Article
Nursing
Adam Spacey, Janet Scammell, Michele Board, Sam Porter
Summary: The study found that there is a lack of training and support for care home staff in conducting sensitive discussions about death and dying, highlighting the need for more focused education to support them. Furthermore, greater emotional support is necessary to help build workforce resilience and sustain change.
JOURNAL OF ADVANCED NURSING
(2021)
Review
Geriatrics & Gerontology
Lyle Walton, Katherine Courtright, George Demiris, Emily F. Gorman, Amy Jackson, Joan G. Carpenter
Summary: This review examined the use of telehealth palliative care in nursing homes and provided recommendations for practice and research. The findings showed that telehealth interventions improved outcomes such as symptom management, quality of life, and advance care planning for residents in nursing homes. However, there were challenges related to technology and financial burden.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2023)
Article
Geriatrics & Gerontology
Meghan Hendricksen, Susan L. Mitchell, Ruth Palan Lopez, Kathleen M. Mazor, Ellen P. McCarthy
Summary: This study aims to identify the facility factors associated with nursing homes providing high-intensity care to residents with advanced dementia and determine whether these factors differ within and across hospital referral regions. The study found that in high-intensity regions, high-intensity nursing homes were more likely to be urban, lack a dementia unit, have a nurse practitioner or physician on staff, and have a higher proportion of certain characteristics among residents. In low-intensity regions, a higher proportion of Black residents was the only associated characteristic with high-intensity nursing homes.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2022)
Article
Psychology, Multidisciplinary
Hod Orkibi, Gianmarco Biancalani, Mihaela Dana Bucuta, Raluca Sassu, Michael Alexander Wieser, Luca Franchini, Melania Raccichini, Bracha Azoulay, Krzysztof Mariusz Cieplinski, Alexandra Leitner, Silvia Varani, Ines Testoni
Summary: This study assessed Master's Degree students in psychology and the creative arts therapies across five countries on their confidence and interest in death education and palliative care. Significant differences were found between countries, and students with previous caregiving experience showed greater interest in obtaining practical clinical competence in these fields.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Medicine, General & Internal
Emilio Mota-Romero, Concepcion Petra Campos-Calderon, Daniel Puente-Fernandez, Cesar Hueso-Montoro, Ana A. Esteban-Burgos, Rafael Montoya-Juarez
Summary: This study investigated the perceptions of staff at nursing homes and primary health care centers on the quality standards for palliative care in nursing homes. The results showed that certain standards were considered less relevant and less achieved after the COVID-19 pandemic, and there were differences in perceptions between nursing home and primary health care workers. It is recommended to strengthen professional intercommunication and social support, and actively involve residents in decision-making.
JOURNAL OF CLINICAL MEDICINE
(2022)
Article
Nursing
Hyejin Kim, Jeonghyun Cho, JungSuk Lee
Summary: There is a significant disparity in end-of-life care practices in nursing homes in South Korea, which is associated with bed size and registered-nurse staffing. The importance of reforming nursing home-related regulations and policies is highlighted.
INTERNATIONAL JOURNAL OF NURSING STUDIES
(2022)
Review
Geriatrics & Gerontology
Jung A. Kang, Aluem Tark, Leah V. Estrada, Lara Dhingra, Patricia W. Stone
Summary: Discussions about the goals of health care in nursing homes can have an impact on end-of-life outcomes. This systematic review examined the timing of these discussions and their influence on outcomes, finding that earlier discussions were associated with better outcomes.
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION
(2023)
Article
Nursing
Anne-Floor Q. Dijxhoorn, Yanouk Heijnen, Yvette M. van der Linden, Carlo Leget, Natasja J. H. Raijmakers, Linda Brom
Summary: This exploratory qualitative study examines the perceived emotional impact of providing palliative care among nursing assistants in Dutch nursing homes, their coping strategies, and associated needs. The study findings suggest that nursing assistants should be better supported in coping with the emotional impact of providing palliative care. They use different coping strategies, including emotional processing activities, their attitude towards death and work, and gaining experience. There is a need for more education in palliative care and organized peer group meetings.
JOURNAL OF ADVANCED NURSING
(2023)
Article
Public, Environmental & Occupational Health
Yuanyuan Zhu, Yamei Bai, Aihong Wang, Yuexian Liu, Qinyi Gao, Zhi Zeng
Summary: The study showed that death education integrated with Narrative Pedagogy can improve nursing students' attitudes towards death, coping abilities, and attitudes towards caring for dying patients. The findings highlight the importance of death education and provide a positive approach for teachers, although long-term effectiveness still needs further study.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Nursing
Qiaoqiao Shen, Xiangping Luo, Xiangang Feng, Yulin Gao
Summary: The purpose of this study is to develop a scale for measuring the perinatal bereavement care competence of midwives and to assess its psychometric properties. Through multiple phases of development and reliability and validity testing, an effective scale with six dimensions and 25 items was established.
ASIAN NURSING RESEARCH
(2022)
Review
Pediatrics
Taryn Schuelke, Claire Crawford, Rachel Kentor, Heather Eppelheimer, Cristina Chipriano, Kirstin Springmeyer, Allison Shukraft, Malinda Hill
Summary: This article provides a comprehensive overview of current grief support in relation to Pediatric Palliative Care (PPC), covering anticipatory grief, grief around the time of death, grief after death, and innovative approaches. The contents aim to support and educate programs providing grief services and those beginning the meaningful work of grief support.
Review
Nursing
Flora Xuhua He, Xiaowei Geng, Amanda Johnson
Summary: This study aimed to explore the gaps in understanding the experience of older Chinese people receiving palliative care in nursing homes. Cultural beliefs strongly influenced their attitudes and behaviors towards end-of-life care. The study suggests the development of culturally appropriate interventions to address specific challenges faced by older Chinese people.
INTERNATIONAL JOURNAL OF NURSING STUDIES
(2021)
Article
Health Care Sciences & Services
May Hua, Laura D. Fonseca, R. Sean Morrison, Hannah Wunsch, Robert Fullilove, Douglas B. White
Summary: Adoption of specialty palliative care in the ICU varies across different phases, from education and clarification of appropriate patients to establishing trust and comfort, ultimately forming a collaborative relationship. ICU and palliative care clinicians work to strengthen their collaboration in the mature phase, but further adoption is limited by the availability and resources of the palliative care team.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Oncology
Emi Takeuchi, Masashi Kato, Tatsuo Akechi
Summary: This study investigated bereavement care provision in practical settings, specifically examining differences in care based on nurses' affiliation and identifying barriers associated with bereavement care. The results indicated a lack of provision, particularly in general hospitals. The study also found that working in a palliative care setting, as well as having greater confidence and knowledge regarding bereavement care, were significantly associated with providing such care.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Geriatrics & Gerontology
Pauliina Hackman, Marja Hult, Arja Haggman-Laitila
Summary: This study aimed to describe unfinished nursing care activities in nursing homes. The results showed that an average of 7.3 nursing care activities out of 20 were unfinished. Female gender, age, and the amount of professional experience were found to increase the likelihood of unfinished nursing care. The study highlighted the importance of addressing unfinished nursing care in nursing homes and the role of nursing home leaders in reducing and preventing it.
Review
Geriatrics & Gerontology
Pamela Durepos, Jenny Ploeg, Noori Akhtar-Danesh, Tamara Sussman, Elizabeth Orr, Sharon Kaasalainen
AGING & MENTAL HEALTH
(2020)
Article
Management
Laura D. Aloisio, Jennifer Baumbusch, Carole A. Estabrooks, Anne-Marie Bostrom, Stephanie Chamberlain, Greta G. Cummings, Genevieve Thompson, Janet E. Squires
JOURNAL OF NURSING MANAGEMENT
(2019)
Article
Nursing
Deanne J. O'Rourke, Michelle M. Lobchuk, Genevieve N. Thompson, Christina Lengyel
INTERNATIONAL JOURNAL OF NURSING PRACTICE
(2020)
Article
Medicine, General & Internal
Patricia Harasym, Sarah Brisbin, Misha Afzaal, Aynharan Sinnarajah, Lorraine Venturato, Patrick Quail, Sharon Kaasalainen, Sharon E. Straus, Tamara Sussman, Navjot Virk, Jayna Holroyd-Leduc
Article
Health Care Sciences & Services
Sharon Kaasalainen, Tamara Sussman, Genevieve Thompson, Lynn McCleary, Paulette Hunter, Lorraine Venturato, Abigail Wickson-Griffiths, Jenny Ploeg, Deborah Parker, Shane Sinclair, Vanina Dal Bello-Haas, Marie Earl, John J. You
BMC PALLIATIVE CARE
(2020)
Article
Health Care Sciences & Services
Tamara Sussman, Sharon Kaasalainen, Rennie Bimman, Harveer Punia, Nathaniel Edsell, Jess Sussman
BMC PALLIATIVE CARE
(2020)
Article
Psychology, Multidisciplinary
Denis Dube, Tamara Sussman, Shari Brotman, Brian de Vries, Gloria Gutman
Summary: The study found that social isolation, day-to-day concerns, and managing disclosures hindered older gay men living with HIV from thinking about and discussing advance care planning. Additionally, relational connections helped create a space for them to engage in advance care planning.
JOURNAL OF HOMOSEXUALITY
(2022)
Article
Gerontology
Tamara Sussman, Rebecca Pimienta, April Hayward
Summary: Participants in this study expressed varying degrees of engagement in advance care planning (ACP), with limited understanding and disagreements regarding the timing of future care discussions. While some persons with dementia were willing to discuss future care, most preferred focusing on the present. This presented a dilemma for families in balancing the needs of their loved ones and their own need for communication.
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE
(2021)
Article
Gerontology
Shelley Peacock, Melanie Bayly, Kirstian Gibson, Lorraine Holtslander, Genevieve Thompson, Megan O'Connell
Summary: This study developed and evaluated a supportive writing intervention for bereaved spouses who cared for individuals with dementia. While the intervention did not show significant effects on quantitatively measured grief, depressive symptoms, and balance, participants still benefitted from the tool, reporting that it provided a structured approach to handling grief and facilitated emotional expression and reflection.
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE
(2021)
Article
Health Policy & Services
Eunyoung Lee, Tamara Sussman, Sharon Kaasalainen, Pamela Durepos, Lynn McCleary, Abigail Wickson-Griffiths, Rennie Bimman
PALLIATIVE & SUPPORTIVE CARE
(2020)
Article
Nursing
Pamela Durepos, Jenny Ploeg, Tamara Sussman, Noori Akhtar-Danesh, Sharon Kaasalainen
Article
Gerontology
Paulette V. Hunter, Lynn McCleary, Noori Akhtar-Danesh, Donna Goodridge, Thomas Hadjistavropoulos, Sharon Kaasalainen, Tamara Sussman, Genevieve Thompson, Lorraine Venturato, Abigail Wickson-Griffiths
Article
Gerontology
Tamara Sussman, Brittany Orav-Lakaski
Article
Gerontology
Tamara Sussman, Rachel Barken, Amanda Grenier