Approaching Parents to Take Part in a Cleft Gene Bank: A Qualitative Pilot Study

Knowledge and Cultural Beliefs about the Etiology and Management of Orofacial Clefts in Nigeria's Major Ethnic Groups

(2010) Fadekemi O. Oginni et al.   CLEFT PALATE-CRANIOFACIAL JOURNAL

Initial counselling for cleft lip and palate: Parents’ evaluation, needs and expectations

(2010) J. Kuttenberger et al.   INTERNATIONAL JOURNAL OF ORAL AND MAXILLOFACIAL SURGERY

Ethical issues relating to the banking of umbilical cord blood in Mexico

(2009) V Moises Serrano-Delgado et al.   BMC Medical Ethics

Great expectations: views of genetic research participants regarding current and future genetic studies

(2009) Gail Henderson et al.   GENETICS IN MEDICINE

Pediatric Biobanks: Approaching Informed Consent for Continuing Research After Children Grow Up

(2009) Aaron J. Goldenberg et al.   JOURNAL OF PEDIATRICS

Cleft lip and palate

(2009) Peter A Mossey et al.   LANCET

Not without my Permission: Parents’ Willingness to Permit Use of Newborn Screening Samples for Research

(2009) B.A. Tarini et al.   Public Health Genomics

Children and Population Biobanks

(2009) D. Gurwitz et al.   SCIENCE

REGULATING BIOBANKS: A TWELVE-POINT TYPOLOGICAL TOOL

(2009) S. M. C. Gibbons   Medical Law Review

Ethical implications of including children in a large biobank for genetic-epidemiologic research: A qualitative study of public opinion

(2008) David Kaufman et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS

A Qualitative Description of Receiving a Diagnosis of Clefting in the Prenatal or Postnatal Period

(2008) Rachel Nusbaum et al.   Journal of Genetic Counseling

Genetic research on rare familial disorders: consent and the blurred boundaries between clinical service and research

(2008) M Ponder et al.   JOURNAL OF MEDICAL ETHICS

Beyond informed consent: the therapeutic misconception and trust

(2008) I de Melo-Martin et al.   JOURNAL OF MEDICAL ETHICS

General intellectual capacity of young men with cleft lip with or without cleft palate and cleft palate alone

(2008) Martin Persson et al.   SCANDINAVIAN JOURNAL OF PLASTIC AND RECONSTRUCTIVE SURGERY AND HAND SURGERY