The Right to Know: A Revised Standard for Reporting Incidental Findings

Recommendations for reporting of secondary findings in clinical exome and genome sequencing, 2016 update (ACMG SF v2.0): a policy statement of the American College of Medical Genetics and Genomics

(2016) Sarah S. Kalia et al.   GENETICS IN MEDICINE

Oncologists’ and cancer patients’ views on whole-exome sequencing and incidental findings: results from the CanSeq study

(2016) Stacy W. Gray et al.   GENETICS IN MEDICINE

Freedom of Choice About Incidental Findings Can Frustrate Participants' True Preferences

(2015) Jennifer Viberg et al.   BIOETHICS

Research participants in NGS studies want to know about incidental findings

(2015) Anne Marie Jelsig et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

When Should Genome Researchers Disclose Misattributed Pahentage?

(2015) Amulya Mandava et al.   HASTINGS CENTER REPORT

Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research

(2015) T. Ploug et al.   BMJ-British Medical Journal

Meta consent: a flexible and autonomous way of obtaining informed consent for secondary research

(2015) T. Ploug et al.   BMJ-British Medical Journal

Autonomy, the Right Not to Know, and the Right to Know Personal Research Results: What Rights are There, and Who Should Decide about Exceptions?

(2015) Gert Helgesson   JOURNAL OF LAW MEDICINE & ETHICS

The “Right Not to Know” in the Genomic Era: Time to Break From Tradition?

(2014) Benjamin E. Berkman et al.   AMERICAN JOURNAL OF BIOETHICS

Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings?

(2013) Catherine Gliwa et al.   AMERICAN JOURNAL OF BIOETHICS

ACMG recommendations for reporting of incidental findings in clinical exome and genome sequencing

(2013) Robert C. Green et al.   GENETICS IN MEDICINE

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases

(2013) Erika Kleiderman et al.   JOURNAL OF MEDICAL ETHICS

Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing

(2013) Megan Allyse et al.   TRENDS IN BIOTECHNOLOGY

“I want to know what's in Pandora's box”: Comparing stakeholder perspectives on incidental findings in clinical whole genomic sequencing

(2012) Anne Townsend et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

The Meaning of Genetic Research Results: Reflections from Individuals with and without a Known Genetic Disorder

(2012) R. Jean Cadigan et al.   Journal of Empirical Research on Human Research Ethics

Researcher Perspectives on Disclosure of Incidental Findings in Genetic Research

(2010) Meredith C. Meacham et al.   Journal of Empirical Research on Human Research Ethics

Public Expectations for Return of Results from Large-Cohort Genetic Research

(2008) Juli Murphy et al.   AMERICAN JOURNAL OF BIOETHICS

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

(2008) Susan M. Wolf et al.   JOURNAL OF LAW MEDICINE & ETHICS