Article
Public, Environmental & Occupational Health
Aqeel Nasim, Noman Ul Haq, Sohail Riaz, Sumaira Irum Khan, Fazli Khuda, Muhammad Faraz Sipra, Bazil Tariq, Maria Tahir, Muhammad Saood, Riffat Yasmin, Kiran Manzoor, Muhammad Zeeshan Danish
Summary: This study aimed to evaluate the health-related quality of life (HRQoL) for the general population of Pakistan. The results showed that age, city, gender, education, occupation, residence, and house occupancy significantly affected HRQOL. Socioeconomically deprived groups and females had inferior health status compared to more advantaged groups. Similar trends were observed compared to high-income nations.
FRONTIERS IN PUBLIC HEALTH
(2022)
Article
Health Care Sciences & Services
Hadeel R. Bakhsh, Nouf S. Aldajani, Bodor Bin Sheeha, Monira I. Aldhahi, Atheer A. Alsomali, Ghada K. Alhamrani, Rahaf Z. Alamri, Rehab Alhasani
Summary: This study translated and validated the Arabic version of the PROMIS General Life Satisfaction Short Form (GLS SF5a) in the general population of Saudi Arabia. The findings confirmed the satisfactory psychometric properties of the Arabic version, indicating its usefulness as a tool for measuring general life satisfaction. Further research is needed to explore its responsiveness and feasibility in clinical settings.
Article
Health Care Sciences & Services
Janel Hanmer
Summary: This study aimed to evaluate the association between self-rated health and PROMIS scores with social determinants of health, finding that PROMIS was more effective in detecting the impact of social determinants on health-related quality of life.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2021)
Article
Health Care Sciences & Services
Michiel A. J. Luijten, Raphaele R. L. van Litsenburg, Caroline B. Terwee, Martha A. Grootenhuis, Lotte Haverman
Summary: This study validated the PROMIS Pediatric item bank v2.0 Peer Relationships for the Dutch population and compared its efficiency with other measures, showing that the computerized adaptive test outperformed others in efficiency.
QUALITY OF LIFE RESEARCH
(2021)
Article
Economics
Christoph Paul Klapproth, Christopher J. Sidey-Gibbons, Jose Martinez Valderas, Matthias Rose, Felix Fischer
Summary: This study aimed to compare the psychometric properties of PROPr and EQ-5D-5L using data from three countries. The results showed that both PROPr and EQ-5D-5L have high validity, but PROPr yields considerably lower HSU values.
Review
Health Care Sciences & Services
Eva-Grethe Befus, Solvi Helseth, Eirin Molland, Thomas Westergren, Liv Fegran, Kristin Haraldstad
Summary: The purpose of this study was to map the use of KIDSCREEN instruments in the general population of children and adolescents. The study found that KIDSCREEN is widely used in cross sectional studies, mainly conducted in Europe. The studies mainly focus on mental health, physical activity, socioeconomic status, and obesity, reflecting common public health challenges.
HEALTH AND QUALITY OF LIFE OUTCOMES
(2023)
Article
Public, Environmental & Occupational Health
Hirono Ishikawa, Mio Kato, Takahiro Kiuchi
Summary: During the COVID-19 pandemic, general health literacy and health-related quality of life (HRQOL) decreased significantly in the Japanese general population, especially among women and those with lower economic status. Higher general health literacy may play a crucial role in attenuating the decline in HRQOL. Further research is needed to explore the relationship between health literacy and HRQOL.
Article
Substance Abuse
Carolina Barbosa, Jeremy W. Bray, William N. Dowd, Alan Barnosky, Eve Wittenberg
Summary: This study estimated US population health utilities based on alcohol use disorder (AUD) status and consumption levels, finding that higher alcohol consumption risk levels are associated with lower health index scores for the general population and individuals with a history of alcohol use disorder.
Article
Health Care Sciences & Services
Nikolaos Kontodimopoulos, Effimia Poulaki, John Fanourgiakis, Michael A. Talias
Summary: This cross-sectional study aimed to assess the level of fear related to the SARS-CoV-2 virus and its association with health-related quality of life (HRQoL) in the Greek population. The study found that females, individuals with comorbidities, those with contacts with comorbidities, and individuals not having caught COVID-19 expressed more fear of COVID-19. On the other hand, unvaccinated individuals and those with less frequent intake of information about the pandemic expressed less fear. Fear of COVID-19 was the most important predictor of both physical and mental HRQoL.
JOURNAL OF PERSONALIZED MEDICINE
(2022)
Article
Public, Environmental & Occupational Health
Samuel Tomczyk, Laura Altweck, Silke Schmidt
Summary: This study used latent profile analysis to identify six patterns of daily time use, revealing lower wellbeing scores in the care and part-time work & care profiles. Women were more likely to be in the care and childcare profiles, while men were more likely to belong to the full-time work profile and reported higher wellbeing than women.
Article
Neurosciences
Aung Zaw Zaw Phyo, David A. Gonzalez-Chica, Nigel P. Stocks, Elsdon Storey, Robyn L. Woods, Anne M. Murray, Suzanne G. Orchard, Raj C. Shah, Danijela Gasevic, Rosanne Freak-Poli, Joanne Ryan
Summary: In this study, higher Health-related quality of life (HRQoL), particularly the mental component scores (MCS), was associated with better cognition. Over time, higher MCS predicted a reduced risk of cognitive decline and dementia.
JOURNAL OF ALZHEIMERS DISEASE
(2021)
Article
Health Care Sciences & Services
Christoph Paul Klapproth, Felix Fischer, Matthias Rose, Maria Margarete Karsten
Summary: By comparing QLU-C10D and PROPr in breast cancer patients, it was found that these two scores measure HSU differently, and the choice between them should be informed by context and population needs.
JOURNAL OF CLINICAL EPIDEMIOLOGY
(2022)
Article
Multidisciplinary Sciences
Audun Brunes, Marianne B. Hansen, Trond Heir
Summary: The study found that individuals with visual impairment have higher levels of general self-efficacy compared to the general population, possibly due to extensive mastery experience in managing life as visually impaired. Additionally, there is a linear relationship between self-efficacy and life satisfaction, with higher education and living in urban municipalities associated with higher self-efficacy, while having additional impairments or a history of physical or sexual assaults linked to lower self-efficacy.
Article
Health Care Sciences & Services
Marloes E. Clarijs, Lindy M. Kregting, Nicolien T. van Ravesteyn, Linetta B. Koppert, Ida J. Korfage
Summary: This study estimated EQ-5D-5L normative utility scores in a population of Dutch females, stratified by age, and compared them to female populations of three other countries. The results showed that the mean normative utility scores in Dutch females were generally higher compared to other female populations except for older age groups.
QUALITY OF LIFE RESEARCH
(2023)
Article
Medicine, General & Internal
Maryam Shirvani Shiri, Hassan Karami, Hosein Ameri, Ali Akbari Sari, Maryam Tatari, Sara Emamgholipour, Somayeh Afshari
Summary: This study aimed to evaluate the health-related quality of life (HRQoL) and its associated factors among the Iranian general population during the COVID-19 pandemic. The findings showed that a significant percentage of participants (53.7%) experienced psychological problems during the pandemic. Effective interventions are essential to improve the quality of life of these vulnerable groups in society.
FRONTIERS IN MEDICINE
(2023)
Article
Medicine, General & Internal
Michael S. Dunbar, Anthony Rodriguez, Maria O. Edelen, Ron D. Hays, Ian D. Coulter, Daniel Siconolfi, Patricia M. Herman
Summary: This study examines the association between psychological symptoms and the Impact Stratification Score (ISS) in military service members with chronic low back pain. The results show that psychological symptoms are positively correlated with the ISS and can predict its changes. The ISS may be associated with future anxiety and the PROMIS-29 anxiety and depression items can be useful in supporting treatment planning and monitoring.
Article
Health Care Sciences & Services
John Devin Peipert, Ron D. Hays, David Cella
Summary: This study investigated the relationship between statistical significance and meaningfulness of individual change on a patient-reported outcome measure. By varying the confidence levels, the study found that the coefficient of repeatability at 50% and 68% confidence improved the classification accuracy of patient change compared to the 95% confidence level.
QUALITY OF LIFE RESEARCH
(2023)
Article
Health Care Sciences & Services
Nate Orr, Alan M. Zaslavsky, Ron D. Hays, Paul D. Cleary, Amelia M. Haviland, Julie A. Brown, Jacob W. Dembosky, Steven C. Martino, Sarah Gaillot, Marc N. Elliott
Summary: The Medicare CAHPS surveys collect standardized information about patient experiences to monitor care quality and promote high quality patient-centered care. The surveys have evolved over time to address expanded coverage options and improve survey participation, especially among non-English speakers. Managing and evolving a large annual national survey like this presents challenges and requires adaptation to changes in healthcare delivery.
HEALTH SERVICES AND OUTCOMES RESEARCH METHODOLOGY
(2023)
Article
Rehabilitation
Ron D. Hays, Nabeel Qureshi, Maria Edelen, Anthony Rodriguez, Mary Slaughter, Patricia M. Herman
Summary: This study aims to compare the proposed Impact Stratification Score (ISS) by the National Institutes of Health (NIH) Pain Consortium with the PEG (Pain Intensity, Interference With Enjoyment of Life, Interference With General Activity) Scale. The results show a strong correlation between ISS and PEG, indicating high predictability between the two measures.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2023)
Review
Clinical Neurology
Patricia M. Herman, Nabeel Qureshi, Susan D. Arick, Maria O. Edelen, Ron D. Hays, Anthony Rodriguez, Rebecca L. Weir, Ian D. Coulter
Summary: The definition of chronic low back pain (CLBP) varies among researchers and individuals. Recent RCTs mainly define CLBP by duration, while individuals often define it by frequency. Only about 6% of recent RCTs followed the RTF definition. Healthcare provider diagnosis is not a defining characteristic for CLBP. Researchers should be aware of these variations to better select study criteria.
Article
Public, Environmental & Occupational Health
Victor L. Rodriguez, Baruch Fischhoff, Alexander L. Davis
Summary: The movie industry developed guidelines for returning to operation after the COVID-19 pandemic and used heatmaps to communicate the risks to workers. The study found that these heatmaps effectively conveyed complex risk information to lay audiences, but faced challenges when applied to complex settings.
Article
Psychology, Applied
Caitlin Drummond Otten, Baruch Fischhoff
Summary: Scientific reasoning ability can help individuals use scientific evidence in making judgments and decisions. This study found that individuals with greater scientific reasoning ability are better calibrated with respect to their ability. Additionally, scientific reasoning ability is associated with success in avoiding negative decision outcomes and holding beliefs consistent with the scientific consensus.
JOURNAL OF BEHAVIORAL DECISION MAKING
(2023)
Article
Health Care Sciences & Services
Aaron J. Chau, Rebecca L. Sudore, Ron D. Hays, Chi-Hong Tseng, Anne M. Walling, Maryam Rahimi, Lisa Gibbs, Kanan Patel, Fernando Javier Sanz Vidorreta, Neil S. Wenger
Summary: This study aimed to assess the effect of phone outreach, in addition to standard mail survey recruitment, in a population-based ACP pragmatic trial at three academic health systems in California. The results showed that phone outreach significantly enhanced the recruitment of underrepresented seriously ill patients, which is important for addressing the issue of representativeness in research.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2023)
Article
Health Care Sciences & Services
Denise D. Quigley, Marc N. Elliott, Mary E. Slaughter, Efrain Talamantes, Ron D. Hays
Summary: Shadow coaching improves provider-patient interactions, but these improvements erode over time. Re-coaching can improve patient experience better than initial coaching, but the gains from re-coaching also erode. Coaching should occur every 6 to 12 months to maintain behaviors and scores.
JOURNAL OF GENERAL INTERNAL MEDICINE
(2023)
Article
Obstetrics & Gynecology
Marlyse F. F. Haward, John M. M. Lorenz, Annie Janvier, Baruch Fischhoff
Summary: This study aims to analyze and compare perspectives on antenatal consultation and decision-making from participants with different levels of prematurity experience and clinician experts. Open-ended interviews were conducted and mixed methods analysis was used. The results showed that non-clinician participants had different views on the amount and content of desired information, decision-making strategies, and who should direct consultations, parents or clinicians.
JOURNAL OF PERINATOLOGY
(2023)
Correction
Health Care Sciences & Services
John Devin Peipert, Ron D. Hays, David Cella
QUALITY OF LIFE RESEARCH
(2023)
Article
Health Care Sciences & Services
Paula J. Belson, Nancy A. Pike, Jo-Ann Eastwood, Mary-Lynn Brecht, Jesse L. Berry, Ron D. Hays
Summary: The purpose of this study was to compare the vision-related quality of life (VRQOL) in adolescent and young adult unilateral and bilateral retinoblastoma (RB) survivors. The study found that bilateral RB survivors reported significantly worse VRQOL compared to unilateral survivors. This highlights the need for more attention and support for bilateral cases.
QUALITY OF LIFE RESEARCH
(2023)
Article
Biochemistry & Molecular Biology
Steven Woloshin, Yanran Yang, Baruch Fischhoff
Summary: Well-designed visual displays have the power to effectively convey health messages to non-experts, while poorly designed ones can confuse and alienate recipients. This Perspective proposes a structured framework for effective visual communication of health information, using case examples and practical evaluation methods. The framework is grounded in research and experience in health risk communication, visualization, and decision science.
Editorial Material
Pediatrics
Denise D. D. Quigley, Mary Ellen Slaughter, Ron D. D. Hays
PEDIATRIC QUALITY & SAFETY
(2023)
Article
Economics
Hanzelle Kleeman, Baruch Fischhoff, Daniel Erian Armanios
Summary: Researchers modified a behavior change model to understand decision-making of low-income residents regarding energy efficiency programs, and developed a more informative communication framework. Testing the framework by redesigning web pages, the study found that the change improved low-income respondents' assessment, increased their intentions to apply for and complete the program. These findings have practical implications for organizations and policymakers aiming to increase participation in energy efficiency programs.
