Stakeholder engagement in policy development: challenges and opportunities for human genomics

Attitudes of Genetics Professionals Toward the Return of Incidental Results from Exome and Whole-Genome Sequencing

(2014) Joon-Ho Yu et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Evidence synthesis and guideline development in genomic medicine: current status and future prospects

(2014) Sheri D. Schully et al.   GENETICS IN MEDICINE

Community Engagement in US Biobanking: Multiplicity of Meaning and Method

(2014) K.M. Haldeman et al.   Public Health Genomics

Nothing About Us Without Us: Guidelines for Genetic Testing

(2013) Sharon F. Terry et al.   Genetic Testing and Molecular Biomarkers

Don't Just Invite Us to the Table: Authentic Community Engagement

(2013) Sharon F. Terry   Genetic Testing and Molecular Biomarkers

Recommendations for returning genomic incidental findings? We need to talk!

(2013) Wylie Burke et al.   GENETICS IN MEDICINE

The EGAPP initiative: lessons learned

(2013)   GENETICS IN MEDICINE

Paternalism and the ACMG recommendations on genomic incidental findings: patients seen but not heard

(2013) Anne Townsend et al.   GENETICS IN MEDICINE

What does it mean to be genomically literate?: National Human Genome Research Institute Meeting Report

(2013) Belen Hurle et al.   GENETICS IN MEDICINE

How The Patient-Centered Outcomes Research Institute Is Engaging Patients And Others In Shaping Its Research Agenda

(2013) Rachael Fleurence et al.   HEALTH AFFAIRS

Patient And Family Engagement: A Framework For Understanding The Elements And Developing Interventions And Policies

(2013) Kristin L. Carman et al.   HEALTH AFFAIRS

Mandatory Extended Searches in All Genome Sequencing

(2013) Lainie Friedman Ross et al.   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Deal done over HeLa cell line

(2013) Ewen Callaway   NATURE

Premature guidance about whole-genome sequencing

(2013) Lainie Friedman Ross et al.   Personalized Medicine

Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing

(2013) Megan Allyse et al.   TRENDS IN BIOTECHNOLOGY

Characterizing biobank organizations in the U.S.: results from a national survey

(2013) Gail E Henderson et al.   Genome Medicine

Managing the Introduction of Biobanks to Potential Participants: Lessons from a Deliberative Public Forum

(2012) Kieran O'Doherty et al.   BIOPRESERVATION AND BIOBANKING

Parents: Critical Stakeholders in Expanding Newborn Screening

(2012) Lainie Friedman Ross et al.   JOURNAL OF PEDIATRICS

Shared Decision Making — The Pinnacle of Patient-Centered Care

(2012) Michael J. Barry et al.   NEW ENGLAND JOURNAL OF MEDICINE

Michigan BioTrust for Health: Public Support for Using Residual Dried Blood Spot Samples for Health Research

(2012) D. Duquette et al.   Public Health Genomics

Committee report: Considerations and recommendations for national guidance regarding the retention and use of residual dried blood spot specimens after newborn screening

(2011) Bradford L Therrell et al.   GENETICS IN MEDICINE

Newborn screening: A spot of trouble

(2011) Mary Carmichael   NATURE

Genome-Based Health Literacy: A New Challenge for Public Health Genomics

(2011) E.V. Syurina et al.   Public Health Genomics

How Best To Engage Patients, Doctors, And Other Stakeholders In Designing Comparative Effectiveness Studies

(2010) Ari Hoffman et al.   HEALTH AFFAIRS

The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples

(2010) Michelle M. Mello et al.   NEW ENGLAND JOURNAL OF MEDICINE

Why Guideline-Making Requires Reform

(2009) Allan D. Sniderman   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

The Next Step in Guideline Development

(2008)   JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION

Developing Stakeholder Involvement for Introducing Public Health Genomics into Public Policy

(2008) H. Burton et al.   Public Health Genomics