“I don’t want to be Henrietta Lacks”: diverse patient perspectives on donating biospecimens for precision medicine research

Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research

(2018) Stephanie A. Kraft et al.   AMERICAN JOURNAL OF BIOETHICS

Metaphors matter: from biobank to a library of medical information

(2017) Mildred K Cho et al.   GENETICS IN MEDICINE

A Flawed Revision of the Common Rule

(2016) Steven Joffe et al.   ANNALS OF INTERNAL MEDICINE

The Precision Medicine Initiative’s All of Us Research Program: an agenda for research on its ethical, legal, and social issues

(2016) Pamela L. Sankar et al.   GENETICS IN MEDICINE

Confronting Biospecimen Exceptionalism in Proposed Revisions to the Common Rule

(2016) Holly Fernandez Lynch et al.   HASTINGS CENTER REPORT

Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking

(2015) Yann Joly et al.   PLoS One

Perspectives on barriers and facilitators to minority recruitment for clinical trials among cancer center leaders, investigators, research staff, and referring clinicians: Enhancing minority participation in clinical trials (EMPaCT)

(2014) Raegan W. Durant et al.   CANCER

A Systematic Review of Barriers and Facilitators to Minority Research Participation Among African Americans, Latinos, Asian Americans, and Pacific Islanders

(2013) Sheba George et al.   AMERICAN JOURNAL OF PUBLIC HEALTH

Storage and use of residual newborn screening blood spots: A public policy emergency

(2011) Beth A Tarini   GENETICS IN MEDICINE

Identifiability in biobanks: models, measures, and mitigation strategies

(2011) Bradley Malin et al.   HUMAN GENETICS

The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic Samples

(2010) Michelle M. Mello et al.   NEW ENGLAND JOURNAL OF MEDICINE

Public Opinion about the Importance of Privacy in Biobank Research

(2009) David J. Kaufman et al.   AMERICAN JOURNAL OF HUMAN GENETICS

Patients' Views on Identifiability of Samples and Informed Consent for Genetic Research

(2008) Sara Chandros Hull et al.   AMERICAN JOURNAL OF BIOETHICS

Resolving Individuals Contributing Trace Amounts of DNA to Highly Complex Mixtures Using High-Density SNP Genotyping Microarrays

(2008) Nils Homer et al.   PLoS Genetics