期刊
SCIENCE TRANSLATIONAL MEDICINE
卷 5, 期 215, 页码 -出版社
AMER ASSOC ADVANCEMENT SCIENCE
DOI: 10.1126/scitranslmed.3007362
关键词
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资金
- U.S. National Human Genome Research Institute (NHGRI) [1R01HG005227-01A1]
- NHGRI [5UL1RR025747-04S1, P50 HG004488]
Biobanks require new governance models that address their ethical and regulatory challenges. One model relies on stewardship of specimens throughout their life course. Here, we discuss fndings from our survey of 456 U.S. biobank managers that addressed whether and how biobanks steward their specimens. The fndings reveal that most biobanks do not create ongoing relationships with contributors but do practice stewardship over storing and sharing of specimens. Biobanks now need guidance to fully articulate stewardship practices that ensure respect for contributors while facilitating research.
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