Nurse-led outpatient clinics in oncology care - Patient satisfaction, information and continuity of care

Purpose: The aims of the present study were to investigate patients' satisfaction with nurse-led clinics, patients' perception of received information and associations between continuity of care and satisfaction with information. Methods: Questionnaires on patient satisfaction were sent to consecutive samples of patients after they attended a nurse-led clinic at the Department of Oncology, Karolinska University Hospital in 2007, 2009, 2011 and 2013. Patients' perceptions of received information were evaluated in 2011 and 2013, by the EORTC QLQ-INF025. Data on registered continuity of care were retrieved from the patients' medical record. Results: A total of 962 patients responded (79%) to one of the four surveys. Patients' satisfaction with nurse-led clinics was stable over time. More than 90% rated nurses' interpersonal manners and the care at the clinic as good, the waiting time as acceptable, and the length of appointments as sufficient. Over 90% responded that it was important to meet the same nurse and 62% reported they actually did so and 52% stated they were assigned a named nurse navigator. More than 75% rated the information at their latest visit at a nurse-led clinic as completely sufficient. However, 48% expressed wish for more information during the current disease. No statistical significant associations were found between satisfaction with information and continuity of care. Conclusions: Patients' satisfaction with nurse-led clinics was stable over time with generally high figures with the exception for continuity of care and information, areas in which improvements are needed. The wide variety in information needs might require a person-centred approach. (C) 2015 Elsevier Ltd. All rights reserved.