标题
The Tension Between Data Sharing and the Protection of Privacy in Genomics Research
作者
关键词
-
出版物
Annual Review of Genomics and Human Genetics
Volume 13, Issue 1, Pages 415-431
出版商
Annual Reviews
发表日期
2011-03-02
DOI
10.1146/annurev-genom-082410-101454
参考文献
相关参考文献
注意:仅列出部分参考文献,下载原文获取全部文献信息。- Technical and Policy Approaches to Balancing Patient Privacy and Data Sharing in Clinical and Translational Research
- (2016) Bradley Malin et al. JOURNAL OF INVESTIGATIVE MEDICINE
- From patients to partners: participant-centric initiatives in biomedical research
- (2012) Jane Kaye et al. NATURE REVIEWS GENETICS
- Genomics really gets personal: How exome and whole genome sequencing challenge the ethical framework of human genetics research
- (2011) Holly K. Tabor et al. AMERICAN JOURNAL OF MEDICAL GENETICS PART A
- The eMERGE Network: A consortium of biorepositories linked to electronic medical records data for conducting genomic studies
- (2011) Catherine A McCarty et al. BMC Medical Genomics
- Data sharing: not as simple as it seems
- (2011) Neil Pearce et al. Environmental Health
- Ethical and practical challenges of sharing data from genome-wide association studies: The eMERGE Consortium experience
- (2011) A. L. McGuire et al. GENOME RESEARCH
- From single biobanks to international networks: developing e-governance
- (2011) Jane Kaye HUMAN GENETICS
- A decade’s perspective on DNA sequencing technology
- (2011) Elaine R. Mardis NATURE
- Genomics, Health Care, and Society
- (2011) Kathy L. Hudson NEW ENGLAND JOURNAL OF MEDICINE
- Who Shares? Who Doesn't? Factors Associated with Openly Archiving Raw Research Data
- (2011) Heather A. Piwowar PLoS One
- Research Practice and Participant Preferences: The Growing Gulf
- (2011) S. B. Trinidad et al. SCIENCE
- From consent to institutions: Designing adaptive governance for genomic biobanks
- (2011) Kieran C. O’Doherty et al. SOCIAL SCIENCE & MEDICINE
- Genomics and Privacy: Implications of the New Reality of Closed Data for the Field
- (2011) Dov Greenbaum et al. PLoS Computational Biology
- Temporal Trends in Results Availability from Genome-Wide Association Studies
- (2011) Andrew D. Johnson et al. PLoS Genetics
- The Challenges of Achieving Open-Source Sharing of Biobank Data
- (2010) Donna M. Gitter BIOTECHNOLOGY LAW REPORT
- Potential for Revealing Individual-Level Information in Genome-wide Association Studies
- (2010) Thomas Lumley JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION
- Glad You Asked: Participants' Opinions of Re-Consent for DbGap Data Submission
- (2010) Evette J. Ludman et al. Journal of Empirical Research on Human Research Ethics
- Human genome at ten: Science after the sequence
- (2010) Declan Butler NATURE
- Assessing the Privacy Risks of Data Sharing in Genomics
- (2010) C. Heeney et al. Public Health Genomics
- Inferential Genotyping of Y Chromosomes in Latter-Day Saints Founders and Comparison to Utah Samples in the HapMap Project
- (2009) Jane Gitschier AMERICAN JOURNAL OF HUMAN GENETICS
- An investigation of patients' motivations for their participation in genetics-related research
- (2009) N Hallowell et al. JOURNAL OF MEDICAL ETHICS
- Recommendations from the 2008 International Summit on Proteomics Data Release and Sharing Policy: The Amsterdam Principles
- (2009) Henry Rodriguez et al. JOURNAL OF PROTEOME RESEARCH
- Prepublication data sharing
- (2009) NATURE
- Data sharing in genomics — re-shaping scientific practice
- (2009) Jane Kaye et al. NATURE REVIEWS GENETICS
- Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and Protection
- (2009) et al. PLoS Genetics
- STrengthening the REporting of Genetic Association Studies (STREGA)— An Extension of the STROBE Statement
- (2009) Julian Little et al. PLOS MEDICINE
- On Jim Watson's APOE status: genetic information is hard to hide
- (2008) Dale R Nyholt et al. EUROPEAN JOURNAL OF HUMAN GENETICS
- DNA data sharing: research participants' perspectives
- (2008) Amy L McGuire et al. GENETICS IN MEDICINE
- Commentary: How small is small?
- (2008) N. Day INTERNATIONAL JOURNAL OF EPIDEMIOLOGY
- Size matters: just how big is BIG?: Quantifying realistic sample size requirements for human genome epidemiology
- (2008) P. R. Burton et al. INTERNATIONAL JOURNAL OF EPIDEMIOLOGY
- Genomic Research and Incidental Findings
- (2008) Brian Van Ness JOURNAL OF LAW MEDICINE & ETHICS
- Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations
- (2008) Susan M. Wolf et al. JOURNAL OF LAW MEDICINE & ETHICS
- From genetic privacy to open consent
- (2008) Jeantine E. Lunshof et al. NATURE REVIEWS GENETICS
- Biobanken und Biomolekulare Ressourcen Forschungsinfrastruktur (BBMRI)
- (2008) C. Viertler et al. PATHOLOGE
- Sample, data use and protection in biobanking in Europe: legal issues
- (2008) Eleni Zika et al. PHARMACOGENOMICS
- Bioinformatics challenges of new sequencing technology
- (2008) Mihai Pop et al. TRENDS IN GENETICS
- Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays
- (2008) Nils Homer et al. PLoS Genetics
- Research ethics and the challenge of whole-genome sequencing
- (2007) Amy L. McGuire et al. NATURE REVIEWS GENETICS
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