronic Data Sharing: Why, How, and Impact

(2012) Roy B. Jones et al.   Current Oncology Reports

Data sharing and publishing in the field of neuroimaging

(2012) Janis L Breeze et al.   GigaScience

Quantitative data: learning to share

(2011) Monya Baker   NATURE METHODS

Why we need easy access to all data from all clinical trials and how to accomplish it

(2011) Peter C Gøtzsche   Trials

Developing and implementing an institute-wide data sharing policy

(2011) Stephanie OM Dyke et al.   Genome Medicine

Evaluating re-identification risks with respect to the HIPAA privacy rule

(2010) Kathleen Benitez et al.   JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION

PRIDE Converter: making proteomics data-sharing easy

(2009) Harald Barsnes et al.   NATURE BIOTECHNOLOGY

Data sharing for pharmacokinetic studies

(2009) BRIAN J. ANDERSON et al.   PEDIATRIC ANESTHESIA

'Omics Data Sharing

(2009) D. Field et al.   SCIENCE

Incorporating collaboratory concepts into informatics in support of translational interdisciplinary biomedical research

(2008) E LEE et al.   INTERNATIONAL JOURNAL OF MEDICAL INFORMATICS