Validation and reliability of a disease-specific quality of life measure (the TranQol) in adults and children with thalassaemia major

How I treat thalassemia

(2011) E. A. Rachmilewitz et al.   BLOOD

Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 2—Assessing Respondent Understanding

(2011) Donald L. Patrick et al.   VALUE IN HEALTH

Content Validity—Establishing and Reporting the Evidence in Newly Developed Patient-Reported Outcomes (PRO) Instruments for Medical Product Evaluation: ISPOR PRO Good Research Practices Task Force Report: Part 1—Eliciting Concepts for a New PRO Instrument

(2011) Donald L. Patrick et al.   VALUE IN HEALTH

An instrument assessing satisfaction with iron chelation therapy: Psychometric testing from an open-label clinical trial

(2010) Diana Rofail et al.   ADVANCES IN THERAPY

Psychosocial aspects and psychiatric disorders in young adult with thalassemia major

(2008) Giuseppina Messina et al.   Internal and Emergency Medicine

Satisfaction and Adherence in Patients with Iron Overload Receiving Iron Chelation Therapy as Assessed by a Newly Developed Patient Instrument

(2008) Diana Rofail et al.   VALUE IN HEALTH