4.6 Article

Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account

期刊

GENETICS IN MEDICINE
卷 14, 期 4, 页码 467-472

出版社

NATURE PUBLISHING GROUP
DOI: 10.1038/gim.2012.12

关键词

ancillary care; biobanks; ethics; incidental findings; partial-entrustment model; returning research results

资金

  1. National Institutes of Health (NIH) [2R01HG003178, 5P50HG003389, UL1 RR025744]

向作者/读者索取更多资源

Existing attempts to explain why secondary researchers might have any obligation to return findings to the contributors of genetic samples falter because of the lack of any direct interaction between the secondary researchers and the contributors. The partial-entrustment account of these obligations defended here circumvents this problem by explaining how a chain of special responsibilities can be forged even in the absence of any direct interaction.

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