Development of the HD-Teen Inventory

Family carer personal concerns in Huntington disease

(2011) Janet K. Williams et al.   JOURNAL OF ADVANCED NURSING

Huntington's disease: a clinical review

(2011) Raymund A.C. Roos   Orphanet Journal of Rare Diseases

Huntington disease: families’ experiences of healthcare services

(2010) Heather Skirton et al.   JOURNAL OF ADVANCED NURSING

The Clinical and Genetic Features of Huntington Disease

(2010) Aaron Sturrock et al.   JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY

The emotional experiences of family carers in Huntington disease

(2009) Janet K. Williams et al.   JOURNAL OF ADVANCED NURSING

Caregiving by Teens for Family Members With Huntington Disease

(2009) Janet K. Williams et al.   Journal of Family Nursing

How young people find out about their family history of Huntington's disease

(2009) Karen Forrest Keenan et al.   SOCIAL SCIENCE & MEDICINE

Predictive genetic testing of adolescents for Huntington disease: A question of autonomy and harm

(2008) Fiona H. Richards   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

“You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)

(2008) Rony E. Duncan et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS

Experiences of Teens Living in the Shadow of Huntington Disease

(2008) Kathleen J. H. Sparbel et al.   Journal of Genetic Counseling