Ethical Issues with Newborn Screening in the Genomics Era

Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice

(2014) J Kai et al.   HEALTH TECHNOLOGY ASSESSMENT

Child Health Providers' Precautionary Discussion of Emotions During Communication About Results of Newborn Genetic Screening

(2012) Michael H. Farrell   ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE

The Ethical Hazards and Programmatic Challenges of Genomic Newborn Screening

(2012) Aaron J. Goldenberg et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Storage and use of residual newborn screening blood spots: A public policy emergency

(2011) Beth A Tarini   GENETICS IN MEDICINE

"I'm fine; I'm just waiting for my disease": The new and growing class of presymptomatic patients

(2011) J. M. Kwon et al.   NEUROLOGY

Committee Opinion No. 481: Newborn Screening

(2011)   OBSTETRICS AND GYNECOLOGY

False-Positive Newborn Screening Result and Future Health Care Use in a State Medicaid Cohort

(2011) B. A. Tarini et al.   PEDIATRICS

An evidence development process for newborn screening

(2010) James M Perrin et al.   GENETICS IN MEDICINE

Medical foods: Inborn errors of metabolism and the reimbursement dilemma

(2010) Meredith A Weaver et al.   GENETICS IN MEDICINE

Parental Attitudes toward Ethical and Social Issues Surrounding the Expansion of Newborn Screening Using New Technologies

(2010) L.E. Hasegawa et al.   Public Health Genomics

History and Current Status of Newborn Screening for Hemoglobinopathies

(2010) Jane M. Benson et al.   SEMINARS IN PERINATOLOGY

Maternal knowledge and attitudes about newborn screening for sickle cell disease and cystic fibrosis

(2009) Colleen Walsh Lang et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Impact of false-positive newborn metabolic screening results on early health care utilization

(2009) Ellen A Lipstein et al.   GENETICS IN MEDICINE

Cystic Fibrosis Foundation Practice Guidelines for the Management of Infants with Cystic Fibrosis Transmembrane Conductance Regulator-Related Metabolic Syndrome during the First Two Years of Life and Beyond

(2009) Drucy Borowitz et al.   JOURNAL OF PEDIATRICS

Patient advocacy in newborn screening: Continuities and discontinuities

(2008) Diane B. Paul   AMERICAN JOURNAL OF MEDICAL GENETICS PART C-SEMINARS IN MEDICAL GENETICS

Public healthcare resource allocation and the Rule of Rescue

(2008) R Cookson et al.   JOURNAL OF MEDICAL ETHICS

Pediatric Residents' Use of Jargon During Counseling About Newborn Genetic Screening Results

(2008) M. Farrell et al.   PEDIATRICS