Article
Neurosciences
Nikolas Dietzel, Elmar Graessel, Lara Kuerten, Sebastian Meuer, Dorothee Klaas-Ickler, Markus Hladik, Christina Chmelirsch, Peter L. Kolominsky-Rabas
Summary: The study aimed to develop a research instrument to assess the most important needs of people with dementia and their family caregivers. Through a focus group and an online survey, a questionnaire consisting of 13 support services was developed. The questionnaire was found to be easy to understand, with a short execution time, allowing for the identification of supply gaps and the development of specific healthcare plans.
JOURNAL OF ALZHEIMERS DISEASE
(2022)
Article
Nursing
Soraia Teles, Constanca Paul, Milaydis Sosa Napolskij, Ana Ferreira
Summary: This study examines how informal caregivers of persons with dementia perceive their training needs and preferences in the context of online training and support interventions. The findings show that caregivers prioritize training in care interactions and value features such as plain language and easy communication with professionals. These results support the importance of delivering comprehensive interventions that address the multiple needs of caregivers.
JOURNAL OF CLINICAL NURSING
(2022)
Article
Health Care Sciences & Services
Shoshana H. Bardach, Allison Gibson, Kelly Parsons, April Stauffer, Gregory A. Jicha
Summary: The study aimed to explore questions asked during a rural caregiving telemedicine program in Kentucky, identifying gaps in dementia-related knowledge among rural caregivers. Common areas of information requests included risk factors, behavioral management, diagnosis, and medications.
JOURNAL OF RURAL HEALTH
(2021)
Article
Neurosciences
Nuria Carcavilla, Ana Sofia Pozo, Belen Gonzalez, Debora Moral-Cuesta, Jose Joaquin Roldan, Victoria Erice, Ana Remireza de Ganuza
Summary: The survey revealed that caregivers of people with dementia experienced psychological issues during the pandemic, and felt lacking in support when dealing with challenging behaviors or providing meaningful activities. An innovative supportive approach is needed to ensure the continuity of quality care for dementia patients and their family caregivers in a post-pandemic reality.
JOURNAL OF ALZHEIMERS DISEASE
(2021)
Article
Geriatrics & Gerontology
Sharon L. Naismith, Johannes C. Michaelian, Lee-Fay Low, Valerie Arsenova, Inga Mehrani, Katrina Fyfe, Nicole A. Kochan, Susan E. Kurrle, Christopher Rowe, Perminder S. Sachdev
Summary: The study reveals that memory clinics in Australia have long wait times and lack post-diagnostic support and evidence-based strategies for cognition. The results emphasize the need for Australian memory clinics to adopt a more comprehensive multidisciplinary assessment and post-diagnostic support service, as well as the need to increase the number of clinics to meet the growing demand for dementia cases.
Article
Health Care Sciences & Services
Aubree Honcoop, Russell J. J. McCulloh, Ellen Kerns, Bethany Lowndes, Tiffany Simon, Natalie McCawley, Ricky Flores, Martina Clarke
Summary: Project Austin aims to improve emergency care for medically complex rural children by providing Emergency Information Forms (EIFs) to parents/caregivers and emergency providers. Thematic analysis of interviews with emergency providers and parents/caregivers enrolled in an emergency management program revealed that EIFs were supported and seen as helpful in providing individualized care, although concerns about the accuracy and reliability of the information were also raised.
BMC HEALTH SERVICES RESEARCH
(2023)
Article
Geriatrics & Gerontology
Jennifer Merrilees, Joanne Robinson-Teran, Mahnoor Allawala, Sarah Dulaney, Michael Rosenbloom, Hillary D. Lum, Robert John Sawyer, Katherine L. Possin, Alissa Bernstein Sideman
Summary: The study explored how the Care Ecosystem responded to the needs of people with dementia and their caregivers during the initial phase of the COVID-19 pandemic. Findings revealed concerns such as fear of illness, changing attitudes towards long-term care, decreased availability of services and resources, and impacts on patient and caregiver health and well-being.
INNOVATION IN AGING
(2022)
Article
Psychology, Multidisciplinary
Miriam Clark, Jean Kjellstrand, Kaycee Morgan
Summary: The challenges faced by incarcerated parents, who often come from poverty, unstable housing, trauma, and abuse, affect their ability to effectively care for their children. Community service providers recommend intervention programs covering basic needs, support resources, drug treatment, parenting, and addressing key topics such as problem-solving, impact of addiction on children, and strategies for meeting children's needs. Key services identified for reentering parents include housing, mentors, mental health support, group therapy, and programs addressing parenting and substance abuse.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Public, Environmental & Occupational Health
Kristina M. Kokorelias, Monique A. M. Gignac, Gary Naglie, Nira Rittenberg, Jill Cameron
Summary: The study examines the service use decision-making of caregivers for people with Alzheimer's disease, finding that initial service interactions, difficulties navigating the healthcare system, and availability of services are key factors influencing decisions. Caregivers make decisions based on caregiving goals and service accessibility, both of which change across caregiving phases.
HEALTH & SOCIAL CARE IN THE COMMUNITY
(2022)
Article
Oncology
Emily R. Haines, Lauren Lux, Andrew B. Smitherman, Melody L. Kessler, Jacob Schonberg, Alex Dopp, Angela M. Stover, Byron J. Powell, Sarah A. Birken
Summary: The NA-SB tool was developed using user-centered design, assessing AYAs physical, psychosocial, and practical needs and grouping them by services expected to address them, creating a more intuitive and actionable link between needs and services for individualized care coordination.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Geriatrics & Gerontology
Zhi Lei Ong, Esther Yin Hui Chew, George Frederick Glass, Ee-Yuee Chan
Summary: The study examined and classified varying dementia caregiving experiences in an Asian setting, identifying four caregiver archetypes: Reluctant, Ambivalent, Enlightened, and Selfless. The findings provide a framework for targeted support in a holistic caregiver-centered manner.
Article
Health Care Sciences & Services
Luis Sousa, Laurencia Gemito, Rogerio Ferreira, Lara Pinho, Cesar Fonseca, Manuel Lopes
Summary: This study aims to identify the current state of knowledge about programs targeting the needs of family caregivers or informal caregivers, and to discuss the development of intervention models for improving their experiences, health, and well-being.
JOURNAL OF PERSONALIZED MEDICINE
(2022)
Article
Rehabilitation
Marissa L. Diener, Anne Kirby, Felicia Sumsion, Heather E. Canary, Michael M. Green
Summary: The study found that children and families have significant community reintegration needs following pediatric brain injury, requiring multi-system interventions to support long-term community reintegration, especially those interventions that increase communication and support transitions.
DISABILITY AND REHABILITATION
(2022)
Article
Geriatrics & Gerontology
Jeffrey T. Boon, Keela Herr, Lori Schirle, Mary S. Dietrich, Cathy A. Maxwell
Summary: This study investigated the frequency of different elements of pain assessment used by family caregivers of people living with dementia (PLWD), as well as the correlations between caregivers' characteristics and their use of these elements. Participants reported frequent use of many pain assessment elements. Statistically significant correlations were found for caregiving self-efficacy and obtaining respite, as well as for responding to disruptive patient behaviors and multiple pain assessment elements. Further efforts are needed to describe pain assessments by family caregivers of PLWD.
Article
Oncology
Yiqing Qian, Erin E. Kent
Summary: Research indicates that among female cancer caregivers, there is an association between unmet support needs and frequent mental distress, which is not found among male caregivers. While distress levels do not seem to vary by gender, having unmet support needs may negatively impact the mental health of female cancer caregivers.
SUPPORTIVE CARE IN CANCER
(2022)
Editorial Material
Pharmacology & Pharmacy
David L. Streiner
JOURNAL OF CLINICAL PSYCHOPHARMACOLOGY
(2020)
Editorial Material
Pharmacology & Pharmacy
David L. Streiner
JOURNAL OF CLINICAL PSYCHOPHARMACOLOGY
(2020)
Editorial Material
Pharmacology & Pharmacy
David L. Streiner
JOURNAL OF CLINICAL PSYCHOPHARMACOLOGY
(2020)
Letter
Psychiatry
Scott B. Patten, David L. Streiner
CANADIAN JOURNAL OF PSYCHIATRY-REVUE CANADIENNE DE PSYCHIATRIE
(2021)
Editorial Material
Pharmacology & Pharmacy
David L. Streiner
JOURNAL OF CLINICAL PSYCHOPHARMACOLOGY
(2020)
Editorial Material
Pharmacology & Pharmacy
David L. Streiner
JOURNAL OF CLINICAL PSYCHOPHARMACOLOGY
(2020)
Editorial Material
Clinical Neurology
David L. Streiner
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2021)
Editorial Material
Psychiatry
Scott B. Patten, Stanley Kutcher, David Streiner, David Gratzer, Paul Kurdyak, Lakshmi Yatham
CANADIAN JOURNAL OF PSYCHIATRY-REVUE CANADIENNE DE PSYCHIATRIE
(2021)
Article
Medicine, General & Internal
Melissa Kimber, Sheila Harms, Noam Soreni, Maggie Inrig, Anita Acai, Ellen Louise Lipman, Roberto Sassi, David L. Streiner, Harriet L. MacMillan
Summary: This study aims to evaluate the acceptability and feasibility of implementing and evaluating the "LIVES for Families" PFA training program to help mental health practitioners better recognize and respond to psychological distress among young people and their families due to COVID-19. The research design involves a triangulation mixed methods approach, including collection and merging of quantitative and qualitative data.
Review
Clinical Neurology
Gabriel M. Ronen, Peter L. Rosenbaum, David L. Streiner
Summary: This review examines children's self-reported outcome measurements in pediatric neurology, discussing patient-reported outcomes, evaluation of intervention effects, and the importance of incorporating patients' perspectives in the evaluation process. The application of patients' views in the assessment of medical interventions has become an important expectation, aligning with current healthcare goals.
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
(2022)
Article
Psychiatry
Shelley F. McMain, Alexander L. Chapman, Janice R. Kuo, Katherine L. Dixon-Gordon, Timothy Henry Guimond, Cathy Labrish, Wanrudee Isaranuwatchai, David L. Streiner
Summary: The study found that 6 months of Dialectical Behavior Therapy (DBT) is noninferior to 12 months of DBT in terms of clinical effectiveness for borderline personality disorder patients. Participants in the 6-month group showed faster reductions in symptoms and noninferiority in general psychopathology and coping skills at 24 months. There were no differences in dropout rates between the two groups, indicating the potential for a shorter yet comprehensive treatment for BPD to reduce barriers to treatment access.
PSYCHOTHERAPY AND PSYCHOSOMATICS
(2022)
Article
Psychiatry
Silvia M. Antoine, Beverley K. Fredborg, David Streiner, Tim Guimond, Katherine L. Dixon-Gordon, Alexander L. Chapman, Janice Kuo, Paul Links, Shelley McMain
Summary: Borderline personality disorder (BPD) is characterized by instability in various domains. This study identified three subgroups of BPD symptoms, namely the non-labile type, dissociative/paranoid type, and interpersonally unstable type. These subgroups may have implications for refining BPD treatment interventions.
PSYCHIATRY RESEARCH
(2023)
Article
Psychology, Clinical
Ryan J. Van Lieshout, Haley Layton, Calan D. Savoy, Feng Xie, June S. L. Brown, Kathryn Huh, Peter J. Bieling, David L. Streiner, Mark A. Ferro, Erika Haber-Evans
Summary: A randomized controlled trial found that offering a one-day cognitive behavioral therapy (CBT)-based workshop for postpartum depression (PPD) sufferers can significantly reduce depression and anxiety symptoms, improve the mother-infant relationship, and be cost-effective. This intervention could represent a perinatal-specific option that can treat larger numbers of individuals and be integrated into stepped care approaches at reasonable cost.
PSYCHOLOGICAL MEDICINE
(2023)
Article
Clinical Neurology
Adam C. Gravitis, Uilki Tufa, Katherine Zukotynski, David L. Streiner, Daniel Friedman, Juliana Laze, Yotin Chinvarun, Orrin Devinsky, Richard Wennberg, Peter L. Carlen, Berj L. Bardakjian
Summary: Previous case-control studies were unable to identify ECG features associated with SUDEP risk, leading to the development of a novel metric called alpha. This study used Single Spectrum Analysis, Independent Component Analysis, and cross-frequency phase-phase coupling to assess SUDEP risk and found that alpha was higher in SUDEP patients and predictive of SUDEP risk.
FRONTIERS IN NEUROLOGY
(2023)
Article
Psychology, Clinical
Sheryl M. Green, Eleanor Donegan, Randi E. McCabe, David L. Streiner, Melissa Furtado, Laura Noble, Arela Agako, Benicio N. Frey
Summary: Research has shown that women with perinatal GAD engage in avoidance and safety behaviors, which are associated with more severe symptoms. Cognitive behavioral therapy is effective in reducing GAD symptoms and problematic behaviors, with a bidirectional relationship between worry and problematic behaviors during treatment.
