Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research
出版年份 2018 全文链接
标题
Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research
作者
关键词
-
出版物
AMERICAN JOURNAL OF BIOETHICS
Volume 18, Issue 4, Pages 3-20
出版商
Informa UK Limited
发表日期
2018-04-06
DOI
10.1080/15265161.2018.1431322
参考文献
相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。- Metaphors matter: from biobank to a library of medical information
- (2017) Mildred K Cho et al. GENETICS IN MEDICINE
- “It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South Africa
- (2016) Keymanthri Moodley et al. BMC Medical Ethics
- Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study
- (2016) Karen Spencer et al. JOURNAL OF MEDICAL INTERNET RESEARCH
- Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine
- (2016) Timothy Dye et al. JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
- Conducting Precision Medicine Research with African Americans
- (2016) Chanita Hughes Halbert et al. PLoS One
- A Survey of U.S Adults’ Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment
- (2016) David J. Kaufman et al. PLoS One
- Medical Researchers' Ancillary Care Obligations: The Relationship-Based Approach
- (2015) Nate W. Olson BIOETHICS
- National Survey and Community Advisory Board Development for a Bipolar Disorder Biobank
- (2015) Mark A Frye et al. BIPOLAR DISORDERS
- Taking a Stand:The Genetics Community's Responsibility for Intelligence Research
- (2015) Shawneequa L. Callier et al. HASTINGS CENTER REPORT
- Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research
- (2015) Ingrid A. Holm et al. Journal of Empirical Research on Human Research Ethics
- A New Initiative on Precision Medicine
- (2015) Francis S. Collins et al. NEW ENGLAND JOURNAL OF MEDICINE
- Patient Advocacy Organizations: Institutional Conflicts of Interest, Trust, and Trustworthiness
- (2015) Susannah L. Rose JOURNAL OF LAW MEDICINE & ETHICS
- Return of Genomic Results to Research Participants: The Floor, the Ceiling, and the Choices In Between
- (2014) Gail P. Jarvik et al. AMERICAN JOURNAL OF HUMAN GENETICS
- The Role of Patient Advocacy Organizations in Shaping Genomic Science
- (2013) Pei P. Koay et al. Annual Review of Genomics and Human Genetics
- Inclusion of Pediatric Samples in an Opt-Out Biorepository Linking DNA to De-Identified Medical Records: Pediatric BioVU
- (2013) T L McGregor et al. CLINICAL PHARMACOLOGY & THERAPEUTICS
- Stewardship Practices of U.S. Biobanks
- (2013) G. E. Henderson et al. Science Translational Medicine
- Secondary researchers’ duties to return incidental findings and individual research results: a partial-entrustment account
- (2012) Henry S. Richardson et al. GENETICS IN MEDICINE
- Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network
- (2012) Stephanie M. Fullerton et al. GENETICS IN MEDICINE
- Two large-scale surveys on community attitudes toward an opt-out biobank
- (2011) Kyle B. Brothers et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- Study newsletters, community and ethics advisory boards, and focus group discussions provide ongoing feedback for a large biobank
- (2011) Catherine A. McCarty et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- The Tension Between Data Sharing and the Protection of Privacy in Genomics Research
- (2011) Jane Kaye Annual Review of Genomics and Human Genetics
- From consent to institutions: Designing adaptive governance for genomic biobanks
- (2011) Kieran C. O’Doherty et al. SOCIAL SCIENCE & MEDICINE
- The role of race and trust in tissue/blood donation for genetic research
- (2010) Jada Bussey-Jones et al. GENETICS IN MEDICINE
- Public and Biobank Participant Attitudes toward Genetic Research Participation and Data Sharing
- (2010) A.A. Lemke et al. Public Health Genomics
- Meeting the Governance Challenges of Next-Generation Biorepository Research
- (2010) S. M. Fullerton et al. Science Translational Medicine
- Transforming the Culture of Biomedical Research From Compliance to Trustworthiness: Insights From Nonmedical Sectors
- (2009) Mark Yarborough et al. ACADEMIC MEDICINE
- Public Opinion about the Importance of Privacy in Biobank Research
- (2009) David J. Kaufman et al. AMERICAN JOURNAL OF HUMAN GENETICS
- Race, Medical Researcher Distrust, Perceived Harm, and Willingness to Participate in Cardiovascular Prevention Trials
- (2009) Joel B. Braunstein et al. MEDICINE
- The clinical investigator-subject relationship: a contextual approach
- (2009) David B Resnik Philosophy Ethics and Humanities in Medicine
- Engaging the Public on Biobanks: Outcomes of the BC Biobank Deliberation
- (2008) K.C. O’Doherty et al. Public Health Genomics
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