Journal
AUSTRALIAN JOURNAL OF RURAL HEALTH
Volume 22, Issue 1, Pages 23-28Publisher
WILEY
DOI: 10.1111/ajr.12079
Keywords
Aboriginal; end-of-life care; medical treatment decision; palliative; rural
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ObjectiveTo explore perceptions of Noongar community members towards advance care planning (ACP), while developing culturally appropriate information resources for use in community and hospital settings. DesignQualitative research methods, combining active health promotion with interviews and group discussions for participant feedback. SettingSix rural communities across the Great Southern region of Western Australia. ParticipantsEighteen Noongar community members consented to participate in interviews or group discussions. InterventionsCommunity members received information about ACP at community events or home visits, from an Aboriginal health worker and palliative care researcher. Main outcome measuresSemi-structured interviews and group discussions were thematically analysed using a descriptive, exploratory approach. Research team reflections on community events also constituted data. ResultsKey themes impacting on perceptions of ACP included cultural approaches to dying, importance of family and kin, and appropriate communication. Participants were satisfied with the information resource and method of community engagement. ConclusionsCulturally appropriate methods of engaging Aboriginal people in ACP discussions should include Aboriginal health workers and take a whole of community approach to awareness raising.
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