Article
Pediatrics
Jerome Lichtle, Emmanuel Devouche, Naomi Downes, Laurent Mottron, Emilie Cappe
Summary: This study validates the acceptability and reliability of the PedsQL 4.0 questionnaire in French children aged 2 to 4 years. The results show good acceptability and internal consistency of the questionnaire. Factor analysis reveals an alternative 2-factor structure. The total score and emotional scale score are recommended for use in French children aged 2 to 4 years.
EUROPEAN JOURNAL OF PEDIATRICS
(2023)
Article
Pediatrics
Juan Wang, Jin Li, Xiaofan Jiang, Pei Sun, Xia Li, Guanyi Wang
Summary: This study introduced the use of the Pediatric Quality of Life Inventory (TM) (PedsQL (TM)) brain tumor module in China for the first time, and developed the Chinese version of the module. The study confirmed the feasibility, reliability, and validity of the Chinese PedsQL (TM) brain tumor module, which can effectively monitor children with brain tumors and determine the risk factors affecting their quality of life through descriptive or exploratory studies.
FRONTIERS IN PEDIATRICS
(2023)
Article
Otorhinolaryngology
Phoebe Kuo Yu, Kaitlyn Cook, Jiayan Liu, Raouf S. Amin, Craig Derkay, Lisa M. Elden, Susan L. Garetz, Alisha S. George, Sally Ibrahim, Stacey L. Ishman, Erin M. Kirkham, S. Kamal Naqvi, Jerilynn Radcliffe, Kristie R. Ross, Gopi B. Shah, Ignacio E. Tapia, H. Gerry Taylor, David A. Zopf, Susan Redline, Cristina M. Baldassari
Summary: The correlation between caregiver- and child-reported quality of life (QOL) in children with mild sleep-disordered breathing (SDB) was assessed. The study found a weak correlation between caregiver and child report, especially for young children. Higher child age and health literacy were associated with closer agreement between caregiver and child report.
OTOLARYNGOLOGY-HEAD AND NECK SURGERY
(2023)
Article
Pediatrics
Elisabeth Wallach, Virginie Ehlinger, Maelle Biotteau, Ulrike Walther-Louvier, Yann Pereon, Carole Vuillerot, Stephanie Fontaine, Pascal Sabouraud, Caroline Espil-Taris, Jean-Marie Cuisset, Vincent Laugel, Eloise Baudou, Catherine Arnaud, Claude Cances
Summary: This study conducted a confirmatory validation of the French version of the PedsQL (TM) DMD, which showed poor metric qualities but consistent with the original validation. This confirms the usefulness of using this version in clinical practice.
Article
Medicine, Research & Experimental
Romaine F. Johnson, Ashley Brown, Rebecca Brooks
Summary: This study measured the quality of life among families with children with tracheostomies and found that their QOL scores were similar to other medically fragile children, with tracheostomy patients reporting superior scores in communication.
Article
Health Care Sciences & Services
Guswan Wiwaha, Dian M. Sari, Vitriana Biben, Deni K. Sunjaya, Dany Hilmanto
Summary: This study validates the validity and reliability of the PedsQL (TM) 3.0 Neuromuscular Module Indonesian Version in assessing health-related quality of life in Indonesian children with neuromuscular diseases.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2022)
Article
Public, Environmental & Occupational Health
Weijun Chen, Lidan Sun, Xinyu He, Ziqiao Li, Chai Ji, Fangfang Li, Jiyang Shen, Tianxin Pan, Xuejing Jin, Yusang Dong, Lidan Hu, Chaochun Zou, Guannan Bai
Summary: The study aimed to assess the health-related quality of life (HRQoL) of children with Williams syndrome (WS) and their caregivers in China and identify the factors influencing their HRQoL. Results showed that the HRQoL of children with WS and their caregivers was significantly lower, with household income and financial burden being important factors. The study calls for attention to the health status and well-being of children with WS and their families, and supports to alleviate psychosocial distress and financial burden.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Public, Environmental & Occupational Health
S. Gunawardana, C. B. Gunasinghe, M. S. Harshani, S. N. Seneviratne
Summary: In Sri Lanka, children with overweight and obesity have lower physical QoL compared to psychosocial QoL. Factors such as higher BMI, bullying, lack of regular exercise, and difficulty finding suitable clothing negatively affect QoL. Promoting regular exercise, addressing bullying, and increasing availability of larger-sized children's clothes could improve QoL for these children.
Article
Clinical Neurology
Amy Pinsent, Georgie Weston, Elisabeth J. Adams, Warren Linley, Neil Hawkins, Matthias Schwenkglenks, Charlotte Hamlyn-Williams, Toby Toward
Summary: Dravet syndrome (DS) is a rare epileptic disorder characterized by frequent and severe seizures, leading to premature mortality. This study examined the relationship between seizure-free days (SFDs) and quality of life (QoL) for patients and their carers. The results showed that increasing SFDs significantly improved QoL for both patients and carers.
NEUROLOGY AND THERAPY
(2023)
Article
Critical Care Medicine
Amira Allahham, Matthew N. Cooper, Mark W. Fear, Lisa Martin, Fiona M. Wood
Summary: This retrospective cohort study investigates the quality of life outcomes in pediatric patients with non-severe burns in Western Australia. The results show that about 16% of children had critically low quality of life scores at three months after the burn, and these scores were influenced by age, socioeconomic status, and burn cause.
Article
Critical Care Medicine
Amira Allahham, Matthew N. Cooper, Enrique Mergelsberg, Mark W. Fear, Lisa J. Martin, Fiona M. Wood
Summary: This study investigated the quality of life assessment of pediatric patients with non-severe burns and found that parents scored lower on psychosocial function for younger and higher socioeconomic status patients compared to their children. Additionally, it was found that there was a significant difference between female patients and their parents' scores in the early recovery cohort, and parents rated older patients lower than themselves in the late recovery cohort. Therefore, age, socioeconomic status, and gender may contribute to the discrepancy in quality-of-life assessments between parents and patients.
Article
Psychology, Multidisciplinary
Kaiyi Zhu, Wei Yang, Zesheng Ying, Yingjie Cai, XiaoJiao Peng, Nijia Zhang, Hailang Sun, Yuanqi Ji, Ming Ge
Summary: This study investigated the long-term quality of life (QoL) of children with cerebellar mutism syndrome (CMS) and identified risk factors for a low QoL. Children with CMS had significantly lower QoL scores compared to those without CMS, and factors such as older age, chemotherapy, and ventriculoperitoneal (VP) shunt placement were associated with lower QoL scores. The study highlights the need for early rehabilitation for CMS patients.
FRONTIERS IN PSYCHOLOGY
(2023)
Article
Immunology
Eline Visser, Pieter Fraaij, Annemieke Hoogenboom, Erica Witkamp, Linda van der Knaap, Annemarie van Rossum, Kim Stol, Clementien Vermont
Summary: This study aims to investigate the prevalence and impact of fatigue in children with PID. The results showed that children with PID had significantly lower scores in all subscales and total scores of the fatigue scale, indicating greater perceived symptoms of fatigue. General fatigue was the most affected subscale, indicating that fatigue in these patients is mainly physical. Child-parent concordance varied.
JOURNAL OF CLINICAL IMMUNOLOGY
(2022)
Article
Neurosciences
Yifeng Ding, Ji Wang, Yuanfeng Zhou, Lifei Yu, Linmei Zhang, Shuizhen Zhou, Yi Wang
Summary: This study is the first large cohort study on quality of life in children with TSC in China. The results indicated that the quality of life of children with TSC is significantly lower than that of healthy controls. TSC2 mutation, epilepsy, early onset, long disease course and high reported seizure frequency, intellectual disability, and TANDs are risk factors for poor quality of life.
CNS NEUROSCIENCE & THERAPEUTICS
(2021)
Article
Behavioral Sciences
Artur Victor Menezes Sousa, Marilia Frota Pinho, Neide Barreira Alonso, Elza Marcia Yacubian, Laura Maria Guilhoto
Summary: The study validated the Brazilian Portuguese version of the QOLCE-55 questionnaire and found it to be reliable and valid for assessing quality of life in children and adolescents with epilepsy. Low quality of life was associated with tonic-clonic seizures, polytherapy, and low socioeconomic conditions, while IQ was positively correlated with quality of life.
EPILEPSY & BEHAVIOR
(2021)
