Journal
EPILEPSY & BEHAVIOR
Volume 25, Issue 2, Pages 150-155Publisher
ACADEMIC PRESS INC ELSEVIER SCIENCE
DOI: 10.1016/j.yebeh.2012.07.020
Keywords
Epilepsy self-management; Patient versus clinician perspectives; Needs assessment; Program development; Attrition; Life problems; Depression
Categories
Funding
- Centers for Disease Control and Prevention [SIP 01-08, 1 U 48 DP000572-01]
Ask authors/readers for more resources
A consistent and serious empirical issue in the epilepsy self-management literature involves dropout and attrition in intervention studies. One explanation for this issue revolves around top-down intervention designs (i.e., interventions generated by epilepsy clinicians and researchers) and the potential for disparity with patient interests, capabilities, and perceived needs. The purpose of this study was to extend the work of Fraser et al. (2011) [19] by comparing perceptions regarding self-management problems, topics, and program design, between two subgroups of adult patients with epilepsy (n = 165) and epilepsy clinicians (n - 20). Results indicate differences in problem severity ratings, program emphasis ( i. e., goal-setting, coping, education), and program leadership between clinicians and each patient subgroup to varying degrees. These findings highlight some of the differences in opinion between patients and clinicians and emphasize the need for patient-involved planning with regard to self-management programs. Implications and explanations are offered as points for consideration in self-management program development. (c) 2012 Elsevier Inc. All rights reserved.
Authors
I am an author on this paper
Click your name to claim this paper and add it to your profile.
Reviews
Recommended
No Data Available