Patients’ perceptions of services and preferences for care in amyotrophic lateral sclerosis: A review

From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): Experiences of people with ALS/MND and family carers – a qualitative study

(2011) Mary R. O'Brien et al.   Amyotrophic Lateral Sclerosis

At Home and on Demand Mechanical Cough Assistance Program for Patients With Amyotrophic Lateral Sclerosis

(2010) Michele Vitacca et al.   AMERICAN JOURNAL OF PHYSICAL MEDICINE & REHABILITATION

Meaning in life in patients with amyotrophic lateral sclerosis

(2010) Martin Johannes Fegg et al.   Amyotrophic Lateral Sclerosis

Power Wheelchair Prescription, Utilization, Satisfaction, and Cost for Patients With Amyotrophic Lateral Sclerosis: Preliminary Data for Evidence-Based Guidelines

(2010) Amber L. Ward et al.   ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION

A pilot trial of telemedicine-assisted, integrated care for patients with advanced amyotrophic lateral sclerosis and their caregivers

(2010) Michele Vitacca et al.   JOURNAL OF TELEMEDICINE AND TELECARE

Ethical issues in invasive mechanical ventilation for amyotrophic lateral sclerosis

(2010) Yuko Hirano et al.   NURSING ETHICS

Implementation of a Wireless Device for Real-Time Telemedical Assistance of Home-Ventilated Amyotrophic Lateral Sclerosis Patients: A Feasibility Study

(2010) Jos Pedro Lopes de Almeida et al.   Telemedicine and e-Health

Medical and Supportive Care Among People with ALS in the Months Before Death or Tracheostomy

(2009) Steven M. Albert et al.   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Measuring Outcomes in Palliative Care: Limitations of QALYs and the Road to PalYs

(2009) Charles Normand   JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Multidisciplinary care, symptom management, and cognitive/behavioral impairment (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology

(2009) R. G. Miller et al.   NEUROLOGY

Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional, and respiratory therapies (an evidence-based review): Report of the Quality Standards Subcommittee of the American Academy of Neurology

(2009) R. G. Miller et al.   NEUROLOGY

End-of-life issues in acute stroke care: a qualitative study of the experiences and preferences of patients and families

(2009) Sheila Payne et al.   PALLIATIVE MEDICINE

Perceived needs and satisfaction with care in people with multiple sclerosis: A two-year prospective study

(2008) Charlotte Ytterberg et al.   BMC Neurology

ALS patients request more information about cognitive symptoms

(2008) P. Wicks et al.   EUROPEAN JOURNAL OF NEUROLOGY

Mononeuropathy multiplex as a result of treatment with interferon-α and ribavirin in a patient with hepatitis C

(2008) C. Jacobi et al.   EUROPEAN JOURNAL OF NEUROLOGY

Striving for independence: experiences and needs of service users with life limiting conditions

(2008) Phil Cotterell   JOURNAL OF ADVANCED NURSING

Satisfaction with services among people with progressive neurological illnesses and their carers in Australia

(2008) Marita P. McCabe et al.   Nursing & Health Sciences

Palliative stage Parkinson’s disease: patient and family experiences of health-care services

(2008) S Giles et al.   PALLIATIVE MEDICINE

How patients’ experiences contribute to decision making: illustrations from DIPEx (personal experiences of health and illness)

(2008) SUE ZIEBLAND et al.   Journal of Nursing Management