Informed Consent and Genomic Incidental Findings: IRB Chair Perspectives

Bad News about Bad News: The Disclosure of Risks to Insurability in Research Consent Processes

(2011) Victoria Smith Apold et al.   Accountability in Research-Policies and Quality Assurance

Is Informed Consent Broken?

(2011) Gail E. Henderson   AMERICAN JOURNAL OF THE MEDICAL SCIENCES

Disclosing Individual CDKN2A Research Results to Melanoma Survivors: Interest, Impact, and Demands on Researchers

(2011) K. D. Christensen et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

Downsizing genomic medicine: Approaching the ethical complexity of whole-genome sequencing by starting small

(2011) Richard R Sharp   GENETICS IN MEDICINE

Active choice but not too active: Public perspectives on biobank consent models

(2011) Christian M. Simon et al.   GENETICS IN MEDICINE

Deploying whole genome sequencing in clinical practice and public health: Meeting the challenge one bin at a time

(2011) Jonathan S Berg et al.   GENETICS IN MEDICINE

A Systematic Review of the Empirical Literature Evaluating IRBs: What We Know and What We Still Need to Learn

(2011) Lura Abbott et al.   Journal of Empirical Research on Human Research Ethics

What Would You Do?

(2011) J. Couzin-Frankel   SCIENCE

Informed Consent in Genomics and Genetic Research

(2010) Amy L. McGuire et al.   Annual Review of Genomics and Human Genetics

Ethical and Practical Guidelines for Reporting Genetic Research Results to Study Participants

(2010) Richard R. Fabsitz et al.   Circulation-Cardiovascular Genetics

Researcher Practices on Returning Genetic Research Results

(2010) Christopher Heaney et al.   Genetic Testing and Molecular Biomarkers

CLIA-tested genetic variants on commercial SNP arrays: Potential for incidental findings in genome-wide association studies

(2010) Andrew D Johnson et al.   GENETICS IN MEDICINE

Simplifying informed consent for biorepositories: Stakeholder perspectives

(2010) Laura M Beskow et al.   GENETICS IN MEDICINE

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

(2010) Meredith C. Meacham et al.   Journal of Empirical Research on Human Research Ethics

Offering Individual Genetic Research Results: Context Matters

(2010) L. M. Beskow et al.   Science Translational Medicine

Tailoring the process of informed consent in genetic and genomic research

(2010) Charles N Rotimi et al.   Genome Medicine

Disclosure of Research Results from Cancer Genomic Studies: State of the Science

(2009) L. G. Dressler   CLINICAL CANCER RESEARCH

Incidental Findings: A Common Law Approach

(2008) Stacey A. Tovino   Accountability in Research-Policies and Quality Assurance

Public Expectations for Return of Results from Large-Cohort Genetic Research

(2008) Juli Murphy et al.   AMERICAN JOURNAL OF BIOETHICS

IRB Chairs' Perspectives on Genomics Research Involving Stored Biological Materials: Ethical Concerns and Proposed Solutions

(2008) Leslie E. Wolf et al.   Journal of Empirical Research on Human Research Ethics

Institutional Review Board Approaches to the Incidental Findings Problem

(2008) Moira A. Keane   JOURNAL OF LAW MEDICINE & ETHICS

The Challenge of Incidental Findings

(2008) Susan M. Wolf   JOURNAL OF LAW MEDICINE & ETHICS

Incidental Findings in Human Subjects Research: What Do Investigators Owe Research Participants?

(2008) Franklin G. Miller et al.   JOURNAL OF LAW MEDICINE & ETHICS

The Future of Incidental Findings: Should They Be Viewed as Benefits?

(2008) Lisa S. Parker   JOURNAL OF LAW MEDICINE & ETHICS

Understanding Incidental Findings in the Context of Genetics and Genomics

(2008) Mildred K. Cho   JOURNAL OF LAW MEDICINE & ETHICS

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

(2008) Susan M. Wolf et al.   JOURNAL OF LAW MEDICINE & ETHICS

Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast

(2008) Caroline Gikonyo et al.   SOCIAL SCIENCE & MEDICINE

Research Ethics Recommendations for Whole-Genome Research: Consensus Statement

(2008) Timothy Caulfield et al.   PLOS BIOLOGY