Article
Oncology
Svetlana V. Doubova, Ricardo Perez-Cuevas
Summary: In Mexico, women with cervical and breast cancer face unmet supportive care needs, probable depression, and substandard patient-centered cancer care quality, pointing to priority areas for improvements in cancer care.
Article
Economics
Jackie Yim, Sheena Arora, Joanne Shaw, Deborah J. Street, Alison Pearce, Rosalie Viney
Summary: The study found that cancer patients prefer screening conducted by cancer nurses in a face-to-face format at regular intervals and follow-up care delivered by mental health professionals embedded within the cancer care team. Factors influencing preferences include low cost and short waiting times for access to care.
Article
Oncology
Svetlana Doubova, Ingrid Patricia Martinez-Vega, Claudia Infante-Castaneda, Carlos E. Aranda-Flores, Felicia M. Knaul, Ricardo Perez-Cuevas
Summary: Uninsured cancer patients with low educational attainment have higher supportive care needs and receive lower quality of patient-centered care compared to their counterparts. Health services should address these challenges to reduce inequalities in Mexico.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Oncology
Tina J. Hieken, William R. Burns, Amanda B. Francescatti, Arden M. Morris, Sandra L. Wong
Summary: The Operative Standards for Cancer Surgery manuals provide guidelines for optimal cancer surgery. The American College of Surgeons Cancer Programs has developed comprehensive synoptic operative reports to elevate and harmonize cancer care. These reports improve data collection efficiency and semantic clarity, contributing to the quality enhancement of cancer care.
ANNALS OF SURGICAL ONCOLOGY
(2022)
Review
Clinical Neurology
Cosette Cornelis, Sanne J. den Hartog, Carla M. Bastemeijer, Bob Roozenbeek, Paul J. Nederkoorn, Renske M. Van den Berg-vos
Summary: This study aimed to evaluate patient-reported experience measures (PREMs) in healthcare, focusing on the psychometric properties of tools validated for stroke patients. Findings indicated the existence of specific PREMs and generic PREMs for stroke care, with only one showing favorable psychometric performance, suggesting the need for further development in this area.
Article
Oncology
Kerri-Anne R. Mitchell, Joseph R. Boyle, Lenka Juricekova, Richard F. Brown
Summary: This study examined patient-level factors, patient-centered communication, and non-adherence to adjuvant chemotherapy guidelines among breast and colon cancer patients, to inform adherence promotion and improve clinical outcomes.
Article
Oncology
Barbara Schellenberger, Christian Heuser, Annika Diekmann, Lena Ansmann, Emily Krueger, Leonie Schreiber, Franziska Geiser, Andre Karger, Ingo G. H. Schmidt-Wolf, Katrin Milz, Uwe Peisker, Nicole Ernstmann
Summary: This study investigated the communication in multidisciplinary tumor conferences with patient participation. The results showed that patient-centered communication rarely occurs in these conferences.
Article
Geriatrics & Gerontology
Anik Giguere, Jayna M. Holroyd-Leduc, Sharon E. Straus, Robin Urquhart, Veronique Turcotte, Pierre J. Durand, Alexis Turgeon
Summary: This study assessed the importance of quality indicators (QIs) for monitoring outcomes in older adults with frailty and found that key stakeholders prioritize QIs that focus on outcomes targeted to patients and caregivers. The current healthcare systems generally focus on processes of care, highlighting the need for patient-centred care.
Article
Public, Environmental & Occupational Health
Min Su, Zhongliang Zhou, Yafei Si, Xiaojing Fan
Summary: This study aims to investigate the association between patient-centered communication (PCC) and primary care quality. The results showed poor communication between primary care providers and patients, and the PCC model has not been achieved. However, interactions with a higher score of PCC were more likely to have a correct diagnosis and treatment, longer consultation time, more unnecessary drugs, and higher medical expenditure.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Oncology
Eran Ben-Arye, Dana Elly, Noah Samuels, Orit Gressel, Katerina Shulman, Elad Schiff, Ofer Lavie, Amir Minerbi
Summary: The study found that high adherence to integrative care was associated with greater pain relief at 6 weeks, but not at 12 weeks, in patients undergoing chemotherapy and/or palliative care.
JOURNAL OF CANCER RESEARCH AND CLINICAL ONCOLOGY
(2021)
Article
Oncology
Fatima Cardoso, Amelia McCartney, Antonio Ponti, Lorenza Marotti, Conny Vrieling, Alexandru Eniu, Berta Sousa, Carla Ripamonti, Luzia Travado, Sabine Spitz, Eva Jolly, Giuseppe Curigliano, Frederique Penault-Llorca, Frederic Lecouvet, Isabel T. Rubio, Laura Biganzoli
Summary: The European Society of Breast Cancer Specialists and the Advanced Breast Cancer Global Alliance have developed the first set of quality indicators for metastatic breast cancer (MBC) with the aim of ensuring high-quality care and adherence to guidelines in breast cancer centers.
EUROPEAN JOURNAL OF CANCER
(2023)
Review
Oncology
Lucy A. P. Boyd, Amy E. Waller, David Hill, Rob W. Sanson-Fisher
Summary: Research on psychosocial care in brain cancer shows that most publications only assessed a single component of care, providing a narrow view of patient and support person experiences. Future studies need to include assessments of multiple care components to optimize psychosocial outcomes.
SUPPORTIVE CARE IN CANCER
(2021)
Review
Oncology
Marta Maes-Carballo, Yolanda Gomez-Fandino, Ayla Reinoso-Hermida, Carlos Roberto Estrada-Lopez, Manuel Martin-Diaz, Khalid Saeed Khan, Aurora Bueno-Cavanillas
Summary: The study identified 89 QIs from 22 selected documents, covering various aspects of breast cancer care. Most countries have not established national clinical pathways or integrated health care processes for breast cancer care, leading to heterogeneity in QIs for evaluating care quality.
Review
Medicine, General & Internal
Joanna Yang, Tori Barabash, Luckshi Rajendran, Alyson L. Mahar, Amy T. Hsu, Paul D. James, Lesley Gotlib Conn, Frances C. Wright, Claire Ludwig, Ekaterina Kosyachkova, Julie Deleemans, Natalie G. Coburn, Julie Hallet
Summary: This article aims to summarize the existing literature on patient-centred outcomes (PCOs) in gastrointestinal cancer care and analyze the tools used to assess these outcomes. By screening relevant studies and extracting data, a comprehensive list of PCOs will be generated for future development of a core outcome set. This is crucial for aiding patients in making informed and meaningful care decisions.
Article
Radiology, Nuclear Medicine & Medical Imaging
Siya Patil, Joseph H. Yacoub, Xue Geng, Susan M. Ascher, Ross W. Filice
Summary: Radiology reports tend to be written at an advanced level, making them difficult for patients and their families to understand. Following an intervention, improvements in report readability were observed, particularly in impressions at the primary institution.
JOURNAL OF DIGITAL IMAGING
(2021)
Article
Oncology
Esther Deuning-Smit, Evie E. M. Kolsteren, Linda Kwakkenbos, Jose A. E. Custers, Rosella P. M. G. Hermens, Judith B. Prins
Summary: This study aimed to identify barriers and facilitators for implementing the evidence-based blended SWORD intervention in routine psycho-oncological care. The study found barriers and facilitators in six domains, including innovation, professionals, patients, social context, organization, and economic and political context. Implementation strategies should target patient, professional, organizational, and economic and political domains.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Oncology
Michelle van den Berg, Suzanne E. J. Kaal, Teska N. Schuurman, Didi D. M. Braat, Caroline M. P. W. Mandigers, Jolien Tol, Jacqueline M. Tromp, Maurice J. D. L. van der Vorst, Catharina C. M. Beerendonk, Rosella P. M. G. Hermens
Summary: A survey study was conducted to assess the current practice of female oncofertility care in cancer patients. The results showed that the quality of care is far from optimal, with low adherence to several key indicators. Improvement strategies tailored to the identified determinants and guideline-specific barriers are needed.
Article
Oncology
Anna Koot, Paula Soares, Eyal Robenshtok, Laura D. Locati, Christelle de la Fouchardiere, Markus Luster, Massimo Bongiovanni, Rosella Hermens, Petronella Ottevanger, Frans Geenen, Beate Bartes, Harald Rimmele, Cosimo Durante, Els Nieveen-van Dijkum, Peep Stalmeier, Marek Dedecjus, Romana Netea-Maier
Summary: The incidence of differentiated thyroid cancer (DTC) is increasing globally, mainly due to the detection of micro papillary thyroid carcinomas (microPTCs), which often lead to overtreatment without improvement in mortality rate. Less aggressive approaches, such as active surveillance or minimally invasive treatments (MIT), have been suggested as alternatives. Patient participation in decision-making process is crucial. The Endocrine Task Force of the EORTC aims to establish consensus and provide practical suggestions for implementing shared decision making (SDM) based on scientific evidence and patients' needs.
EUROPEAN JOURNAL OF CANCER
(2023)
Article
Obstetrics & Gynecology
Minke Frijstein, Laura Blok, Marianne ten Kate Booij, Yalck Eysbouts, Nienke van Trommel, Fred Sweep, Leon Massuger, Dennis V. Hamont, Henk Schreuder, Marieke Smink, Jan Molkenboer, Peggy Vencken, Nelleke Ottevanger, Christianne Lok, Trophy Study Grp
Summary: This study investigated the effect of a web-based interactive intervention on illness perception and knowledge in women with GTD. The results showed that patients using the online tool were satisfied with the information and had higher knowledge levels compared to the control group, but illness perception did not change.
GYNECOLOGIC AND OBSTETRIC INVESTIGATION
(2023)
Article
Oncology
Genevieve I. C. G. Ector, Inge G. P. Geelen, Avinash G. Dinmohamed, Mels Hoogendoorn, Peter E. Westerweel, Rosella P. M. G. Hermens, Nicole M. A. Blijlevens
Summary: This study shows suboptimal adherence to treatment guidelines among chronic myeloid leukemia patients, particularly in monitoring aspects. It highlights the evidence-practice gap, the need for improvement, and emphasizes the importance of real-world data.
LEUKEMIA & LYMPHOMA
(2023)
Article
Oncology
Esther Deuning-Smit, Jose A. E. Custers, Linda Kwakkenbos, Rosella P. M. G. Hermens, Judith B. Prins
Summary: The Distress Thermometer (DT) and its accompanying problem list have limited capacity in detecting fear of cancer recurrence (FCR), indicating a need for more effective measures to improve patient access to psychosocial care in oncology practice.
Article
Oncology
Eline Bouwman, Saskia M. F. Pluijm, Iridi Stollman, Vera Araujo-Soares, Nicole M. A. Blijlevens, Cecilia Follin, Jeanette Falck Winther, Lars Hjorth, Tomas Kepak, Katerina Kepakova, Leontien C. M. Kremer, Monica Muraca, Helena J. H. van der Pal, Carina Schneider, Anne Uyttebroeck, Gertrui Vercruysse, Roderick Skinner, Morven C. Brown, Rosella P. M. G. Hermens, Jacqueline J. Loonen
Summary: This study identified education and training of healthcare professionals (HCPs) as key opportunities to improve health behavior support (HBS) for childhood cancer survivors (CCSs). Survivorship care clinics should work towards establishing well-integrated structured care with internal and external networks, including HBS being part of routine care. Proper understanding of facilitators and barriers should lead to better survivorship care for CCSs.
Article
Oncology
Cilla E. J. Vrinzen, Haiko J. Bloemendal, Esra Stuart, Amr Makady, Michel van Agthoven, Mariska Koster, Matthias A. W. Merkx, Rosella P. M. G. Hermens, Patrick P. T. Jeurissen
Summary: This study explores the various values involved in oncological treatments and their implications in decision-making. It finds that clinical values are not the only ones that matter, and there is a broader range of values to consider. The study suggests that recognizing the values that count can improve patient-level decision-making and support, but the implications for reimbursement decisions are less clear.
Article
Oncology
Melissa F. Djodikromo, Rosella P. M. G. Hermens, Bart J. F. van den Bemt, Yolba Smit, Tim M. Govers, Charlotte L. Bekker, Nicole M. A. Blijlevens
Summary: This study aims to evaluate the effectiveness of patient-guided dose reduction of tyrosine kinase inhibitors (TKI) in patients with chronic myeloid leukaemia (CML) who have reached a major or deep molecular response. The study includes 147 CML patients who will use an online patient decision aid and receive a shared decision making consultation before choosing to receive a personalised, lower TKI dose. The primary outcome is the proportion of patients with intervention failure at 12 months after dose reduction.
Article
Health Care Sciences & Services
Lynn Verweij, Genevieve I. C. G. Ector, Yolba Smit, Bas van Vlijmen, Bert A. van der Reijden, Rosella P. M. G. Hermens, Nicole M. A. Blijlevens
Summary: CMyLife is an eHealth innovation co-created with and for chronic myeloid leukemia (CML) patients to improve their care, leading to increased quality of life and the opportunity for hospital-free care. It explores the effectiveness of CMyLife in terms of information provision, patient empowerment, medication compliance, molecular monitoring, and quality of life.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Oncology
Loek A. W. de Jong, Marie Lambert, Nielka P. van Erp, Lukas de Vries, Etienne Chatelut, Petronella B. Ottevanger
Summary: The purpose of this study was to determine the systemic exposure to cisplatin and paclitaxel following adjuvant intraperitoneal administration in patients with advanced ovarian cancer. The study found that systemic exposure to cisplatin after intraperitoneal administration is high, providing a pharmacological explanation for the high incidence of adverse events seen with this treatment regimen.
CANCER CHEMOTHERAPY AND PHARMACOLOGY
(2023)
Review
Oncology
Cilla E. J. Vrinzen, Linn Delfgou, Niek Stadhouders, Rosella P. M. G. Hermens, Matthias A. W. Merkx, Haiko J. Bloemendal, Patrick P. T. Jeurissen
Summary: Comorbidities can greatly affect cancer care, including diagnosis, treatment outcomes, and healthcare costs. Therefore, it is crucial to evaluate the prevalence and trends of comorbidities in cancer patients.
Review
Oncology
C. S. E. Hendrikse, P. M. M. Theelen, P. van der Ploeg, H. M. Westgeest, I. A. Boere, A. M. J. Thijs, P. B. Ottevanger, A. van de Stolpe, S. Lambrechts, R. L. M. Bekkers, J. M. J. Piek
Summary: The RAS/RAF/MEK/ERK (MAPK) pathway plays a role in ovarian carcinogenesis, particularly in low-grade serous ovarian carcinoma (LGSOC) with activating MAPK mutations. A meta-analysis was conducted to evaluate the effectiveness of MAPK inhibitors in ovarian carcinoma (OC) patients, showing that MEK inhibitors are the most promising single agents in (LGS)OC. Combination treatment with Raf-and MEK inhibitors in BRAFv600 mutated LGSOC had the greatest efficacy.
GYNECOLOGIC ONCOLOGY
(2023)
Article
Oncology
Eline Bouwman, Saskia M. F. Pluijm, Iridi Stollman, Vera Araujo-Soares, Nicole M. A. Blijlevens, Cecilia F. Follin, Jeanette F. Winther, Lars Hjorth, Tomas Kepak, Katerina Kepakova, Leontien C. M. Kremer, Monica Muraca, Helena J. H. van Der Pal, Carina Schneider, Anne Uyttebroeck, Gertrui Vercruysse, Rod C. Skinner, Morven C. Brown, Rosella P. M. G. J. Hermens, Jacqueline Loonen, PanCareFollowUp Consortium
Summary: This study aimed to assess the barriers and facilitators to health behavior adoption and maintenance in childhood cancer survivors. The study found that knowledge, time constraints, and unhealthy environments were common barriers, while education and available professional support were identified as key opportunities to promote health behavior adoption in childhood cancer survivors.
Article
Oncology
Cecile van de Weerd, Tom Ebbers, Donna E. M. Smilde, Julia J. van Tol-Geerdink, Robert P. Takes, Guido B. van den Broek, Rosella P. M. G. Hermens, Rudolf B. Kool
Summary: A remote monitoring app was developed for head and neck cancer follow-up during the SARS-CoV-2 pandemic. The usability and patients' experiences with the app were studied through a mixed-methods approach. The app was found to be user-friendly and made patients feel more in control, but there were some barriers that need to be resolved before it can be used in regular follow-up.