Review
Health Care Sciences & Services
Mingyu Jiang, Yue Ma, Minghui Li, Rui Meng, Aixia Ma, Pingyu Chen
Summary: There was a difference in health utilities between self and proxy reports in children, and the differences were related to health conditions, valuation methods, and proxy types. Selecting appropriate self and/or proxy-reported health utilities is important for health-related quality of life measurement and economic evaluations.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2021)
Review
Health Care Sciences & Services
Milena Guessi Margarido, Amika Shah, Emily Seto
Summary: Mobile-health applications can provide personalized health information to caregivers of chronically ill adults, but there is a need for further development and expansion in this area.
NPJ DIGITAL MEDICINE
(2022)
Article
Multidisciplinary Sciences
Stefan Nickel, Isabella Helmreich, Jan Broll, Daniel Luedecke
Summary: The goal of this study is to evaluate the effectiveness of a cross-sectoral and cross-service provider called Family Health Partners (FGP) in offering professional support for families with chronically ill and disabled children. The study involves a non-randomized controlled trial with four measurements over 18 months, including 102 families in both intervention and control groups. The primary outcome measure is quality of life, with secondary outcomes focusing on resilience factors, access to care, and associated measures. Longitudinal data will be analyzed using multilevel regression models.
Review
Agriculture, Dairy & Animal Science
Mariessa Long, Christian Duernberger, Florien Jenner, Zsofia Kelemen, Ulrike Auer, Herwig Grimm
Summary: This study analyzes how equine welfare, Quality of Life, well-being, and happiness assessment tools define and attempt to measure these concepts, and discusses their suitability in assessing equine Quality of Life in the context of end-of-life decisions for chronically ill or geriatric horses. Fourteen articles were found describing ten equine welfare assessment tools and one approach to integrating equine Quality of Life in veterinary practice. Some welfare assessment tools have the potential to support the development of a Quality of Life assessment tool for chronically ill or geriatric horses.
Article
Economics
William Furlong, Charlene Rae, David Feeny, Satvinder Ghotra, Vicky R. Breakey, Teresa Carter, Nikhil Pai, Eleanor Pullenayegum, Feng Xie, Ronald Barr
Summary: Health Utilities Preschool (HuPS) was developed as a generic preference-based measure (GPM) for early childhood that incorporates key components of existing measurement systems. HuPS measurements were evaluated for reliability, validity, interpretability, and acceptability and show continuity with the Health Utilities Index Mark 3 (HUI3) scoring, expanding the applicability of GPM to include young children.
Article
Psychology, Multidisciplinary
Susann Kobus, Alexandra M. Buehne, Simone Kathemann, Anja K. Buescher, Elke Lainka
Summary: The study aimed to investigate parents' perceptions of music therapy used with their child during a hospital stay and whether it reduced the child's anxiety and stress. The results showed that music therapy was beneficial and supported children with chronic illnesses during their hospital stay.
BEHAVIORAL SCIENCES
(2023)
Article
Psychology, Multidisciplinary
Merel M. Nap-van der Vlist, Reine C. van der Wal, Eva Grosfeld, Elise M. van de Putte, Geertje W. Dalmeijer, Martha A. Grootenhuis, Cornelis K. van der Ent, Marry M. Van den Heuvel-Eibrink, Joost F. Swart, Guy Bodenmann, Catrin Finkenauer, Sanne L. Nijhof
Summary: The study found that dyadic coping between parents and children is closely related to the quality of life of children, with children and parents influencing each other. Children tend to engage more in stress communication and negative dyadic coping, while parents focus more on problem-oriented and emotion-oriented dyadic coping.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Health Care Sciences & Services
Gabor Ruzsa, Fanni Rencz, Valentin Brodszky
Summary: This study developed an experimental value set for the Dermatology Life Quality Index (DLQI) by examining the relationship between time trade-off (TTO) utility valuations and DLQI severity levels characterizing dermatologically relevant health states. The study found that the social/interpersonal consequences of skin conditions had a larger impact on valuations compared to the physical/practical aspects, and there was significant heterogeneity across DLQI items.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2022)
Article
Pediatrics
Tahir Ahmed Hassen, Catherine Chojenta, Nicholas Egan, Deborah Loxton
Summary: Increased birth weight is associated with a reduced risk of impaired HRQoL, with limited evidence of variability within the normal birth weight range. This study highlights the importance of birth weight in influencing children's health outcomes, particularly in a setting where low birth weight is less common.
Article
Allergy
Audrey Dunn Galvin, Andrea Vereda, Pablo Rodriguez del Rio, Antonella Muraro, Carla Jones, Robert Ryan, David Norval, Jennifer Jobrack, Aikaterini Anagnostou, Julie Wang
Summary: A study evaluated the impact of peanut oral immunotherapy on health-related quality of life in individuals with peanut allergy and found that the therapy had a beneficial effect on improving quality of life during the trials.
CLINICAL AND TRANSLATIONAL ALLERGY
(2022)
Article
Medicine, General & Internal
Karen Y. Chung, Gebremedhin B. Gebretekle, Andrew Howard, Eleanor Pullenayegum, Mekonen Eshete, Christopher R. Forrest, Beate Sander
Summary: This study aimed to elicit utilities for untreated and surgically treated children with CL/P in Ethiopia, considering social determinants of health. The findings suggest that surgical treatment was associated with better HRQOL, and social determinants of health played a role in determining utilities from both patient-proxy and societal perspectives.
Article
Dentistry, Oral Surgery & Medicine
Munevver Kilic, Sevcihan Gunen Yilmaz, Zehra Merve Kockopru
Summary: This study aimed to evaluate the oral health-related quality of life in children with acute lymphocytic leukemia (ALL) and acute myelocytic leukemia (AML). The results showed that chemotherapy and radiotherapy negatively affected oral tissues and organs, leading to significant functional problems in children with ALL/AML.
Article
Urology & Nephrology
Chandana Guha, Anita van Zwieten, Rabia Khalid, Siah Kim, Amanda Walker, Anna Francis, Madeleine Didsbury, Armando Teixeira-Pinto, Belinda Barton, Chanel Prestidge, Emily Lancsar, Fiona Mackie, Joseph Kwon, Kirsten Howard, Kylie-Ann Mallitt, Martin Howell, Allison Jaure, Alison Hayes, Rakhee Raghunandan, Stavros Petrou, Suncica Lah, Steven McTaggart, Jonathan C. Craig, Germaine Wong
Summary: This multi-center longitudinal cohort study aimed to assess the trajectories of health-related quality of life (HRQoL) in children with chronic kidney disease (CKD) over time. The results showed that the HRQoL scores differed between children with different CKD stages, and the transition from dialysis to transplantation was significantly associated with the improvement in HRQoL. Children with CKD stage 1-5 and transplant recipients at baseline had stable HRQoL over time.
KIDNEY INTERNATIONAL
(2023)
Article
Medicine, General & Internal
Kaley Butten, Lee Jones, Peter A. Newcombe, Anne B. Chang, Jeanie K. Sheffield, Kerry-Ann F. O'Grady, Newell W. Johnson, Anna Maria Bell, Greggory Ross, Maree Toombs
Summary: This study aimed to develop and validate a culturally specific parent-proxy HR-QoL measurement tool for First Nations children. The tool was well-received by participants, showed good reliability, and demonstrated convergent validity with comparison measures.
Article
Otorhinolaryngology
Ellen Andries, Annick Gilles, Vedat Topsakal, Olivier Vanderveken, Paul Van de Heyning, Vincent Van Rompaey, Griet Mertens
Summary: The study found that HRQoL scores measured with HUI significantly improved after cochlear implantation in users aged 55 and older, but the multi-attribute scores remained worse than those of the control group. Vestibular loss was significantly related to decreases in HUI multi-attribute and emotion scores.
EUROPEAN ARCHIVES OF OTO-RHINO-LARYNGOLOGY
(2022)