期刊
GENETICS IN MEDICINE
卷 14, 期 4, 页码 467-472出版社
NATURE PUBLISHING GROUP
DOI: 10.1038/gim.2012.12
关键词
ancillary care; biobanks; ethics; incidental findings; partial-entrustment model; returning research results
资金
- National Institutes of Health (NIH) [2R01HG003178, 5P50HG003389, UL1 RR025744]
Existing attempts to explain why secondary researchers might have any obligation to return findings to the contributors of genetic samples falter because of the lack of any direct interaction between the secondary researchers and the contributors. The partial-entrustment account of these obligations defended here circumvents this problem by explaining how a chain of special responsibilities can be forged even in the absence of any direct interaction.
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