Article
Health Care Sciences & Services
Montserrat Alonso-Sardon, Maria Saez-Lorenzo, Antonio Javier Chamorro, Luz Celia Fernandez-Martin, Helena Iglesias-de-Sena, Veronica Gonzalez-Nunez, Jose Angel Santos-Sanchez, Cristina Carbonell, Maria Fernanda Lorenzo-Gomez, Jose Antonio Miron-Canelo
Summary: Persons with intellectual and developmental disabilities (PwIDD) are at high risk of experiencing adverse effects (AEs) while receiving healthcare assistance due to their high social and clinical vulnerability. Healthcare practitioners need to be aware of these results and take them into consideration in order to provide personalized, preventive, competent, effective, and safe medical care.
JOURNAL OF PERSONALIZED MEDICINE
(2022)
Article
Medicine, General & Internal
Jose Pedro Ferreira, Rui Matos, Maria Joao Campos, Diogo Monteiro, Raul Antunes, Miguel Jacinto
Summary: This study aims to develop a physical exercise program for individuals with Intellectual and Developmental Disabilities (IDD) and determine its effects on physical fitness, cognitive ability, and quality of life. The study recruited 21 adults and divided them into different groups for the intervention. Assessments will be conducted at different time points to evaluate the outcomes.
JOURNAL OF CLINICAL MEDICINE
(2022)
Review
Psychology, Educational
Josephine Collins, Glynis H. Murphy
Summary: The study reviewed evidence on detecting and preventing abuse in care services for adults with intellectual and developmental disabilities, summarizing characteristics of victims, perpetrators, and organizations, as well as recommending better staff training, supervision, and service monitoring for abuse prevention. However, the quality of studies limits the reliability and validity of research findings, indicating a need for further research to support the implementation of abuse detection and prevention recommendations.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2022)
Article
Medicine, General & Internal
Sukruth A. Shashikumar, Baris Gulseren, Nicholas L. Berlin, John M. Hollingsworth, Karen E. Joynt Maddox, Andrew M. Ryan
Summary: Participation in BPCI-A was associated with decreased per-episode spending and total spending, but CMS ended up spending more on bonuses than it received in penalties. Hospitals in the program led to a net increase in CMS spending, with bonuses disproportionately going to hospitals serving marginalized communities.
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION
(2022)
Review
Health Care Sciences & Services
Avra Selick, Nicole Bobbette, Yona Lunsky, Yani Hamdani, Jennifer Rayner, Janet Durbin
Summary: This scoping review examines virtual health care for adults with IDD, finding that virtual care can be accessible and of high quality for this population. Participants generally accept virtual care, but face challenges such as internet quality and technical skills. Further research is needed to explore the effectiveness and support for virtual care in this population, especially in light of the COVID-19 pandemic.
DISABILITY AND HEALTH JOURNAL
(2021)
Article
Psychiatry
Elizabeth P. Howard, Lynn Martin, George A. Heckman, John N. Morris
Summary: This study examined the mental, social, and physical wellbeing of residents with different diagnoses in a person-centered care model in long-term care facilities in the USA from 2011 to 2013. Residents experienced improvements in pain and depression, with the group without the examined diagnoses experiencing the greatest gains. Behaviors were most prevalent among those with psychotic disorders; though improvement was noted over time.
FRONTIERS IN PSYCHIATRY
(2021)
Article
Pediatrics
Jennifer D. Smith, Nichole Nidey, Gail S. Chodron, Jackie Czyzia, Michelle L. Donahue, Kristie Ford, Cristina James, Oksana Klimova, Michelle M. Macias, Paula Rabidoux, Toni M. Whitaker, Jeffrey P. Brosco
Summary: “Children with developmental disabilities, such as autism spectrum disorder, require multiple service systems and interactions with various professionals. Leadership Education in Neurodevelopmental and related Disabilities (LEND) programs provide comprehensive, interdisciplinary training to address the growing demand for qualified pediatric providers. This study reports the positive impact of LEND programs on trainees' knowledge, skills, and attitudes in key competency domains, validating the effectiveness of a national quality improvement approach in evaluating interdisciplinary training.”
Article
Medicine, General & Internal
Hyunjin Kwon, Hyokju Maeng, Jinwook Chung
Summary: This study developed an ICT-based exergame for children with developmental disabilities (DD) and examined its impacts on physical fitness and fundamental motor skills (FMS). The results showed that the exergame program significantly improved physical fitness and three FMS (hop, overhand throw, and dribble) in children with DD except for the horizontal jump skill.
JOURNAL OF CLINICAL MEDICINE
(2022)
Article
Education, Special
A. Durbin, R. Balogh, E. Lin, L. Palma, L. Plumptre, Y. Lunsky
Summary: Due to the COVID-19 pandemic and adaptations in service delivery, the utilization of healthcare services among individuals with intellectual and/or developmental disabilities (IDD) differed from those without IDD. The study found that the proportion of adults using healthcare services decreased during the first year of the pandemic, except for virtual physician visits. However, individuals with IDD were more likely to use mental health emergency visits and hospitalizations compared to those without IDD.
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH
(2022)
Article
Geriatrics & Gerontology
Elizabeth Wise, Calliope Holingue, Ann Klein, Andrea Caoili, Lauren Charlot, Jarrett Barnhill, Joan B. Beasley
Summary: This study aimed to assess age-related differences in mental health presentations of adults with IDD. Results showed that older adults had more medical conditions, fewer reported psychiatric conditions, and were more likely to be taking more psychiatric medications compared to younger adults.
AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY
(2022)
Article
Pediatrics
Scott Lindgren, Emily Lauer, Elizabeth Momany, Tara Cope, Julie Royer, Lindsay Cogan, Suzanne McDermott, Brian S. Armour
Summary: Children with intellectual and developmental disabilities utilize emergency department and inpatient care at a higher rate compared to the general population, resulting in significantly higher annual costs. Epilepsy/convulsions are the most frequent reason for hospitalization among this population.
JOURNAL OF PEDIATRICS
(2021)
Article
Rehabilitation
Molly Bathje, Samantha Conrad, Matthew Medick, Molly Ross, Lou Fogg
Summary: The study found that patients with IDD receiving treatment in hospitals have longer lengths of stay, are more likely to have Medicare coverage, and are more commonly discharged to subacute or skilled nursing facilities. Differences in occupational therapy services were also noted, possibly attributed to varying client factors and contexts.
AMERICAN JOURNAL OF OCCUPATIONAL THERAPY
(2021)
Review
Psychology, Educational
Jade Ransohoff, Prisha Sujin Kumar, David Flynn, Eric Rubenstein
Summary: Women with intellectual and developmental disabilities experience poorer reproductive and pregnancy outcomes due to health care inequity. They have lower fertility rates, less access to sexual education, and receive prenatal care later and less frequently compared to their peers. The gaps in understanding this issue hinder efforts to reduce health disparities for these women.
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES
(2022)
Article
Medicine, General & Internal
Meir Lotan, Michal Icht
Summary: Pain assessment for individuals with intellectual and developmental disabilities (IDD) is challenging due to communication barriers. This article provides an overview of the current state of pain diagnosis in IDD individuals, focusing on existing pain assessment scales. It also discusses technological developments such as a Smartphone App based on pain-related vocal responses and smart wearable shirts for continuous surveillance of vital signs, which can improve pain diagnosis and enhance overall quality of life for IDD and other individuals with complex communication needs.
Article
Oncology
Muhammad Muntazir Mehdi Khan, Usama Waqar, Muhammad Musaab Munir, Selamawit Woldesenbet, Parit Mavani, Yutaka Endo, Erryk Katayama, Karol Rawicz-Pruszynski, Doreen M. Agnese, Samilia Obeng-Gyasi, Timothy M. Pawlik
Summary: Individuals with intellectual and developmental disabilities may have lower rates of breast cancer screening, especially when combined with social vulnerability factors.
ANNALS OF SURGICAL ONCOLOGY
(2023)
Article
Nursing
Sarah H. Ailey, Paula Brown, Tanya R. Friese, Shelia Dugan
JOURNAL OF NURSING ADMINISTRATION
(2016)
Article
Nursing
Sarah H. Ailey, Beth Marks
REHABILITATION NURSING
(2017)
Article
Medicine, Research & Experimental
Sarah H. Ailey, Arlene M. Miller, Olimpia Paun, Michael Schoeny, Tricia Johnson, Teresa Moro, Arthur Nezu, Tamar Heller, Janet Melby
CONTEMPORARY CLINICAL TRIALS
(2018)
Article
Nursing
Sarah H. Ailey, Tricia J. Johnson, Andrea Cabrera
JOURNAL OF PSYCHOSOCIAL NURSING AND MENTAL HEALTH SERVICES
(2019)
Article
Nursing
Alissa S. Miller, Sarah H. Ailey, Susan Weber Buchholz, Louis Fogg, Diana Ingram
WORKPLACE HEALTH & SAFETY
(2019)
Article
Nursing
Lindsay A. Green, Sarah H. Ailey
Summary: Research conducted in two communities in a large city in the Midwest of the United States found higher rates of asthma among children in these communities, who also faced barriers to access healthcare. By providing no-cost asthma care through a mobile van at schools, appointments scheduled and attended increased, resulting in improved asthma outcomes for the children.
JOURNAL OF SCHOOL NURSING
(2021)
Article
Health Care Sciences & Services
Melissa L. Desroches, Sarah Ailey, Kathleen Fisher, Judith Stych
Summary: During the COVID-19 pandemic, nurses caring for individuals with developmental disabilities (DD) faced challenges such as being excluded from COVID-19 planning, lack of public health guidelines specific to DD individuals, and difficulties in obtaining PPE and sanitizers. These challenges impacted the care needs of DD individuals and hindered nurses in maintaining adequate staffing and carrying out essential care tasks.
DISABILITY AND HEALTH JOURNAL
(2021)
Review
Geriatrics & Gerontology
Katherine Fasullo, Erik McIntosh, Susan W. Buchholz, Todd Ruppar, Sarah Ailey
Summary: The literature review found that LGBTQ older adults in long-term care facilities fear discrimination and stress the importance of staff training and community networks for supporting their identities, while LTC staff have complex views on inclusive practices. Recommendations include revising policies, providing extensive training, and ensuring recognition and protection of all sexual orientations and gender identities.
CLINICAL GERONTOLOGIST
(2022)
Article
Health Policy & Services
Melissa L. Desroches, Kathleen Fisher, Sarah Ailey, Judith Stych, Shirley McMillan, Paul Horan, Daniel Marsden, Henrietta Trip, Nathan Wilson
Summary: This study investigated the challenges and strategies in supporting the basic care needs of people with IDD during the COVID-19 pandemic. The findings showed consistent challenges faced by nurses worldwide, including socialization, educational services, alternative entertainment activities, staffing, and managing challenging behaviors. The study emphasized the ongoing issues with access to care and support for people with IDD during a public health crisis and the importance of meaningful activity and socialization for their well-being.
JOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES
(2022)
Article
Nursing
Melissa L. Desroches, Kathleen Fisher, Sarah Ailey, Judith Stych
Summary: The study found that the impact of the COVID-19 pandemic on developmental disability nurses is significant, with experiences of fear and stress, the need to help others understand and cope, and adapt to a changing environment. Additionally, developmental disability nurses also face issues of being left out.
GLOBAL QUALITATIVE NURSING RESEARCH
(2021)
Article
Nursing
Sarah H. Ailey, Beth Marks
REHABILITATION NURSING
(2020)
Article
Health Care Sciences & Services
Jordan Wirtz, Sarah H. Ailey, Samuel Hohmann, Tricia Johnson
AMERICAN JOURNAL OF MANAGED CARE
(2020)
Article
Education, Special
Sarah H. Ailey, Tricia J. Johnson, Louis Fogg, Tanya R. Friese
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
(2015)
Article
Education, Special
Sarah H. Ailey, Arlene Michaels Miller, Louis Fogg
JOURNAL OF MENTAL HEALTH RESEARCH IN INTELLECTUAL DISABILITIES
(2014)
