Article
Psychology, Multidisciplinary
Deborah Friedman, Maysa M. Kaskas, Alexandra L. Quittner, Beth A. Smith, Anna M. Georgiopoulos
Summary: Individuals with cystic fibrosis (CF) are at high risk for depression and anxiety. This study developed a CBT-based intervention tailored to CF-specific needs, with positive feedback from patients.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Respiratory System
Stephanie Thee, Mirjam Stahl, Rainald Fischer, Sivagurunathan Sutharsan, Manfred Ballmann, Axel Muller, Daniel Lorenz, Dominika Urbanski-Rini, Franziska Puschner, Volker Eric Amelung, Carola Fuchs, Marcus Alexander Mall
Summary: This study aims to evaluate the impact of adherence interventions using telemedicine devices on adherence and lung health in CF patients, potentially leading to the implementation of telemedicine in routine care.
BMC PULMONARY MEDICINE
(2021)
Article
Multidisciplinary Sciences
Babafemi Taiwo, Lisa M. Kuhns, Olayinka Omigbodun, Olutosin Awolude, Kehinde Kuti, Adedotun Adetunji, Baiba Berzins, Patrick N. Janulis, Sulaimon Akanmu, Oche Agbaji, Agatha K. David, Akinsegun Akinbami, Abiodun Folashade D. Adekambi, Amy Johnson, Ogochukwu M. Okonkwor, Bibilola Oladeji, Marbella Cervantes, Olubusuyi Adewumi, Bill Kapogiannis, Robert Garofalo
Summary: This study aims to evaluate the efficacy of an intervention to promote viral suppression among youth in Nigeria, using a combination of peer navigation and SMS text message medication reminders. Youth receiving HIV treatment at six clinical sites were recruited, and the study will provide important information for further scale-up of the intervention.
Review
Pharmacology & Pharmacy
Yizi Wang, Bin Ma, Wenya Li, Peiwen Li
Summary: Triple combination therapy for cystic fibrosis patients achieves better clinical results and comparable adverse events compared to the control group.
FRONTIERS IN PHARMACOLOGY
(2022)
Article
Multidisciplinary Sciences
Letizia Corinna Morlacchi, Emilia Privitera, Valeria Rossetti, Martina Santambrogio, Angela Bellofiore, Lorenzo Rosso, Alessandro Palleschi, Mario Nosotti, Francesco Blasi
Summary: This study evaluated the role of telemonitoring in the early diagnosis of acute lung allograft dysfunction in cystic fibrosis adults who underwent lung transplant, and assessed the quality of life and functional level achieved. The results showed that the telemonitoring group had consistent data between hospital reports and remote registration, but adherence to telemonitoring decreased during the follow-up. Overall, telemonitoring is a valuable tool to improve quality care for lung transplant recipients.
Article
Medicine, General & Internal
Edwina Landau, Huda Mussaffi, Vardit Kalamaro, Alexandra Quittner, Tammy Taizi, Diana Kadosh, Hadas Mantin, Dario Prais, Hannah Blau, Meir Mei-Zahav
Summary: A focused clinical intervention aimed at problem-solving key barriers to adherence increased medication possession ratios and BMI in cystic fibrosis patients. However, no significant improvements were observed in FEV, airway clearance, or HRQoL. The intervention was effective in addressing specific barriers related to the needs and goals of young adults with CF.
ISRAEL MEDICAL ASSOCIATION JOURNAL
(2021)
Article
Pediatrics
Fabien Beaufils, Raphael Enaud, Francois Gallode, Gregory Boucher, Julie Macey, Patrick Berger, Michael Fayon, Stephanie Bui
Summary: This study compared the real-life adherence, reliability, and variability of home spirometry in children, teenagers, and adults with CF. The results showed that home spirometry was widely used in CF patients, particularly in children and teenagers. Compared to conventional lung function testing, home spirometry demonstrated good reliability and low variability.
FRONTIERS IN PEDIATRICS
(2023)
Article
Substance Abuse
Yinan Ji, Daniel Fu Keung Wong
Summary: The aim of this study was to test the efficacy of an integrated cognitive-behavioral therapy with a strength-based motivational approach intervention for gaming disorder symptoms. A randomized controlled trial was conducted with Chinese adolescents, and the results showed significant improvements in gaming disorder symptoms and other outcomes in the intervention group compared to the control group. The intervention was effective in reducing gaming disorder symptoms by decreasing maladaptive gaming motivation and cognition.
Review
Pediatrics
Andrea M. Coverstone, Thomas W. Ferkol
Summary: Cystic fibrosis is a common genetic disease affecting Caucasians which can shorten life expectancy. Early diagnosis and intervention have improved clinical outcomes, while newer medications are revolutionizing treatment approaches.
FRONTIERS IN PEDIATRICS
(2021)
Article
Nursing
Maria da Conceicao Reisinho, Barbara Gomes
Summary: This study aims to enhance targeted healthcare for adolescents with cystic fibrosis and their parents by understanding their experiences of living with the condition. The findings highlight the important role of nurses in identifying and supporting transitions throughout the disease management process.
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES
(2022)
Article
Respiratory System
Ernst Eber, Maria Trawinska-Bartnicka, Dorota Sands, Gabriel Bellon, Uwe Mellies, Katalin Bolbas, Serena Quattrucci, Henryk Mazurek, Rudolf Widmann, Christian Schoergenhofer, Bernd Jilma, Felix Ratjen
Summary: In a trial involving CF patients, inhaled lancovutide did not show significant improvement in FEV1 percent predicted compared to placebo, although it was overall safe with a higher rate of respiratory-related adverse events.
JOURNAL OF CYSTIC FIBROSIS
(2021)
Article
Pediatrics
Roxanne Dupuis, Rachel Feuerstein-Simon, Terri F. F. Brown-Whitehorn, Jonathan M. M. Spergel, Kevin G. G. Volpp, Xochitl Luna Marti, Andrea B. B. Troxel, Zachary F. F. Meisel, Cynthia J. J. Mollen, Erica L. L. Kenney, Jason Block, Steven L. L. Gortmaker, Carolyn C. C. Cannuscio
Summary: This study examined the use of behavioral economics approaches to promote the carrying of epinephrine auto-injectors (EAIs) among adolescents with food allergies. Results showed that frequent text message nudges or frequent text message nudges plus modest financial incentives increased the likelihood of carrying EAIs compared to usual care. However, even with the intervention, adolescents with food allergies carried their EAI less than 50% of the time.
Editorial Material
Endocrinology & Metabolism
Philip M. Farrell
Summary: This commentary summarizes the author's findings from 46 years of research on newborn screening for cystic fibrosis (CF), along with healthcare and public health practice. The goal of consistently timely and equitable diagnoses in the neonatal period has not been achieved in the USA. The causes for this include challenges in leadership and deficiencies in CF centers and NBS labs, lack of effective partnerships, misunderstandings about CF, and limitations in data and protocols.
MOLECULAR GENETICS AND METABOLISM
(2023)
Article
Medicine, General & Internal
Katajun Lindenberg, Sophie Kindt, Carolin Szasz-Janocha
Summary: This study conducted a multicenter cluster randomized clinical trial among at-risk adolescents aged 12 to 18 years in 33 high schools in Germany to investigate the impact of the PROTECT intervention on symptoms severity of gaming disorder and unspecified internet use disorder. Results showed that the PROTECT intervention effectively reduced symptoms severity over 12 months, but did not change the incidence rates.
Article
Public, Environmental & Occupational Health
Sweety Suman Jha, Madhumita Dobe, Chandrashekhar Taklikar, Arista Lahiri
Summary: This study aimed to assess the change in behavioral intentions towards healthy dietary practices among adolescents through health promotion intervention. The results showed that the intervention group had significantly higher scores and proportions of intention for a healthy diet, indicating that the intervention effectively changed adolescents' dietary intentions.
FRONTIERS IN PUBLIC HEALTH
(2023)
