Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings

Birth prevalence of disorders detectable through newborn screening by race/ethnicity

(2012) Lisa Feuchtbaum et al.   GENETICS IN MEDICINE

What questions should newborn screening long-term follow-up be able to answer? A statement of the US Secretary for Health and Human Servicesʼ Advisory Committee on Heritable Disorders in Newborns and Children

(2011) Cynthia F. Hinton et al.   GENETICS IN MEDICINE

Long-term follow-up of children with confirmed newborn screening disorders using record linkage

(2011) Ying Wang et al.   GENETICS IN MEDICINE

The inborn errors of metabolism information system: A project of the Region 4 Genetics Collaborative Priority 2 Workgroup

(2010) Susan A. Berry et al.   GENETICS IN MEDICINE

Long-term follow-up to ensure quality care of individuals diagnosed with newborn screening conditions: Early experience in New England

(2010) Inderneel Sahai et al.   GENETICS IN MEDICINE

Diagnostic guidelines for newborns who screen positive in newborn screening

(2010) David Kronn et al.   GENETICS IN MEDICINE

Newborn dried bloodspot screening: Long-term follow-up activities and information system requirements

(2010) Rani H. Singh et al.   GENETICS IN MEDICINE

Long-term follow-up of newborn screening patients

(2010) Susan A. Berry et al.   GENETICS IN MEDICINE

The context and approach for the California newborn screening short- and long-term follow-up data system: Preliminary findings

(2010) Lisa Feuchtbaum et al.   GENETICS IN MEDICINE

Mountain States Genetics Regional Collaborative Centerʼs Metabolic Newborn Screening Long-Term Follow-Up Study: A collaborative multi-site approach to newborn screening outcomes research

(2010) Erica L. Wright et al.   GENETICS IN MEDICINE

Long-term follow-up in newborn screening: A systems approach for improving health outcomes

(2010) Michele A. Lloyd-Puryear et al.   GENETICS IN MEDICINE

Long-term follow-up after diagnosis resulting from newborn screening: Statement of the US Secretary of Health and Human Services' Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children

(2008) Alex R Kemper et al.   GENETICS IN MEDICINE