4.4 Article

The influence of social factors on help-seeking for people with lung cancer

Journal

EUROPEAN JOURNAL OF CANCER CARE
Volume 22, Issue 6, Pages 709-713

Publisher

WILEY
DOI: 10.1111/ecc.12078

Keywords

lung cancer; social; patient information

Funding

  1. National Institute for Health Research

Ask authors/readers for more resources

While there has been no clear consensus on the potential for earlier diagnosis of lung cancer, recent research has suggested that the time between symptom onset and consultation can be long enough to plausibly affect prognosis. In this article, we present a review of the literature concerning help-seeking delays in lung cancer presentation, and more specifically, the role and influence that social factors may play in determining when and how people decide to seek medical help. We also consider how these factors contribute to patients' understanding of symptoms and illness indicators. We suggest that while there is research highlighting the importance of psychosocial influences on the general help-seeking behaviour of people with concerns about cancer, existing studies are mainly retrospective, and very little work has focused on identifying triggers and barriers specific to lung cancer. Further, we propose that while there have been a number of recent initiatives to raise awareness of the early signs of lung cancer, aimed at both patients and health professionals, little information provision has been targeted specifically at the formal and informal network level. This may be a useful avenue to pursue in future initiatives.

Authors

I am an author on this paper
Click your name to claim this paper and add it to your profile.

Reviews

Primary Rating

4.4
Not enough ratings

Secondary Ratings

Novelty
-
Significance
-
Scientific rigor
-
Rate this paper

Recommended

Article Medicine, General & Internal

Protocol for a non-randomised feasibility study evaluating a codesigned patient safety guide in primary care

Rebecca L. Morris, Kay Gallacher, Mark Hann, Carly Rolfe, Nicola Small, Sally J. Giles, Caroline Sanders, Stephen M. Campbell

Summary: This study aims to examine the feasibility and acceptability of a multicomponent intervention involving patients and/or carers in patient safety in primary care in the UK.

BMJ OPEN (2021)

Article Public, Environmental & Occupational Health

Public Perspectives of Using Social Media Data to Improve Adverse Drug Reaction Reporting: A Mixed-Methods Study

Alexander Bulcock, Lamiece Hassan, Sally Giles, Caroline Sanders, Goran Nenadic, Stephen Campbell, Will Dixon

Summary: Participants in the study demonstrated low awareness of pharmacovigilance methods and ADR reporting, but showed willingness to share health-related social media data with researchers and regulators. However, they were cautious about the use of automated text mining methods to detect and report ADRs.

DRUG SAFETY (2021)

Article Public, Environmental & Occupational Health

Using patient-generated health data in clinical practice: How timing influences its function in rheumatology outpatient consultations

Louise Laverty, Julie Gandrup, Charlotte A. Sharp, Angelo Ercia, Caroline Sanders, Dawn Dowding, William G. Dixon, Sabine N. van der Veer

Summary: This study explores the discussion of daily PGHD in outpatient consultations between patients with RA and rheumatologists. Clinicians decide when and how to use PGHD during consultations, which can influence the collaborative nature of the interaction. Educating patients and clinicians on the timing and strategies of using PGHD may enhance shared decision-making in clinical practice.

PATIENT EDUCATION AND COUNSELING (2022)

Review Medicine, General & Internal

Visual impairment and medication safety: a protocol for a scoping review

Sally J. Giles, Maria Panagioti, Lisa Riste, Sudeh Cheraghi-Sohi, Penny Lewis, Isabel Adeyemi, Karen Davies, Rebecca Morris, Denham Phipps, Christine Dickenson, Darren Ashcroft, Caroline Sanders

Summary: This review aims to understand medication safety issues for individuals with visual impairment by searching electronic bibliographic databases and including empirical studies. Researchers will collect data on study and participant characteristics, as well as medication safety incident types.

SYSTEMATIC REVIEWS (2021)

Article Psychiatry

Managing returns to prison from medium-secure services: qualitative study

Sarah-Jayne Leonard, Caroline Sanders, Jennifer J. Shaw

Summary: External factors such as commissioning criteria and legal status play a key role in discharge decision-making for prisoners admitted to medium-secure services. There is a lack of resources to meet the mental health needs of prisoners, indicating a need for a reevaluation of criteria for prolonged treatment in medium-secure services.

BJPSYCH OPEN (2021)

Review Health Care Sciences & Services

The perceptions of general practice among Central and Eastern Europeans in the United Kingdom: A systematic scoping review

Aaron Poppleton, Kelly Howells, Isabel Adeyemi, Carolyn Chew-Graham, Lisa Dikomitis, Caroline Sanders

Summary: This study explores the use and perceptions of UK general practice among the Central and Eastern European (CEE) community in the UK. The findings suggest that CEE community members have low levels of registration with general practitioners (GPs), and their ability, desire, and need to engage with GP services are influenced by cultural and sociodemographic factors. Many face difficulties accessing and receiving satisfactory healthcare, leading to distrust and dissatisfaction with general practice. Marginalized subgroups, including Roma, trafficked individuals, and homeless individuals, have particularly poor engagement with GPs. Limited data are available on the impact of Brexit and COVID-19.

HEALTH EXPECTATIONS (2022)

Article Multidisciplinary Sciences

Understanding the implementation, impact and sustainable use of an electronic pharmacy referral service at hospital discharge: A qualitative evaluation from a sociotechnical perspective.

Mark Jeffries, Richard N. Keers, Hilary Belither, Caroline Sanders, Kay Gallacher, Fatema Alqenae, Darren M. Ashcroft

Summary: The study evaluated the adoption and implications of a TCAM service in Salford, UK. The findings identified the effectiveness of the TCAM intervention in providing community pharmacists with timely and accurate information, leading to enhanced medication safety activities. It was recommended that opportunities be explored to fully integrate the network to further enhance the reach and impact of the TCAM service.

PLOS ONE (2021)

Article Health Care Sciences & Services

Co-designing an Adaption of a Mobile App to Enhance Communication, Safety, and Well-being Among People Living at Home With Early-Stage Dementia: Protocol for an Exploratory Multiple Case Study

Karen Davies, Sudeh Cheraghi-Sohi, Bie Nio Ong, Katherine Perryman, Caroline Sanders

Summary: This study aims to evaluate a mobile app designed to support people with dementia in improving their communication, safety, and well-being. It will use participatory qualitative methods and collaborate with co-designers to ensure diverse experiences are considered in case selection. The results will focus on supporting vulnerable individuals in the community and addressing the challenges of social isolation faced by people living with dementia.

JMIR RESEARCH PROTOCOLS (2021)

Article Primary Health Care

Remote primary care during the COVID-19 pandemic for people experiencing homelessness: a qualitative study

Kelly Howells, Mat Amp, Martin Burrows, Jo Brown, Rachel Brennan, Joanne Dickinson, Shaun Jackson, Wan-Ley Yeung, Darren Ashcroft, Stephen Campbell, Thomas Blakeman, Caroline Sanders

Summary: This study explores the impact of COVID-19 on access to healthcare for people experiencing homelessness. Findings suggest that remote telephone consultations have increased the difficulties faced by this population in accessing healthcare, highlighting the importance of addressing practical and technological barriers.

BRITISH JOURNAL OF GENERAL PRACTICE (2022)

Article Medicine, General & Internal

Ethnic inequalities in COVID-19 vaccine uptake and comparison to seasonal influenza vaccine uptake in Greater Manchester, UK: A cohort study

Ruth Elizabeth Watkinson, Richard Williams, Stephanie Gillibrand, Caroline Sanders, Matt Sutton

Summary: COVID-19 vaccine uptake is lower among most minority ethnic groups compared to the White British group in England. Ethnic inequalities in vaccine uptake exist and are wider for COVID-19 vaccination than influenza vaccination. Further research and policy action are needed to remove barriers and build trust among minority ethnic communities.

PLOS MEDICINE (2022)

Review Health Care Sciences & Services

Combining ethnography and conversation analysis to explore interaction in dementia care settings

John Chatwin, Katherine Ludwin, Isabelle Latham

Summary: This article discusses the application of ethnography and conversation analysis in care work and dementia care settings, and proposes the possibility of integrating the two methods. The authors argue that in order to further promote the professionalization of care work, a comprehensive understanding of the micro-level descriptions of care work practice is needed, while considering the wider social context. The importance of engaging with the public, care workers, and people living with dementia in research and design is also emphasized.

HEALTH EXPECTATIONS (2022)

Review Ophthalmology

Impact of Charles Bonnet Syndrome on visually impaired older adults' ability to engage in physical activity: A scoping review

Katharine Fisher, Caroline Sanders, Emma Stanmore

Summary: This scoping review aimed to explore the impact of Charles Bonnet syndrome (CBS) on older adults' engagement in physical activities. The findings suggested that CBS may interfere with older adults' ability to move and jeopardize their safety while walking. Further empirical research is needed to comprehensively understand the impact of CBS on older adults' participation in physical activities, considering the limited evidence available.

BRITISH JOURNAL OF VISUAL IMPAIRMENT (2023)

Article Public, Environmental & Occupational Health

Exploring the experiences of changes to support access to primary health care services and the impact on the quality and safety of care for homeless people during the COVID-19 pandemic: a study protocol for a qualitative mixed methods approach

Kelly Howells, Martin Burrows, Mat Amp, Rachel Brennan, Wan-Ley Yeung, Shaun Jackson, Joanne Dickinson, Julie Draper, Stephen Campbell, Darren Ashcroft, Tom Blakeman, Caroline Sanders

Summary: This study aims to investigate the impact of recent changes in primary care delivery in response to the COVID-19 pandemic on the safety and health outcomes of people experiencing homelessness. An action-led and participatory research methodology will be employed, with interviews conducted with individuals experiencing homelessness, as well as health professionals and stakeholders involved in care delivery. The findings could have implications for how healthcare is provided to homeless individuals not only during the pandemic, but also in the future.

INTERNATIONAL JOURNAL FOR EQUITY IN HEALTH (2021)

Article Health Policy & Services

Implementing disruptive technological change in UK healthcare: exploring development of a smart phone app for remote patient monitoring as a boundary object using qualitative methods

Charlotte A. Sharp, Mike Bresnen, Lynn Austin, Jillian McCarthy, William G. Dixon, Caroline Sanders

Summary: This paper explores the challenges of achieving effective collaboration in the development and use of a novel healthcare innovation in the English healthcare system by examining a case study of a smart phone application for rheumatoid arthritis patients. The analysis shows how knowledge sharing between patients and clinicians was enhanced, altering the nature of clinical consultation, and how certain conditions both enabled the innovation's development and inhibited its wider scale-up.

JOURNAL OF HEALTH ORGANIZATION AND MANAGEMENT (2021)

Article Public, Environmental & Occupational Health

Exploring engagement with digital screens for collecting patient feedback in clinical waiting rooms: The role of touch and place

Bie Nio Ong, Caroline Sanders

Summary: Health service settings are increasingly adopting digital devices to promote patient engagement and improve service responsiveness. However, limited understanding of the mechanisms and contexts for digital engagement remains, highlighting the need for further research. Digital inequalities can impact the design and development of digital innovations in healthcare and contribute to inequalities associated with the implementation of new digital technologies.

HEALTH (2021)

No Data Available