Journal
DEMENTIA AND GERIATRIC COGNITIVE DISORDERS
Volume 26, Issue 5, Pages 398-406Publisher
KARGER
DOI: 10.1159/000164276
Keywords
Frontotemporal dementia; Caregiver burden, follow-up; Relationship quality
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Funding
- Dutch Research Council [NWO: 940-38-005]
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Background/Aims: The current study examined the change of caregiver burden and the development of the quality of the partner relation in frontotemporal dementia (FTD). Methods: During a 2-year period, deterioration, behavioural problems, caregiver burden, general psychopathology, quality of life, social support, coping strategies and relationship quality were inspected in 63 FTD caregiver-care recipient dyads. Results: After 2 years patients reached maximum dementia severity with stable Neuropsychiatric Inventory levels. Contrary to expectations, caregiver burden decreased and psychological well-being remained stable. Coping style and social support changed unfavourably. Relationship closeness and getting along were preserved, whereas communication and sharing viewpoint on life were dramatically reduced. Conclusions: FTD caregivers need support in coping with the increasingly hopeless situation of their patients. Future research methods into caregiver burden should address response shift as a means for psychological adjustment. Copyright (C) 2008 S. Karger AG, Basel
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