Article
Health Care Sciences & Services
Jose Pereira, Lynn Meadows, Dragan Kljujic, Tina Strudsholm, Henrique Parsons, Brady Riordan, Jonathan Faulkner, Kathryn Fisher
Summary: This study aimed to explore the learning experience of learners from different professions who participated in the Learning Essential Approaches to Palliative Care Core courses. The results showed that the majority of learners agreed that the course was relevant to their practice, with some differences observed among different profession groups. Curriculum design should be tailored to meet the specific learning needs of different professions.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Review
Microbiology
Mohamed H. Ahmed, Fatima Ahmed, Abu-Bakr Abu-Median, Maria Panourgia, Henry Owles, Bertha Ochieng, Hassan Ahamed, Jane Wale, Benjamin Dietsch, Dushyant Mital
Summary: The increasing number of older people living with HIV (OPLWH) in the UK is a result of improved healthcare services and the effectiveness of combined antiretroviral therapy (cART). These OPLWH face similar health issues as the general aging population, including cardiovascular disease, infections, and cancer. They also require comprehensive medical and psychosocial care.
Article
Nursing
Kyung-Ah Kang, Jiyoung Chun, Hyun Yong Kim, Hyeon-Young Kim
Summary: The study indicates that understanding and providing spiritual care is essential for nurses, but many lack a clear understanding, highlighting the need for enhanced training and education in spiritual care competence.
JOURNAL OF CLINICAL NURSING
(2021)
Article
Health Care Sciences & Services
Tamara Vesel, Meaghan O'Connor, Linda Vesel, Christiana Beveridge, Carolyn McGann, Sophie Jullien, Yoriko Nishizawa
Summary: This study assessed the impact of a pediatric palliative care (PPC) workshop on healthcare providers' self-efficacy, comfort, and confidence in a Bhutanese hospital. The results showed that the workshop significantly increased providers' comfort levels and confidence in providing PPC.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2022)
Article
Health Care Sciences & Services
Elizabeth J. Adams, David Tallman, Marcy L. Haynam, Larissa Nekhlyudov, Maryam B. Lustberg
Summary: This study presents a unique methodology to analyze the psychosocial experiences of survivors of gynecological cancer using large amounts of data from internet-based platforms. The study found that survivors frequently discussed the role of friends and family in care, fatigue, the effect of cancer on interpersonal relationships, and health insurance status. The findings contribute valuable insights into the experiences of patients and can be applied to other patient populations.
JOURNAL OF MEDICAL INTERNET RESEARCH
(2022)
Article
Medicine, General & Internal
Andy Bradshaw, Martina Santarelli, Assem M. Khamis, Kathryn Sartain, Miriam Johnson, Jason Boland, Mark Pearson, Fliss E. M. Murtagh
Summary: This study aims to explore the mechanisms by which the RESOLVE Implementation Strategy supports the implementation of outcome measures in palliative care practice. A multistrand, mixed-methods process evaluation will be conducted, including data collection, surveys, and interviews. The findings of this research will contribute to improving the consistent use of outcome measures in palliative care practice.
Article
Health Care Sciences & Services
Maddy French, Thomas Keegan, Nancy Preston
Summary: This study investigates the relationship between social deprivation and access to hospice care. The findings suggest that the model of hospice care, the working relationship with hospitals, and the local nature of social deprivation can influence access. Circumstances associated with social deprivation may conflict with professional expectations.
PALLIATIVE MEDICINE
(2023)
Article
Surgery
Josh Bleicher, Aubrey Place, Sarah Schoenhals, Carolyn L. Luppens, Joanna Grudziak, Laura A. Lambert, Marta L. McCrum
Summary: Moral distress in the surgical intensive care unit providers is mainly driven by participating in perceived futile aggressive care and caring for patients with unclear treatment goals. Improving access to palliative care for early communication is recommended by providers to decrease moral distress among staff.
JOURNAL OF SURGICAL RESEARCH
(2021)
Article
Multidisciplinary Sciences
Sven Schwabe, Christoph Buck, Franziska Herbst, Tanja Schleef, Stephanie Stiel, Nils Schneider
Summary: The HOPAN study aims to identify regional hospice and palliative care networks in Germany, analyze these networks, and propose development recommendations. The study findings are expected to improve the overall development of hospice and palliative care services.
Article
Oncology
Masoud Bahrami, Masoumeh Masoumy, Alireza Sadeghi, Rohallah Mosavizadeh
Summary: This study aims to develop and evaluate a holistic palliative care program for colorectal cancer (CRC) patients to improve their quality of life. The program will be developed through qualitative research, literature review, and expert panel opinions. It will be implemented as an intervention to evaluate its impact on quality of life. The results of this study are important for CRC patients and their families in Iran and can contribute to care, education, and policy-making.
Article
Medicine, General & Internal
Anna Bolzani, Christina Ramsenthaler, Farina Hodiamont, Isabel Sophie Burner-Fritsch, Claudia Bausewein
Summary: Patient-reported outcome measures have been developed to understand the patient's perspective in palliative care. This study aims to develop and test the feasibility of implementing an electronic version of IPOS in specialized palliative home care. The study will utilize both qualitative and quantitative methods to explore barriers and facilitators of eIPOS implementation.
Article
Integrative & Complementary Medicine
Katherine Pryde, Natasha Brusco, Clare O'Callaghan, Angela Baird, Ronna Moore, Jennifer White, Caitlin Bull, Annemarie L. Lee, Natasha Michael
Summary: This study aimed to explore the feasibility, acceptance, and experiences of caregiver massage therapy in palliative care. The results showed that caregiver massage training is feasible, but healthcare professionals perceived it as potentially burdensome for caregivers.
COMPLEMENTARY THERAPIES IN CLINICAL PRACTICE
(2022)
Article
Public, Environmental & Occupational Health
Svenja Hummel, Ina Michelsen, Ali Zafar, Steffen Moritz, Charles Benoy, Cedric Lemogne, Rosa Almeida, Raquel Losada, Oscar Ribeiro, Vincenza Frisardi, Ilaria Tarricone, Silvia Ferrari, Frieder Dechent, Christian G. Huber, Steffi Weidt, Gwendolyn Mayer, Jobst-Hendrik Schultz
Summary: The COVID-19 pandemic has had a severe impact on the lives and work conditions of Europeans, especially healthcare professionals. This study aimed to examine the job-related stressors and coping strategies of physicians, nurses, and nonmedical staff during the pandemic. The results revealed the most significant stressors and common coping strategies for healthcare professionals in two periods. Additionally, the study identified the psychosocial stressors and unmet needs of individuals.
JMIR PUBLIC HEALTH AND SURVEILLANCE
(2023)
Article
Public, Environmental & Occupational Health
Ndinda Makina-Zimalirana, Melanie Bisnauth, Nosipho Shangase, Natasha Davies, Anele Jiyane, Fezile Buthelezi, Kate Rees
Summary: This study examined levels of burnout among healthcare workers providing HIV-related services in primary care settings in Johannesburg, South Africa. The survey findings revealed high rates of emotional exhaustion and low professional accomplishment among participants. Qualitative findings showed that high workload, inadequate mental health support, and challenging relationships with stakeholders negatively affected the well-being of the healthcare workers. However, finding meaning in their work, working as a team, and practicing autonomy were identified as resources that reduced the negative effects of these demands.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Medicine, General & Internal
Hsiao-Ting Chang, Ming-Hwai Lin, Wen-Hua Kuo, Chun-Ku Chen, Tzeng-Ji Chen, Shinn-Jang Hwang
Summary: About half of the primary care staff surveyed were willing to participate in compassionate community education and network and palliative care education, but only 19.5% were willing to provide palliative care. Primary care nurses showed significantly more willingness than other staff to participate in education and care provision, while physicians were significantly less willing to participate. The main barriers identified were capability, administrative and manpower concerns, time, age, and motivation.
Article
Health Care Sciences & Services
Katherine E. Sleeman, Rachel L. Cripps, Fliss E. M. Murtagh, Adejoke O. Oluyase, Mevhibe B. Hocaoglu, Matthew Maddocks, Catherine Walshe, Nancy Preston, Lesley Dunleavy, Andy Bradshaw, Sabrina Bajwah, Irene J. Higginson, Lorna K. Fraser
Summary: The study identified factors associated with increased busyness in palliative care services during the Covid-19 pandemic. Providing community care and publicly managed services were better able to respond to escalating needs. Staff shortages, homecare services, nursing care at home, Covid-19 cases, and publicly managed services were all associated with increased busyness in the services.
JOURNAL OF PALLIATIVE MEDICINE
(2022)
Article
Medicine, General & Internal
Andy Bradshaw, Lesley Dunleavy, Ian Garner, Nancy Preston, Sabrina Bajwah, Rachel Cripps, Lorna K. Fraser, Matthew Maddocks, Mevhibe Hocaoglu, Fliss E. M. Murtagh, Adejoke O. Oluyase, Katherine E. Sleeman, Irene J. Higginson, Catherine Walshe
Summary: This study explores the experiences and impact of palliative care staff working during the COVID-19 pandemic. The findings reveal that infection control constraints hindered the ability of staff to provide care aligned with their core values, resulting in moral distress. Despite organizational and team support, the prolonged management of these constraints led to cumulative impacts of moral distress and sometimes burnout. Solidarity with colleagues and making valued contributions provided some moral comfort.
JOURNAL OF THE ROYAL SOCIETY OF MEDICINE
(2022)
Article
Health Care Sciences & Services
Joanne Bayly, Andy Bradshaw, Lucy Fettes, Muhammed Omarjee, Helena Talbot-Rice, Catherine Walshe, Katherine E. Sleeman, Sabrina Bajwah, Lesley Dunleavy, Mevhibe Hocaoglu, Adejoke Oluyase, Ian Garner, Rachel L. Cripps, Nancy Preston, Lorna K. Fraser, Fliss E. M. Murtagh, Irene J. Higginson, Matthew Maddocks
Summary: This study found that rehabilitation services in palliative care during the Covid-19 pandemic mostly shifted to remote provision, with many team members being on sick leave, redeployed, or furloughed. Free text responses were categorized into four themes showing how rehabilitation services adapted and reconfigured to the challenges posed by Covid-19, affecting both clinicians' and patients' capacity to participate in rehabilitation programs.
PALLIATIVE MEDICINE
(2022)
Article
Respiratory System
Deokhee Yi, Charles C. Reilly, Gao Wei, Irene J. Higginson
Summary: This study found that breathlessness services were cost-effective compared to usual care, resulting in cost savings and improved quality of life. Additionally, tailoring service attributes to individual preferences increased the uptake of these services.
Article
Medicine, General & Internal
Adam McDermott, Claire A. Woodall, Charlotte Chamberlain, Lucy Selman, Lucy Victoria Pocock
Summary: This study aims to investigate the implementation of the ReSPECT program in the UK during the COVID-19 pandemic and analyze the clinical recommendations and outcomes for patients. The findings of this study will contribute to the evidence base on the equity and potential benefits of implementing the ReSPECT program.
Review
Multidisciplinary Sciences
Susannah Martin, Charlotte Chamberlain, Alison Rivett, Lucy E. Selman
Summary: The evaluation of public engagement health festivals is important, but there has been no comprehensive synthesis of its practice. This systematic review found that higher quality studies had specific evaluation aims, used a wider variety of evaluation methods, and had independent evaluation teams. However, the sample profiles for evaluation often had gender bias and were not ethnically representative. Patient involvement in event delivery supported learning and engagement.
Article
Health Care Sciences & Services
Tushti Bhardwaj, Rachel L. Chambers, Harry Watson, Irene J. Srividya, Irene J. Higginson, Mevhibe B. Hocaoglu
Summary: This study aimed to translate and culturally adapt the Integrated Palliative Care Outcome Scale (IPOS) into Hindi. Through a standardized methodology, the Hindi IPOS was developed and found to have face and content validity for clinical practice and research. The availability of the Hindi IPOS has implications beyond Indian palliative care settings, as it provides millions of Hindi speakers with a tool to communicate their palliative care needs in their mother tongue.
PALLIATIVE MEDICINE
(2023)
Article
Health Care Sciences & Services
Lucy E. Selman, Eileen Sutton, Renata Medeiros Mirra, Tracey Stone, Emma Gilbert, Yansie Rolston, Karl Murray, Mirella Longo, Kathy Seddon, Alison Penny, Catriona R. Mayland, Donna Wakefield, Anthony Byrne, Emily Harrop
Summary: Voluntary and community sector bereavement services are crucial for bereavement support in the UK. However, many needs were not met, particularly among minority ethnic, sexual minority, deprived, and male groups before and during the COVID-19 pandemic. The pandemic had a disproportionate impact on minority ethnic communities, leading to disrupted care and mourning practices. While online provision improved access, it also excluded certain individuals. Positive interventions, such as collecting demographic data and improving outreach and language accessibility, can help address these inequities in accessing bereavement support.
PALLIATIVE MEDICINE
(2023)
Letter
Respiratory System
Natasha Lovell, Simon N. Etkind, Joanna M. Davies, Wendy Prentice, Irene J. Higginson, Katherine E. Sleeman
EUROPEAN RESPIRATORY JOURNAL
(2023)
Article
Health Care Sciences & Services
Javiera Leniz, Joanna M. Davies, Anna E. Bone, Mevhibe Hocaoglu, Julia Verne, Stephen Barclay, Fliss E. M. Murtagh, Lorna K. Fraser, Irene J. Higginson, Katherine E. Sleeman
Summary: The number and proportion of home deaths in the UK increased during the Covid-19 pandemic, with evidence of socioeconomic inequality. The increase in home deaths was lowest for people living in the most deprived areas, showing a deprivation gradient. Further research is needed to understand the reasons for this change and if the inequality has been sustained. Overall rating: 7 points.
PALLIATIVE MEDICINE
(2023)
Review
Respiratory System
Claire M. Nolan, Lisa Jane Brighton, Yihan Mo, Joanne Bayly, Irene J. Higginson, William D. -C. Man, Matthew Maddocks
Summary: This systematic review examined the effect of meditative movement on breathlessness, quality of life, exercise capacity, functional performance, and psychological symptoms in advanced disease. The results showed that meditative movement did not improve breathlessness, quality of life, or exercise capacity in people with advanced COPD or cancer.
EUROPEAN RESPIRATORY REVIEW
(2023)
Article
Respiratory System
Charles C. Reilly, Matthew Maddocks, Trudie Chalder, Katherine Bristowe, Irene J. Higginson
Summary: SELF-BREATHE is a digital breathlessness intervention that aims to improve the lives of people with chronic breathlessness. This study found that SELF-BREATHE was feasible to deliver and acceptable to patients, with users reporting improved breathlessness during daily life.
Article
Nutrition & Dietetics
Andrea M. Rehman, Isaac Sekitoleko, Ruramayi Rukuni, Emily L. Webb, Grace McHugh, Tsitsi Bandason, Brewster Moyo, Lucky Gift Ngwira, Cynthia Mukwasi-Kahari, Celia L. Gregson, Victoria Simms, Suzanne Filteau, Rashida A. Ferrand
Summary: Impaired linear growth and slower pubertal growth can be associated with perinatal HIV infection. A study in southern Africa found that a significant proportion of HIV-infected adolescents experienced growth faltering during their adolescent period, with females showing an increase in body fat percentage. Older males and those with chronic lung disease were more likely to have stunted growth. Improvements in height-for-age scores were observed in some profiles over a year.
Article
Public, Environmental & Occupational Health
Emily Harrop, Renata Medeiros Mirra, Silvia Goss, Mirella Longo, Anthony Byrne, Damian J. J. Farnell, Kathy Seddon, Alison Penny, Linda Machin, Stephanie Sivell, Lucy E. Selman
Summary: This longitudinal study investigated the prevalence of Prolonged Grief Disorder (PGD) in UK individuals bereaved during the COVID-19 pandemic. The study found higher than expected levels of PGD, with social isolation, lack of social support, and support from healthcare professionals playing significant roles in the development of prolonged grief symptoms.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Health Care Sciences & Services
Lucy E. Selman, Nicholas Turner, Lesel Dawson, Charlotte Chamberlain, Aisling Mustan, Alison Rivett, Fiona Fox
Summary: The Good Grief Festival successfully attracted a large online audience and had a positive impact on engagement, confidence, and community-building. The evaluation findings suggest that festivals of this nature can play a central role in increasing public awareness of death and grief within a public health approach.
PALLIATIVE CARE & SOCIAL PRACTICE
(2023)