Article
Public, Environmental & Occupational Health
Rona Bird, Ilknur oezer-Erdogdu, Meryem Aslan, Huerrem Tezcan-Guentekin
Summary: This study examined medication management for chronically ill older adults of Turkish descent in Germany and explored the challenges they face as well as potential solutions. The involvement of family members and improving health literacy were found to be important for optimal medication management. However, language barriers, systemic issues, and racism from healthcare providers were identified as barriers. Additionally, structural barriers to interprofessional communication in the German healthcare system were highlighted.
FRONTIERS IN PUBLIC HEALTH
(2022)
Review
Nursing
Morteza Nasiri, Zohre Jafari, Mahnaz Rakhshan, Fatemeh Yarahmadi, Sahar Zonoori, Fakhridokht Akbari, Elham Sadeghi Moghimi, Leila Amirmohseni, Mohammad Abbasi, Sahar Keyvanloo Sharstanaki, Masoud Rezaei
Summary: This study aimed to clarify the value of caring programs developed according to Orem's Self-Care Deficit Nursing Theory among individuals with chronic diseases. The results showed that these programs significantly improved the quality of life, self-care, and self-efficacy of the patients, while reducing anxiety and depression. However, the effect on stress was uncertain.
INTERNATIONAL NURSING REVIEW
(2023)
Article
Multidisciplinary Sciences
Omar M. Khraisat, Ahmad M. Al-Bashaireh, Raed Khafajeh, Ola Alqudah
Summary: This study investigated the experiences of nurses providing care for terminally ill neonates and their educational needs for neonatal palliative care in a tertiary center in Saudi Arabia. The results showed that most nurses had insufficient experience in neonatal palliative care and lacked education in this area. Therefore, it is crucial to include education on neonatal palliative care in nursing staff training programs to enhance the quality of care.
Article
Pediatrics
Chii-chii Chew, Huan-keat Chan, Chee-tao Chang, H. S. S. Amar-singh, Mohamed Azmi Hassali
Summary: In Malaysia, caregivers of chronically ill children generally possess sufficient knowledge and appropriate practice in medication administration at home. However, measures are needed to improve medication adherence, particularly in caregivers of children with complicated health conditions.
Article
Public, Environmental & Occupational Health
Marieke van der Gaag, Monique Heijmans, Marta Ballester, Carola Orrego, Ena Nino de Guzman, Lyudmil Ninov, Jany Rademakers
Summary: The study found that patients with limited health literacy prioritize satisfaction with healthcare, symptom management, and improving competences for self-management as outcomes of self-management. Building a strong patient-provider relationship is crucial for successful self-management.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Multidisciplinary Sciences
Tino Prell, Aline Schoenenberg, Sarah Mendorf, Hannah M. Muehlhammer, Julian Grosskreutz, Ulrike Teschner
Summary: Nonadherence to medication is a common and costly issue with negative implications on morbidity and mortality. This dataset from the NeuroGerAd study provides valuable information on factors influencing medication adherence in adults with neurological disorders, including demographic, clinical, and psychosocial variables.
Article
Psychology, Multidisciplinary
Mohammadamin Shabani, Zahra Taheri-Kharameh, Abedin Saghafipour, Hoda Ahmari-Tehran, Sadegh Yoosefee, Mohammadali Amini-Tehrani
Summary: This study investigated the mediating role of spirituality and psychological resilience in predicting the relationship between anxiety and life satisfaction in older adults with chronic illness. The findings revealed a positive and significant relationship between resilience, spirituality, and life satisfaction. The results suggest that spirituality and psychological resilience can help older adults with chronic illness mitigate the impact of anxiety on satisfaction, with spirituality having a stronger effect than resilience in this relationship.
Review
Pediatrics
R. O. Wijngaarde, I. Hein, J. Daams, J. B. Van Goudoever, D. T. Ubbink
Summary: Based on the United Nations Conventions on the Rights of the Child, children have the right to participate in matters concerning their wellbeing. Studies have shown that chronically and/or critically ill children can benefit from decision support tools to enhance their involvement in pediatric shared decision-making, leading to increased knowledge and satisfaction, and reduced decisional conflicts.
EUROPEAN JOURNAL OF PEDIATRICS
(2021)
Article
Economics
Johannes Wendl, Andreas Simon, Martin Kistler, Jana Hapfelmeier, Antonius Schneider, Alexander Hapfelmeier
Summary: This study aims to overcome methodological limitations in current research on medication adherence and its relationship to healthcare costs. Using different modeling approaches, the study found a positive association between medication adherence and total costs, a weak association with outpatient costs, positive association with pharmacy costs, and frequently negative association with inpatient costs. The study highlights the importance of avoiding concurrent measurement and considering the presence of a non-linear relationship.
APPLIED HEALTH ECONOMICS AND HEALTH POLICY
(2023)
Article
Cardiac & Cardiovascular Systems
Caleb Ferguson, Louise D. Hickman, Lien Lombardo, Annie Downie, Beata Bajorek, Serra Ivynian, Sally C. Inglis, Rochelle Wynne
Summary: This study explores the educational and self-management needs of adults living with atrial fibrillation (AF) and identifies three key themes: patient-centered education, prioritizing education, and timing of education. The study highlights the unmet needs in AF education and emphasizes the importance of adopting multimodal approaches and personalized settings based on individual patient needs.
JOURNAL OF THE AMERICAN HEART ASSOCIATION
(2022)
Article
Medicine, General & Internal
Lauren J. Van Scoy, Michael J. Green, Theresa Smith, Erika VanDyke, Andrew J. Foy, Laurie Badzek, Benjamin H. Levi
Summary: This study examines how patient spokespersons differentiate between surrogate decision-making and patient advocacy. The findings reveal substantial variability in how spokespersons conceptualize these roles, which may have implications for accurately assessing the association between ACP and outcomes.
Article
Psychology, Multidisciplinary
Javier Diez-Palomar, Maria del Socorro Ocampo Castillo, Ariadna Munte Pascual, Esther Oliver
Summary: This study analyzes a case study of an interactive learning environment shared by adults with and without special needs, identifying several improvements in educational outcomes, social inclusion, and well-being for adult learners with SEN.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Oncology
Jeanne M. Erickson, Anna Kamke-Jordan, Ilissa Jasmine Lancaster, Akasha Palou-Torres, Marloe Esch, Alyssa Gonzalez, John Charlson, Kristin Bingen
Summary: The study aims to describe the medication self-management behaviors of adolescents and young adults with cancer and examine the barriers and facilitators to optimal use of medications. The findings suggest that most participants had accurate knowledge and average self-efficacy for managing medications but still required support and reminders.
SUPPORTIVE CARE IN CANCER
(2023)
Article
Psychology, Multidisciplinary
Victor Gonzalez-Calatayud, Marimar Roman-Garcia, Paz Prendes-Espinosa
Summary: The study shows that people with Special Educational Needs and disabilities lack the skills, knowledge, and resources to deal with bullying, but improvements can be made through training programs.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Environmental Sciences
Maciej Klimasinski, Ewa Baum, Joanna Praczyk, Monika Ziemkiewicz, Daria Springer, Szczepan Cofta, Katarzyna Wieczorowska-Tobis
Summary: Spiritual care in a clinical setting is crucial for improving the quality of life for chronically ill patients. This research examined the spiritual distress and needs of a group of Polish patients, finding that faith can serve as a coping resource. However, almost all patients exhibited signs of spiritual distress, and over half expressed spiritual needs. Disease severity was found to be the only significant factor influencing the intensity of distress. Recognizing faith as a resource was the most important predictor of having spiritual needs.
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH
(2022)
