Review
Pediatrics
W. Michael Vanderlind, Lauren A. Demers, Georgina Engelson, Rollen C. Fowler, Melissa McCart
Summary: Youth with a history of acquired brain injury are at risk for long-term cognitive, emotional, behavioral, social, and physical problems, which can negatively affect academic functioning. This review paper discusses the neuropsychological, psychiatric, and academic outcomes of pediatric acquired brain injury, as well as special education law and proposed solutions.
Article
Rehabilitation
Benjamin J. Lond, Iain R. Williamson
Summary: This paper analyzes the experiences of individuals caring for a long-term partner with brain injury to identify coping mechanisms and support systems that enhance well-being. The findings suggest the importance of helping family members confront the permanence of brain injury and addressing complex and unresolved grief.
DISABILITY AND REHABILITATION
(2022)
Article
Neurosciences
Jaycie K. Bohan, Mandy Nielsen, Kerrin Watter, Areti Kennedy
Summary: Transitional rehabilitation service models for people with acquired brain injury (ABI) are important for individuals returning home after hospitalization. This qualitative study explored the perspectives of people with ABI and close others who received transitional rehabilitation. Findings suggest that home-based, structured rehabilitation with support and therapy within a familiar environment is valued by participants.
NEUROPSYCHOLOGICAL REHABILITATION
(2023)
Article
Public, Environmental & Occupational Health
David N. Borg, Joshua J. Bon, Michele M. Foster, Ali Lakhani, Melissa Kendall, Timothy Geraghty
Summary: This study investigated the accessibility of healthcare services in South-East Queensland and explored the relationship between service proximity and perceived obstacles. The findings revealed areas with low accessibility and a high disability population, particularly in the north and west of the region. Longer travel times to allied health services were associated with increased perceived obstacles in resource availability.
SSM-POPULATION HEALTH
(2022)
Review
Biochemistry & Molecular Biology
Liam Goldman, Ehraz Mehmood Siddiqui, Andleeb Khan, Sadaf Jahan, Muneeb U. Rehman, Sidharth Mehan, Rajat Sharma, Stepan Budkin, Shashi Nandar Kumar, Ankita Sahu, Manish Kumar, Kumar Vaibhav
Summary: Acquired Brain Injury (ABI) refers to any type of brain injury that occurs after birth and is not caused by congenital disorders, degenerative diseases, or brain trauma at birth. Despite the protection provided by layers of tissue and bone, the brain remains vulnerable to harm and impairment. ABI can lead to changes in the normal activity and structure of neuronal tissue in one or multiple areas of the brain, thereby affecting normal brain functions. The duration of impairment varies depending on the severity of the injury, and patients may face difficulties reintegrating into the community due to potential psychological and physiological outcomes.
Article
Nursing
Panagiota Lafiatoglou, Caroline Ellis-Hill, Mary Gouva, Avraam Ploumis, Stefanos Mantzoukas
Summary: This study aims to explore the experiences of older adults (65+) living with acquired brain injury and undergoing physical rehabilitation within the Greek Healthcare System. The findings suggest that subjective experiences, intersubjective relations, and contextual conditions impact the sense of well-being among older adults, influencing the realization of their new self. The study highlights the importance of identifying factors that affect well-being during rehabilitation to enhance the quality of care provided to older adults.
JOURNAL OF CLINICAL NURSING
(2023)
Article
Rehabilitation
Marissa L. Diener, Anne Kirby, Felicia Sumsion, Heather E. Canary, Michael M. Green
Summary: The study found that children and families have significant community reintegration needs following pediatric brain injury, requiring multi-system interventions to support long-term community reintegration, especially those interventions that increase communication and support transitions.
DISABILITY AND REHABILITATION
(2022)
Article
Neurosciences
Xiaoxiao Lin, Lujia Chen, Amandine Jullienne, Hai Zhang, Arjang Salehi, Mary Hamer, Todd C. Holmes, Andre Obenaus, Xiangmin Xu
Summary: This study longitudinally examined microvascular recovery and remodeling up to 2 months post injury using live brain miniscope and 2-photon microscopic imaging. The research found that new blood vessels began growing near the injury site shortly after the injury and peaked between 14 and 21 days post injury. The study concluded that morphological recovery events are closely linked to functional recovery of blood flow, which subsequently leads to improved behavioral outcomes.
ACTA NEUROPATHOLOGICA COMMUNICATIONS
(2022)
Article
Clinical Neurology
Spring Flores Johnson, Pamela S. Klonoff, Ramaswamy Kavitha Perumparaichallai
Summary: This study examines the long-term outcomes of survivors with pediatric onset versus adult onset Acquired Brain Injury (ABI) who completed holistic milieu-oriented neurorehabilitation up to 30 years ago. It found that survivors, regardless of onset age, could benefit positively and enduringly from holistic neurorehabilitation. The study highlights the importance of early engagement in rehabilitative therapies for ABI survivors.
FRONTIERS IN NEUROLOGY
(2022)
Article
Rehabilitation
A. M. de Sain, L. W. M. Pellikaan, J. van Voskuilen, M. Migdis, M. P. J. Sommers-Spijkerman, J. M. A. Visser-Meily, I. M. C. Huenges Wajer
Summary: This study explores patients' perceptions of sensory hypersensitivity following acquired brain injury (ABI) and its impact on everyday life. The findings suggest that sensory hypersensitivity can significantly affect patients' physical well-being, return to work, and social participation. Future research should focus on cognitive and psychological factors in relation to sensory hypersensitivity.
DISABILITY AND REHABILITATION
(2023)
Article
Behavioral Sciences
Salome Bozkurt, Natasha A. Lannin, Richelle Mychasiuk, Bridgette D. Semple
Summary: Social behavior deficits are common and debilitating after traumatic brain injury and stroke, especially when they occur in childhood. Environmental manipulations, such as environmental enrichment, can potentially ameliorate these deficits, but more research is needed, particularly in chronic settings and considering social context as an important component of post-injury environment. Current evidence for specific interventions in social deficits after acquired brain injuries is limited. A better understanding of how the post-injury environment interacts with the injured brain, especially during development, is necessary to validate rehabilitative interventions that involve manipulating an individuals' environment.
NEUROSCIENCE AND BIOBEHAVIORAL REVIEWS
(2023)
Review
Rehabilitation
Jeneva L. Ohan, Hayley M. Jackson, Robyn Bett, Glenda M. Farmer, Angelita Martini
Summary: This study aims to identify the experiences and needs of dependent children who have a parent with an acquired brain injury (ABI) through a systematic review and thematic synthesis. The findings revealed that these children face emotional toll, changes in responsibilities, use coping strategies, and have a desire for information about the injury. Ongoing support grounded in their specific experiences is necessary for these children.
DISABILITY AND REHABILITATION
(2023)
Review
Rehabilitation
Alexandra E. Rose, Breda Cullen, Sarah Crawford, Jonathan J. Evans
Summary: This systematic review aimed to identify valid mood and depression measures for individuals with severe cognitive and communication impairments following acquired brain injury. The results showed that there is currently insufficient evidence to recommend the use of self-report measures in this population, but a small study provided satisfactory evidence for the validity of two observer-rated scales in individuals with severe cognitive impairments.
CLINICAL REHABILITATION
(2023)
Review
Health Care Sciences & Services
Sophie Brassel, Emma Power, Andrew Campbell, Melissa Brunner, Leanne Togher
Summary: Limited research exists on the use of immersive VR for TBI rehabilitation, and current evidence lacks systematic reviews in this area. Recommendations for therapeutic VR design and implementation are lacking, and future research should focus on a stepwise approach to VR development for ABI rehabilitation.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2021)
Review
Clinical Neurology
Radhika Vaghela, Christopher Santoro, Louise Braham
Summary: This systematic review explores the psychological adjustment needs of individuals following an acquired brain injury (ABI). The results highlight the underemphasis on psychological factors in ABI rehabilitation and the difficulties individuals face in adjusting to their new sense of self. Social support plays a critical role in the adjustment process, which is multifaceted and influenced by various internal and external factors.
APPLIED NEUROPSYCHOLOGY-ADULT
(2023)
Review
Rehabilitation
Tamara Ownsworth, Lina Karlsson
Summary: The psychosocial functioning of siblings is negatively impacted by TBI, particularly in terms of mood symptoms and family functioning. Siblings' psychosocial functioning is comparable to other family members, but they are less likely to be primary caregivers. Poor psychosocial functioning in siblings is consistently associated with having a brother or sister with behavioral problems and experiencing low social support.
DISABILITY AND REHABILITATION
(2022)
Article
Neurosciences
Tamara Ownsworth, Lee Cubis, Tali Prasad, Matthew Foote, Melissa Kendall, Joanne Oram, Suzanne Chambers, Mark B. Pinkham
Summary: This study investigated the feasibility and acceptability of providing psychological support through a videoconferencing platform for patients with glioma. The results showed that remote delivery of psychological support was feasible and acceptable, with most participants demonstrating clinically reliable improvement after the intervention. Further large-scale evaluation of the Tele-MAST program is needed.
NEUROPSYCHOLOGICAL REHABILITATION
(2022)
Article
Neurosciences
Diana Ramirez-Hernandez, Dana Wong, Tamara Ownsworth, Renerus J. Stolwyk
Summary: This study compared the effectiveness of three training methods (trial and error, systematic instruction, and error-based learning) for using a smartphone reminder app in individuals with acquired brain injury. The results showed that trial and error training led to higher proficiency immediately after training compared to systematic instruction and error-based learning. However, no significant differences were found six weeks after training. Confidence in smartphone use increased after trial and error training and error-based learning, but not after systematic instruction. Self-reported memory complaints decreased over time for all groups.
NEUROPSYCHOLOGICAL REHABILITATION
(2023)
Article
Neurosciences
Lee Cubis, Tamara Ownsworth, Mark B. Pinkham, Matthew Foote, Heather Green, Suzanne Chambers
Summary: This study investigates the influence of brain tumour on individuals' ability to manage and rebuild social networks. The findings emphasize the importance of addressing barriers, facilitators, and strategies to enhance individuals' capacity to maintain or rebuild social connections.
NEUROPSYCHOLOGICAL REHABILITATION
(2023)
Article
Geriatrics & Gerontology
Giverny J. Parker, Catherine Haslam, Jaimee Stuart, David H. K. Shum, Tamara Ownsworth
Summary: This study examined health practitioners' ability to recognize the impact of age-based stereotype threat (ABST) on cognitive assessment of older adults and their perceptions of its impact in practice. The findings revealed that health practitioners generally underestimated the negative impact of ABST compared to internal and external factors. Lower recognition of ABST and negative aging beliefs were found to significantly affect the perceived impact of ABST on cognitive test performance of older adults in practice. The results highlight the importance of improving health practitioners' knowledge of ABST to ensure accurate cognitive testing in older adults.
AGING & MENTAL HEALTH
(2023)
Article
Rehabilitation
Holly Emery, Christine Padgett, Tamara Ownsworth, Cynthia A. Honan
Summary: This study investigated the experience of self-concept change in MS patients and found that external events facilitate internally driven revaluations and redefinitions of self-concept. These findings emphasize the importance of better supporting patients in understanding changes to their self-concept during the illness.
DISABILITY AND REHABILITATION
(2023)
Article
Critical Care Medicine
Tania Lovell, Marion Mitchell, Madeleine Powell, Braddon Cummins, Angela Tonge, Emma Metcalf, Tamara Ownsworth, Kylie O'Neill, Lynne Morris, Kristen Ranse
Summary: This study aimed to assess the effectiveness of a multifaceted intervention in improving the well-being of ICU staff. The interventions included social activities, fitness, nutrition, and emotional support. The results showed that although staff reported increased fatigue and difficulty with their work after the intervention, the overall well-being level remained unchanged.
AUSTRALIAN CRITICAL CARE
(2023)
Review
Psychology, Clinical
Kate Thompson, Ada H. Y. Lo, Hannah L. L. McGlashan, Tamara Ownsworth, Catherine Haslam, Alan Pegna, David C. C. Reutens
Summary: This systematic review aimed to critically evaluate the measurement properties of self-report memory questionnaires for adults with epilepsy. A total of 80 articles and one test manual were identified, containing 153 studies on the measurement properties of 23 self-report memory questionnaires. Overall, no scale could be recommended for evaluating subjective memory symptoms in adults with epilepsy due to the lack of dedicated content validation studies and shortcomings in the methodology and scientific reporting of available studies on structural validity. Recommendations for supporting the advancement and psychometric validation of self-report memory questionnaires for people with epilepsy are provided.
NEUROPSYCHOLOGY REVIEW
(2023)
Article
Rehabilitation
Georgia Harris, Stephanie Jones, Mark B. Pinkham, Katarzyna M. Lion, Tamara Ownsworth
Summary: This study aimed to examine the reliability and validity of the Montgomery-Asberg Depression Rating Scale (MADRS) semi-structured interview for assessing depression in adults with a primary brain tumour. Fifty adults with a primary brain tumour were recruited and administered various assessments. The results showed excellent interrater reliability and strong construct validity in the MADRS.
DISABILITY AND REHABILITATION
(2023)
Article
Rehabilitation
Tamara Ownsworth, Helen Mols, Jessica O'Loghlen, Yanfei Xie, Melissa Kendall, Mandy Nielsen, Jessie Mitchell, Rachel Jones, Timothy Geraghty
Summary: This study compared stigma levels in individuals with acquired brain injury (ABI) and spinal cord injury (SCI) during the first 12-months post-discharge and investigated the relationships between stigma, psychological distress, and community integration. The findings showed no significant difference in stigma levels between individuals with ABI and SCI. However, stigma significantly decreased from discharge to 12-months post-discharge for the total sample. Stigma was associated with psychological distress at discharge and 3-months post-discharge, but not at 12-months post-discharge.
DISABILITY AND REHABILITATION
(2023)
Article
Neurosciences
Chelsea Nicol, Mark B. Pinkham, Katarzyna Lion, Matthew Foote, Angela McBean, Mary Higgins, Elizabeth Conlon, Tamara Ownsworth
Summary: This study examines the treatment outcomes and patient reported outcomes of Gamma Knife Stereotactic Radiosurgery (GKSRS) for benign brain tumour, highlighting the individualistic nature of coping and adjustment in the context of GKSRS.
NEUROPSYCHOLOGICAL REHABILITATION
(2023)
Article
Oncology
Katarzyna M. Lion, Kerryn E. Pike, Haryana M. Dhillon, Eng-Siew Koh, Mark B. Pinkham, Joanne Shaw, Georgia K. B. Halkett, Tamara Ownsworth, BRAINS Program Invest
Summary: This qualitative study aimed to understand the specific psychosocial support pathways for people with brain tumors and their families from the perspectives of Australian healthcare professionals. The study found that there are challenges in fitting people into the existing care system, benefits of longer-term care coordination and interdisciplinary connections, and the impact of brain tumors on the whole family. Despite established psychosocial care pathways, service access varied and lacked continuity for individuals with lower-grade glioma and benign tumors. As a result, healthcare professionals recognize the need for improved access to care coordination and multidisciplinary psychosocial care tailored to the varying needs of people with brain tumors and their families.
Article
Oncology
Tamara Ownsworth, Suzanne Chambers, Stephanie Jones, Giverny Parker, Joanne F. Aitken, Matthew Foote, Louisa G. Gordon, David H. K. Shum, Julia Robertson, Elizabeth Conlon, Mark B. Pinkham
Summary: This pragmatic randomized control trial evaluated the clinical efficacy of the Tele-MAST program for individuals with primary brain tumor. The results showed that Tele-MAST was more effective in reducing depressive symptoms and improving quality of life for patients, but had no significant impact on caregivers.
Article
Clinical Neurology
Holly Emery, Ingrid van der Mei, Christine Padgett, Tamara Ownsworth, Therese Burke, Lauren Giles, Cynthia A. Honan
Summary: This study developed a new Multiple Sclerosis Self-Concept Change Scale (MSSCCS) and demonstrated its validity and internal consistency through exploratory and confirmatory factor analysis. The scale provides a tool to enhance understanding of self-concept change in pwMS.
MULTIPLE SCLEROSIS AND RELATED DISORDERS
(2023)
Article
Clinical Neurology
Jennifer Fleming, Tamara Ownsworth, Emmah Doig, Christy Hogan, Caitlin Hamilton, Sarah Swan, Janelle Griffin, Melissa Kendall, David Shum
Summary: This study evaluated the effectiveness of combining metacognitive skills training (MST) with compensatory strategy training (COMP) for reducing everyday prospective memory (PM) failure in adults with moderate-severe traumatic brain injury (TBI). The results showed no significant benefits of combining MST with COMP.
NEUROREHABILITATION AND NEURAL REPAIR
(2022)
