Article
Clinical Neurology
Norsima Nazifah Sidek, Sureshkumar Kamalakannan, Tengku Alina Tengku Ismail, Kamarul Imran Musa, Khairul Azmi Ibrahim, Zariah Abdul Aziz, Iliatha Papachristou Nadal
Summary: Caregivers play a crucial role in supporting stroke survivors, facing significant physical, mental, and social impacts. Providing systematic and psychological support, as well as access to comprehensive stroke care, is essential for caregivers. Motivation from the stroke survivor and societal support are key drivers for caregivers.
FRONTIERS IN NEUROLOGY
(2022)
Article
Public, Environmental & Occupational Health
Hamid Sharif Nia, Erika Sivarajan Froelicher, Lida Hosseini, Mansoureh Ashghali Farahani, Sima Hejazi
Summary: This study aimed to develop and validate the Care Challenge Scale (CCS) for family caregivers of people with Alzheimer's disease (AD) in Iran. The results showed that the main care challenges faced by Iranian family caregivers of people with AD are effective role-play challenges and lack of social-financial support. The scale has good validity, internal consistency, and stability, and can be used by therapists, nurses, and researchers to assess the challenges of this population.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Oncology
Martina Sinta Kristanti, Myrra Vernooij-Dassen, Adi Utarini, Christantie Effendy, Yvonne Engels
Summary: The study translated the Caregiver Reaction Assessment (CRA) into Indonesian, and after validation, found that the CRA-ID is feasible, valid, and reliable for measuring the burden of family caregivers of patients with cancer in Indonesia.
Article
Geriatrics & Gerontology
Vittavat Termglinchan, Samira Daswani, Paricha Duangtaweesub, Taweevat Assavapokee, Arnold Milstein, Kevin Schulman
Summary: This study examines the challenges faced by family caregivers in Asian societies, particularly in Thailand. It identifies six caregiver personas and proposes multiple solutions to address their specific needs, with the aim of supporting family caregivers in coping with caregiving burden.
Article
Gerontology
Scott R. Beach, Richard Schulz, Heidi Donovan, Ann-Marie Rosland
Summary: The COVID-19 pandemic has exacerbated challenges faced by family caregivers, resulting in increased physical, psychosocial, and financial burdens. Research findings suggest that female, younger, lower income caregivers providing care for cognitive/behavioral/emotional issues are particularly at risk for adverse outcomes.
Article
Geriatrics & Gerontology
Srijana Shrestha, Sheila Richey, Martha Lipovac-Dew, Mark E. Kunik, Melinda A. Stanley, David Ramsey, Amber B. Amspoker
Summary: This study examined the associations among caregiver experiences, including positive aspects of caring, caregiver burden, and mutuality, in dyads involving persons with dementia and their informal caregivers. The results showed that need characteristics were most frequently associated with the caregiving experience. Bivariate correlations between positive aspects of caring, caregiver burden, and mutuality were moderate to strong. Assessment of both positive and negative aspects of caregiving, as well as attention to depression and interventions targeting depressive symptoms, may be important in reducing caregiver burden and enhancing positive aspects of caregiving.
CLINICAL GERONTOLOGIST
(2022)
Article
Geriatrics & Gerontology
Yangyujin Liu, Haoxue Li, Bei Wu, Xiaoting Liu, Honglin Chen, Hai-Yu Jin, Chenkai Wu
Summary: The type of primary caregiver for disabled older adults in China may affect their mortality, especially based on marital status and gender. Furthermore, urban and rural older adults may experience different impacts based on the type of primary caregiver.
Article
Geriatrics & Gerontology
Julia G. Burgdorf, Halima Amjad
Summary: This study explores the impact of a recognized formal diagnosis of Alzheimer's disease and related dementias (ADRD) on family caregivers. The results show that caregivers assisting individuals with a formal diagnosis are more likely to experience emotional difficulty and family disagreement, but they are also more likely to assist with communication during doctor's visits and receive caregiving-related training.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2023)
Article
Public, Environmental & Occupational Health
Marta Nemcikova, Zuzana Katreniakova, Iveta Nagyova
Summary: This study aimed to investigate the associations of caregiver burden in informal caregivers of persons living with dementia (PLwD) with perceived social support, positive caregiving experience, and applying therapeutic communication methods. The results showed that higher perceived social support, positive caregiving experience, and caregiving intensity were significantly associated with lower caregiver burden. The associations between caregiver burden and applying two therapeutic communication methods were not significant.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Environmental Sciences
Val Morrison, Mikolaj Zarzycki, Noa Vilchinsky, Robbert Sanderman, Giovanni Lamura, Oliver Fisher, Giulia Ferraris, Saif Elayan, Erik Buskens, Eva Bei, Anne Looijmans, Viola Angelini, Mariet Hagedoorn
Summary: Informal caregivers are unpaid individuals who provide care to relatives or friends with chronic illnesses or disabilities. Understanding the motivations and willingness of informal caregivers is crucial in studying the experiences of both caregivers and care recipients. The ENTWINE iCohort study aims to investigate various factors that may influence motivations and willingness to provide or receive care among diverse groups of informal caregivers and care recipients in different countries.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
Article
Psychology, Multidisciplinary
Yilin Ren, Kequn Chu, Fengshu Zhu
Summary: The aim of this study was to translate and validate the Athletes' Received Support Questionnaire (ARSQ) among Chinese athletes. The Chinese version of the ARSQ showed good reliability and validity, with four dimensions including emotional support, esteem support, information support, and tangible support. These findings suggest that the ARSQ is applicable for use among Chinese athletes in the Jiangsu and Shandong Provinces.
FRONTIERS IN PSYCHOLOGY
(2023)
Article
Gerontology
Patrick Pui Kin Kor, Justina Y. W. Liu, Wai Tong Chien
Summary: This study investigated the effects of a modified MBCT on family caregivers of people with dementia. The results showed that the intervention group had significant improvements in caregiving stress, depression, anxiety, and BPSD-related distress, with caregivers' level of mindfulness significantly correlating with the improvement of various psychological outcomes.
Article
Economics
Maddalena De Maria, Paolo Iovino, Silvia Lorini, Davide Ausili, Maria Matarese, Ercole Vellone
Summary: The study developed a scale for caregiver self-efficacy in multiple chronic conditions and conducted a multicenter study, finding that the scale is valid, reliable, precise, and significantly correlated with the Caregiver Contributions to Self-Care of Chronic Illness Inventory scores.
Article
Psychology, Clinical
Krystyna Jaracz, Barbara Grabowska-Fudala, Pawel Kleka, Maciej Tomczak, Anna Smelkowska, Aleksandra Pawlicka, Krystyna Gorna
Summary: The study aimed to translate and evaluate the psychometric properties of the Polish Caregiver Burden Scale in caregivers of stroke patients. The results showed acceptable internal consistency and good convergent validity, with limited support for factorial validity and structural integrity.
PSYCHOLOGY RESEARCH AND BEHAVIOR MANAGEMENT
(2022)
Article
Health Care Sciences & Services
Aida Lopez-Brull, Borja Perez-Dominguez, Sergio Hernandez-Sanchez, Alvaro Manuel Rodriguez-Rodriguez, Irmina Nahon, Maria Blanco-Diaz
Summary: This study translated and adapted the Vaginal Penetration Cognition Questionnaire into Spanish to assess beliefs and feelings about vaginal penetration in women suffering from Genito-Pelvic Pain/Penetration Disorder. The results showed that the Spanish version of the questionnaire is a valid, reliable, and consistent tool for assessing vaginal penetration cognition in these women.
Article
Oncology
Mirkka Soderman, E. Friberg, K. Alexanderson, A. Wennman-Larsen
SUPPORTIVE CARE IN CANCER
(2019)
Article
Public, Environmental & Occupational Health
M. Soderman, A. Wennman-Larsen, K. Alexanderson, E. Friberg
Article
Ethics
Lena Axelsson, Eva Benzein, Jenny Lindberg, Carina Persson
Article
Urology & Nephrology
Ulrika Ronningas, Per Fransson, Maja Holm, Agneta Wennman-Larsen
Article
Cardiac & Cardiovascular Systems
Johan Israelsson, Carina Persson, Anders Bremer, Anna Stromberg, Kristofer Arestedt
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING
(2020)
Article
Health Care Sciences & Services
Lena Axelsson, Eva Benzein, Jenny Lindberg, Carina Persson
BMC PALLIATIVE CARE
(2019)
Article
Pediatrics
Asa Israelsson-Skogsberg, Carina Persson, Agneta Markstrom, Lena Heden
Article
Oncology
Ulrika Ronningas, Maja Holm, Sandra Doveson, Per Fransson, Lars Beckman, Agneta Wennman-Larsen
Summary: The study reveals the uncertainty experienced by mCRPC patients in interpreting symptoms and signs. Men strive to make sense of signs and symptoms based on previous experiences and disease progression. Understanding male perspectives on signs and symptoms in this late phase may help healthcare professionals communicate effectively about disease progression while considering treatment outcomes and quality of life.
EUROPEAN JOURNAL OF CANCER CARE
(2022)
Article
Urology & Nephrology
Jeanette M. Wallin, Stefan H. Jacobson, Lena Axelsson, Jenny Lindberg, Carina I. Persson, Jenny Stenberg, Agneta Wennman-Larsen
Summary: This study investigated the responses of nurses and physicians to the surprise question (SQ) for hemodialysis patients, and explored the association between these responses and patient clinical characteristics. The findings revealed that nurses and physicians had different perspectives in their appraisal when responding to the SQ, and there were also differences in the patient clinical characteristics associated with their responses. This highlights the need for communication and discussion between nurses and physicians to adapt hemodialysis care to patient preferences and needs.
HEMODIALYSIS INTERNATIONAL
(2023)
Article
Nursing
Magdalena Nielsen, Carina Persson, Carina Werkander Harstade, Anna Sandgren
Summary: The aim of this study was to further develop and validate an observational instrument, the Mealtime instrument, for assessing mealtime environments in nursing homes. The instrument is based on the theoretical framework Five Aspects Meal Model (FAMM). The study found that the developed instrument, named Five Aspects Mealtime Environment Observation Instrument (FAME-OI), displayed high validity and had a structure consistent with FAMM. The conclusion is that FAME-OI is applicable for clinical use in nursing homes and research.
SCANDINAVIAN JOURNAL OF CARING SCIENCES
(2023)
Article
Health Care Sciences & Services
Mona Ahlberg, Carina Persson, Carina Bertero, Susanna Agren
Summary: This study compared two different types of follow-up interventions for families of critically ill patients and found that family health conversations were more effective in improving family function and hope. Family members expressed more hope for the future in family health conversations and found that talking within the family helped them understand and cope with challenges.
FAMILIES SYSTEMS & HEALTH
(2021)
Article
Nursing
Marie Aberg Petersson, Carina Persson, Pamela Massoudi, Eva Benzein, Ingrid Wahlin
Summary: Studies have shown that nurse-led family health conversations can benefit families with a child in need of neonatal intensive care by providing validation and strength to parents, supporting their well-being and helping them process experiences to prepare for the future. The importance of early family conversations to help parents cope with challenges and improve their well-being is highlighted in the results.
SCANDINAVIAN JOURNAL OF CARING SCIENCES
(2021)
Article
Nursing
Sofie Jakobsson, Kristina Alexanderson, Agneta Wennman-Larsen, Charles Taft, Karin C. Ringsberg
Summary: The study aimed to describe the trajectory of self-rated health of breast cancer patients within 2 years following surgery. Results showed that most women rated their health as good throughout the study period. While the health-line ratings were slightly lower than the actual time-point ratings, the trajectories depicted by the health-line reflected the patterns of health changes reported by the women during the two years.
SCANDINAVIAN JOURNAL OF CARING SCIENCES
(2021)
Article
Public, Environmental & Occupational Health
Carina Persson, Eva Benzein, Sofia Morberg Jaemterud
QUALITATIVE HEALTH RESEARCH
(2020)
Meeting Abstract
Oncology
Linda Victora Eriksson, Agneta Wennman-Larsen, Karin Bergkvist, Per Ljungman, Jeanette Winterling
