Article
Oncology
Noel Arring, Christopher R. Friese, Bidisha Ghosh, Marita Titler, Heidi Hamann, Sanja Percac-Lima, Adrian Sandra Dobs, Michelle J. Naughton, Pooja Mishra, Melissa A. Simon, Bingxin Chen, Electra D. Paskett, Robert J. Ploutz-Snyder, Martha Quinn, Debra L. Barton
Summary: A large portion of the US population lacks access to quality cancer care due to pervasive and systemic inequities, resulting in increased morbidity and mortality. Multicomponent, multilevel interventions can address these inequities, but they need to reach communities with limited access. Unfortunately, intervention studies often underenroll historically excluded groups.
JOURNAL OF THE NATIONAL COMPREHENSIVE CANCER NETWORK
(2023)
Article
Oncology
Katarina Wang, Carmen Ma, Feng Ming Li, Angeline Truong, Salma Shariff-Marco, Janet N. Chu, Debora L. Oh, Laura Allen, Mei-Chin Kuo, Ching Wong, Hoan Bui, Junlin Chen, Scarlett L. Gomez, Tung T. Nguyen, Janice Y. Tsoh
Summary: This study describes the needs reported by Asian American patients with colorectal, liver, or lung cancer during their treatment, emphasizing the importance of language concordant patient navigators in addressing the supportive care needs of patients with limited English proficiency.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Gastroenterology & Hepatology
Shiv K. Sarin, Mohammed Eslam, Jian-Gao Fan, Han-Chieh Lin, Jacob George, Masao Omata
Summary: Asian-Pacific nations, home to over half the world's population, are facing the challenge of metabolic dysfunction associated fatty liver disease (MAFLD). The Asian Pacific Association for the Study of the Liver (APASL) has taken the lead in redefining the disease and adopting the term MAFLD along with positive diagnostic criteria. Their efforts aim to advance the science and practice of Hepatology, incorporate MAFLD in multidisciplinary care teams, and improve patient-centered care in the region.
HEPATOLOGY INTERNATIONAL
(2022)
Article
Oncology
Peter F. DelNero, Ian D. Buller, Rena R. Jones, Zaria Tatalovich, Robin C. Vanderpool, Henry P. Ciolino, Robert T. Croyle
Summary: This article presents the catchment areas of NCI-designated cancer centers and their impact on scientific and community engagement activities. The geographic collation and presentation highlight the scope and influence of the NCI Cancer Centers Program.
CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION
(2022)
Article
Oncology
Randall A. Oyer, Patricia Hurley, Leigh Boehmer, Suanna Steeby Bruinooge, Kathryn Levit, Nadine Barrett, Al Benson, Lea Ann Bernick, Leslie Byatt, Marjory Charlot, Jennie Crews, Kyle DeLeon, Lola Fashoyin-Aje, Elizabeth Garrett-Mayer, Julie R. Gralow, Sybil Green, Carmen E. Guerra, Leila Hamroun, Claudia M. Hardy, Bridgette Hempstead, Sanford Jeames, Mel Mann, Khalid Matin, Worta McCaskill-Stevens, Janette Merrill, Grzegorz S. Nowakowski, Manali Patel, Alice Pressman, Amelie G. Ramirez, Juanita Segura, Barbara Segarra-Vasquez, Jen Hanley Williams, James E. Williams, Karen M. Winkfield, Eddy S. Yang, Victoria Zwicker, Lori J. Pierce
Summary: A concerted commitment is needed to increase equity, diversity, and inclusion in cancer clinical trials. Racial and ethnic diversity among trial participants is crucial for understanding patient response to cancer treatments. The recommendations include improving cancer care, reducing barriers, forming partnerships with patients and communities, providing training, investing in EDI, and reporting data on trial participants.
JOURNAL OF CLINICAL ONCOLOGY
(2022)
Article
Health Care Sciences & Services
Bertalan Mesko, Dave deBronkart
Summary: There is a paradigm shift in the patient-clinician relationship due to the changes in information access. However, the model under which clinicians are trained and care is conducted has not changed significantly. The rise of participatory health has empowered people to take control of their lives and health, partnering with physicians as needed. To fully drive this paradigm change, patient centricity needs to become a more active, collaborative process driven by both parties' needs and preferences.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Health Care Sciences & Services
Rikard Wardig, Fredrik Olofsson, Ann Catrine Eldh
Summary: The study explored how patients in outpatient psychiatric care conceptualize patient participation, finding that participation is about being listened to, engaging in reciprocal dialogue, learning about healthcare, and managing symptoms. Patients view participation as involving mutual respect and shared trust.
HEALTH EXPECTATIONS
(2021)
Article
Ethics
Vivienne Brady, Fiona Timmins, Silvia Caldeira, Margaret Theresa Naughton, Anne McCarthy, Barbara Pesut
Summary: This study explores healthcare chaplains' experience in providing spiritual support to individuals and families from minority religious and non-religious faiths, and identifies key elements of their role. Findings reveal three main themes: what chaplains bring, components of ritual, minority faith or no faith, and practising chaplaincy. The discussion highlights the role of healthcare chaplains in facilitating holistic person-centred care, supporting healthcare professionals, and the essential but often overlooked nature of chaplaincy services in interprofessional team working.
Article
Multidisciplinary Sciences
Rasha Kardosh, Asael Y. Sklar, Alon Goldstein, Yoni Pertzov, Ran R. Hassin
Summary: Our cognitive system is inclined to pay more attention to uncommon and unexpected things. Individuals from minority groups are inherently uncommon and often unexpected, making them psychologically salient in perception, memory, and visual awareness. This salience leads to an overestimation of the prevalence of minorities, resulting in a misguided view of our social environments – an illusion of diversity. This overestimation decreases support for diversity-promoting policies.
PROCEEDINGS OF THE NATIONAL ACADEMY OF SCIENCES OF THE UNITED STATES OF AMERICA
(2022)
Article
Health Care Sciences & Services
Caroline Martinsson, Fredrik Uhlin, Marika Wenemark, Ann Catrine Eldh
Summary: The study found that while many ESKD patients reached a sufficient level of preference-based patient participation, this was not the case for all patients and/or attributes. Further opportunities are needed to promote mutual understanding of patients' preferences for healthcare professionals to support person-centered patient participation.
HEALTH EXPECTATIONS
(2021)
Article
Nursing
Benjamin R. Mackie, Andrea P. Marshall, Marion L. Mitchell
Summary: This study explored perceptions of family participation and collaboration in acute care setting, including barriers and facilitators. The conclusion emphasizes the importance of supporting family involvement through multiple levels of engagement and establishing good communication.
INTERNATIONAL JOURNAL OF NURSING PRACTICE
(2021)
Review
Health Care Sciences & Services
Bodil Westman, Karin Bergkvist, Andreas Karlsson Rosenblad, Lena Sharp, Mia Bergenmar
Summary: This study aimed to investigate associations between patient activation level and participation in cancer care, sociodemographic characteristics, clinical data, health-related quality of life (HRQoL) and helpfulness of received information.
HEALTH EXPECTATIONS
(2022)
Editorial Material
Geriatrics & Gerontology
Dan Bailey, Toni Calasanti, Andrew Crowe, Claudio di Lorito, Patrick Hogan, Brian de Vries
Summary: International human rights movements have increased visibility and equality for LGBT+ communities. However, the health outcomes for LGBT+ people are still worse than their non-LGBT+ counterparts. This article focuses on the impact of societal structure and health and social care on the lives of older LGBT+ individuals, highlighting areas such as physical and mental health, end of life care, dementia, housing and care settings, and experiences of transgender individuals. The article discusses existing improvements made by LGBT+ communities and proposes a person-centered care approach to improve inclusivity. It also provides a framework for addressing service challenges and making health and social care services more prepared to meet the needs of older LGBT+ people.
Article
Geriatrics & Gerontology
Ethan C. Cicero, Elle Lett, Jason D. Flatt, G. Perusi Benson, Fayron Epps
Summary: The study investigated subjective cognitive decline (SCD) among different groups, including minoritized ethnoracial transgender individuals, minoritized ethnoracial cisgender individuals, White transgender individuals, and White cisgender individuals aged 45+. The results showed that the prevalence of SCD was highest among minoritized ethnoracial transgender individuals, followed by White transgender individuals, minoritized ethnoracial cisgender individuals, and White cisgender individuals. The odds of SCD were higher in minoritized ethnoracial transgender individuals compared to White cisgender and minoritized ethnoracial cisgender individuals, and higher in White transgender individuals compared to White cisgender individuals.
JOURNALS OF GERONTOLOGY SERIES B-PSYCHOLOGICAL SCIENCES AND SOCIAL SCIENCES
(2023)
Article
Public, Environmental & Occupational Health
Kathryn Joseph, Bronwyn Newman, Elizabeth Manias, Ramesh Walpola, Holly Seale, Merrilyn Walton, Ashfaq Chauhan, Jiadai Li, Reema Harrison
Summary: This study conducted a national analysis in Australia to explore the relevance of existing patient engagement interventions in ethnic minority populations within cancer care. The results showed that current strategies are not completely suitable for these populations and may not be feasible for implementation in cancer services.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Medicine, Research & Experimental
C. M. Sackley, C. Rick, P. Au, M. C. Brady, G. Beaton, C. Burton, M. Caulfield, S. Dickson, F. Dowling, M. Hughes, N. Ives, S. Jowett, P. Masterson-Algar, A. Nicoll, S. Patel, C. H. Smith, R. Woolley, C. E. Clarke
Article
Medicine, General & Internal
James D. Harrison, Michelle Archuleta, Esther Avitia, Jim Banta, Joy Benn, Marisha Burden, Vineet Chopra, Rebecca Coker, Shaker Eid, Margaret C. Fang, Kathlyn Fletcher, Julie Hagan, Jawali Jaranilla, Monalisa Mullick, Christopher Nyenpan, Lali Silva, Melissa Wurst, Georgiann Ziegler, Luci Leykum
JOURNAL OF HOSPITAL MEDICINE
(2020)
Article
Medicine, General & Internal
Andrew Auerbach, Kevin J. O'Leary, S. Ryan Greysen, James D. Harrison, Sunil Kripalani, Gregory W. Ruhnke, Eduard E. Vasilevskis, Judith Maselli, Margaret C. Fang, Shoshana J. Herzig, Tiffany Lee, Jeffrey Schnipper
JOURNAL OF HOSPITAL MEDICINE
(2020)
Article
Medicine, General & Internal
Chi D. Chu, Delphine S. Tuot, James D. Harrison, Jonathan Duong, Adam Luxenberg, Raman R. Khanna
Summary: An analysis of text paged consult requests found that most included contact information and reason for consult, but only 14% included information on level of urgency. The reason for consult was the most strongly associated factor with page quality, suggesting that urgency may not be as essential in text pages as previously thought.
POSTGRADUATE MEDICAL JOURNAL
(2021)
Article
Health Care Sciences & Services
Sajan Patel, Logan Pierce, Maggie Jones, Andrew Lai, Michelle Cai, Bradley A. Sharpe, James D. Harrison
Summary: This study used participatory design methodology to develop a performance feedback system for hospitalist physicians. The findings showed that physicians prefer collaboration, internal motivation, and patient-centered metrics. The next steps include evaluating the implementation and providing targeted feedback interventions to improve performance.
JOINT COMMISSION JOURNAL ON QUALITY AND PATIENT SAFETY
(2022)
Article
Multidisciplinary Sciences
Tasce Bongiovanni, Sriram Shamasunder, William Brown, Cristina Rivera Carpenter, Matthew Pantell, Bassem Ghali, James D. Harrison
Summary: This study conducted in-depth qualitative interviews with physicians, nurses, and hospital administrators who volunteered in the Navajo Nation during the COVID-19 pandemic, exploring key themes defining the partnership between academic medical centers and vulnerable communities. The study provides guidelines for AMCs to develop and improve partnerships with vulnerable communities, emphasizing trust, sustainability, and long-term relationships over short-term 'medical missions'.
Article
Geriatrics & Gerontology
James D. Harrison, Rebecca L. Sudore, Andrew D. Auerbach, Sachin Shah, Sandra Oreper, Margaret Meg Wheeler, Margaret C. Fang
Summary: The study found that automated post-hospital discharge telephone programs are feasible and effective at reaching older adults. Future work should focus on improving discharge communication to ensure older adults are aware of their follow-up plan and appointments.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2022)
Article
Geriatrics & Gerontology
Stephanie E. Rogers, Kellie L. Flood, Qiao Yu Kuang, James D. Harrison, Michael L. Malone, Julia Cremer, Robert M. Palmer
Summary: The objective of this study was to identify all existing Acute Care for Elders (ACE) units in the United States and obtain detailed information about variations in implementation. The method involved online searches and snowball sampling to identify current ACE units, followed by a national survey to gather information on implementation characteristics and key elements of ACE units.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2022)
Article
Geriatrics & Gerontology
Tasce Bongiovanni, Siqi Gan, Emily Finlayson, Joseph Ross, James D. Harrison, John Boscardin, Michael A. Steinman
Summary: Surgeons have been working to reduce postoperative opioid prescribing, including adopting non-opioid pain medications like gabapentin. However, little is known about prolonged postoperative gabapentin use in older adults. Over 20% of older adults prescribed gabapentin postoperatively filled a prescription for more than 90 days after discharge, especially among those with more comorbidities and concurrent prolonged opioid use, increasing the risk of adverse drug events and polypharmacy.
JOURNAL OF THE AMERICAN GERIATRICS SOCIETY
(2022)
Article
Geriatrics & Gerontology
Timothy J. Judson, Meera Subash, James Harrison, Jan Yeager, Aimee M. Williams, Carrie K. Grouse, Maria Byron
Summary: In this qualitative study, older adults generally accepted the concept of e-visits but had a preference for synchronous communication, which may limit their uptake. The study also identified opportunities to improve e-visit implementation.
Article
Medicine, General & Internal
Elaine C. Khoong, Elizabeth B. Sherwin, James D. Harrison, Margaret Wheeler, Sachin J. J. Shah, Michelle Mourad, Raman Khanna
Summary: A study found that providing standardized written discharge instructions in Chinese can help improve patient comprehension for non-English-speaking patients. After implementing written discharge instructions in English, Spanish, and Chinese, there was an improvement in medication-related postdischarge questions for patients with different language preferences. Chinese-speaking patients had a higher probability of asking questions before the intervention, but the probability significantly decreased after the intervention, closing the disparity. Therefore, language-concordant written discharge instructions can reduce disparities in medication-related postdischarge questions for non-English-speaking patients.
JOURNAL OF HOSPITAL MEDICINE
(2023)
Article
Geriatrics & Gerontology
James D. Harrison, Megan Rathfon, Sasha Binford, Jennifer Miranda, Sandra Oreper, Brian Holt, Stephanie E. Rogers
Summary: This study developed a concise nurse-driven workflow aimed at reducing delirium rates and length of stay for hospitalized adults. The workflow included evidence-based interventions during the day and at night, and was evaluated using an interrupted time series study design. The results showed a reduction in delirium rates, but not in the length of stay.
Article
Medicine, Research & Experimental
James D. Harrison, Nynikka R. A. Palmer, Abby Cabrera, Paula Fleisher, Erica Wong, Monique LeSarre, Kevin Grumbach, Jim Banta, Lisa Tealer, Andrew Reynolds, Arianna Wassmann, Teri Rose, Tung Nguyen
Summary: This article describes the creation, implementation, and evaluation of a COVID-19 Research Patient and Community Advisory Board (PCAB) that provides input into research studies. PCAB members participated in consultations where they provided feedback. Both PCAB members and researchers reported high satisfaction with the process. Insights from the consultations highlighted funding limitations, deficiencies in researcher communication skills, and a lack of cultural humility in study activities.
JOURNAL OF CLINICAL AND TRANSLATIONAL SCIENCE
(2022)
Article
Health Care Sciences & Services
James D. Harrison, Rachel Weiss, Nila S. Radhakrishnan, Catherine Hanson, Martha B. Carnie, Patricia Evans, Jim Banta, Gina Symczak, Georgiann Ziegler, D'Anna Holmes, Safia J. Michel-Leconte, Beverly Rogers, Melissa Wurst, Jacqueline Alikhaani, Clark Davis, Tiffany Lee, Jeffrey L. Schnipper, Andrew D. Auerbach, John Romond
Summary: Researchers and patients surveyed visitor restrictions at 70 academic medical centers and found variations in how policies were described and implemented. Using the nominal group technique, they identified patient-centered information gaps and provided key recommendations for improvement, focusing on comprehensive, consistent, clear information, accessibility for patients with language and health literacy barriers, COVID-19 considerations, and communication methods for care team members.
JOURNAL OF PATIENT EXPERIENCE
(2021)
Article
Medicine, Research & Experimental
Sneha Daya, Nancy Choi, James D. Harrison, Cindy J. Lai
Summary: The study introduced an experience-based learning curriculum called Advocacy in Action (AiA) to promote the development and application of health advocacy knowledge and skills during a clerkship rotation. The curriculum helped students learn about communication with patients, working with interprofessional team members, empathy, and compassion, emphasizing the importance of incorporating advocacy into daily patient care.