Article
Psychology, Multidisciplinary
Julio Belo Fernandes, Josefa Domingos, Cidalia Castro, Aida Simoes, Sonia Fernandes, Ana Silva Almeida, Catarina Bernardes, Luis Miranda, Sandra Risso, Rogerio Ferreira, Cristina Lavareda Baixinho, Milene Silvestre, Catarina Godinho
Summary: This study aims to explore the needs and expectations of family caregivers of cancer patients in palliative care in order to improve care practices. Qualitative, descriptive, and exploratory methods will be used to recruit family caregivers and healthcare professionals from two hospital centers. Through focus group discussions and thematic analysis, this study hopes to identify gaps in care, provide evidence-based centered care to family caregivers, and develop a comprehensive support system for cancer survivors and their family caregivers.
FRONTIERS IN PSYCHOLOGY
(2023)
Review
Oncology
Qinqin Cheng, Binbin Xu, Marques S. N. Ng, Hongling Zheng, Winnie K. W. So
Summary: This study aimed to identify self-reported supportive care needs assessment instruments for family caregivers of palliative cancer patients and assess their contents, psychometric properties, and applicability. Four self-reported needs assessment instruments were identified, with significant differences in contents, constructs, scoring methods, and applicability. Major shortcomings included lack of longitudinal validity, strategy for interpreting missing data, and description of literacy level required, indicating a need for further evaluation or development of needs assessment instruments.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Psychology, Multidisciplinary
Hadis Ashrafizadeh, Mahin Gheibizadeh, Maryam Rassouli, Fatemeh Hajibabaee, Shahnaz Rostami
Summary: The study conducted in Iran aimed to explore the perception of formal and informal caregivers on the unmet needs of Alzheimer's patients. Through in-depth interviews, it was found that a comprehensive needs management approach is essential to improve the quality of life for patients, with the care provided by caregivers playing a crucial role in meeting these needs.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Oncology
Anneke Ullrich, Gabriella Marx, Corinna Bergelt, Gesine Benze, Youyou Zhang, Feline Wowretzko, Julia Heine, Lisa-Marie Dickel, Friedemann Nauck, Carsten Bokemeyer, Karin Oechsle
Summary: The study aimed to investigate the supportive care needs of family caregivers of advanced cancer patients at different stages of care. The findings suggest that a high number of important needs exist among caregivers, with education level, satisfaction with care, and social support influencing the satisfaction of these needs. However, only a small subgroup of caregivers actually utilized support services, indicating a potential need for better information and tailored services to improve their situations in the future.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Oncology
Veronica Zavagli, Melania Raccichini, Rita Ostan, Giacomo Ercolani, Luca Franchini, Silvia Varani, Raffaella Pannuti
Summary: This study investigated the prevalence of unmet needs reported by family caregivers (FCs) of cancer patients in home palliative care, and whether these needs change with their demographic characteristics and the patients' functional abilities. The results showed that cancer caregiving is burdensome and FCs require more support and attention.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Oncology
Gulcan Bagcivan, Memnun Seven, Seyma Inciser Pasalak, Ezgi Bilmic, Yasemin Aydin, Gozde Oz, Fatih Selcukbiricik
Summary: The study highlights the importance of providing supportive and palliative care for cancer patients, along with medical treatment for cancer-related physical and psychological symptoms. Unmet needs include issues with concentration, worrying, difficulties with sex life, limitations in work and daily activities, and depression.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Oncology
Tao Wang, Alex Molassiotis, Jing-Yu Tan, Betty Pui Man Chung, Hou-Qiang Huang
Summary: This study examined the palliative care needs of advanced cancer patients and their caregivers in China. The results showed that patients mainly had unmet needs in financial, informational, physical (pain), and psychological domains, while caregivers commonly reported unmet needs related to healthcare staff, information, and hospital facilities. Factors such as symptom distress, anxiety and depression, coping strategies, and caregiver quality of life were identified as key predictors of the needs of both patients and caregivers.
SUPPORTIVE CARE IN CANCER
(2021)
Article
Medicine, General & Internal
Shuqin Zhu, Hanfei Zhu, Xintong Zhang, Kouying Liu, Zumei Chen, Xiaowen Yang, Changxian Sun, Weiping Xie, Qin Xu, Weiying Li, Dong Pang, Yan Cui, Hong Wang
Summary: The study aimed to investigate the care needs of dying patients and their family caregivers in hospice and palliative care in mainland China. A total of 18 articles were included, identifying that patients need a comfortable experience and family caregivers need to care for patients and themselves.
Article
Health Care Sciences & Services
Patricia C. Pawlow, Nancy P. Blumenthal, Jason D. Christie, Lea Ann Matura, Subhash Aryal, Mary Ersek
Summary: This study aimed to determine the supportive care needs of informal caregivers of patients being evaluated for or awaiting lung transplantation. Most caregivers expressed a need for more support, particularly in areas such as what to expect in the future, who to call with healthcare concerns, and financial, legal, or work issues.
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT
(2021)
Article
Oncology
Elena Bandieri, Eleonora Borelli, Fabio Gilioli, Sarah Bigi, Claudia Mucciarini, Umberto Ferrari, Sonia Eliardo, Lidia Pinto, Carlo Adolfo Porro, Fabio Efficace, Mario Luppi, Leonardo Potenza
Summary: Early palliative care is a successful model of care for advanced cancer patients and their caregivers, but it is often limited to the last weeks of life due to the stigma associated with palliative care. This study aimed to investigate the perception of palliative care among a sample of patients and caregivers before their referral to early palliative care. The results indicate the need for interventions to overcome the stigma and improve understanding of the essence of anticipated palliative care.
Article
Psychology, Multidisciplinary
Astrid Schnabel, Florian Lordick, Paula Oberth, Markus Neuschulz, Antje Lehmann-Laue, Anja Mehnert-Theuerkauf, Andreas Hinz
Summary: This study analyzed the relationship between supportive care needs (SCNs), satisfaction with quality of life (QoL) dimensions, and the perceived importance of these dimensions among 152 cancer patients receiving palliative care. The results showed that the greatest SCNs were observed for absence of pain, while the patients were least satisfied with their physical functioning and the dimension social relationships received the highest perceived importance ratings.
FRONTIERS IN PSYCHOLOGY
(2023)
Article
Oncology
Naoko Otsuki, Ryohei Yamamoto, Yukihiro Sakaguchi, Kento Masukawa, Tatsuya Morita, Yoshiyuki Kizawa, Satoru Tsuneto, Yasuo Shima, Sakiko Fukui, Mitsunori Miyashita
Summary: The study in Japan on 710 family caregivers of cancer patients found that time-dependent burden was highest among caregivers of patients with moderate care needs. Additionally, older patients and younger caregivers were significantly associated with a time-dependent burden.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Oncology
Eleonora Borelli, Sarah Bigi, Leonardo Potenza, Fabio Gilioli, Fabrizio Artioli, Giampiero Porzio, Carlo Adolfo Porro, Fabio Efficace, Eduardo Bruera, Mario Luppi, Elena Bandieri
Summary: This study explores whether and how gratitude may originate in patients with advanced cancer and their caregivers undergoing early palliative care (EPC). The results suggest that interventions within the EPC model based on doctor-patient-caregiver communication may allow patients and caregivers to experience a feeling of gratitude, which can be a resource to improve their physical and psychosocial wellbeing.
FRONTIERS IN ONCOLOGY
(2022)
Article
Oncology
Tolcha Kebebew, Annah Mosalo, Azwihangwisi Helen Mavhandu-Mudzusi
Summary: This study evaluated caregivers' satisfaction with the care provided to patients with advanced cervical cancer in Ethiopia. The results showed high overall satisfaction with advanced care at the tertiary hospital, but also highlighted the high burden of strain experienced by caregivers. Managing caregivers' strain, prompt treatment of patients' symptoms, and providing adequate information to caregivers could further improve their satisfaction.
SUPPORTIVE CARE IN CANCER
(2022)
Article
Psychology, Multidisciplinary
Nilgun Ulutasdemir, Halil Ay, Adalet Gocmen, Sevda Uzun, Nursen Kulakac
Summary: This study aimed to explore the needs of caregivers of patients with palliative neurological problems and propose solutions. Through interviews with 16 relatives of patients, it was found that palliative neurological diseases have psychological, social, and physical effects on the quality of life of individuals. Relatives primarily cope with the disease through emotion-focused and problem-focused strategies. The most important needs of relatives include personal time, moral support, and companion support.
CURRENT PSYCHOLOGY
(2023)
Article
Oncology
Chu-Won Sim, Silke Heuse, Dorothee Weigel, Friedrike Kendel
PEDIATRIC BLOOD & CANCER
(2020)
Article
Endocrinology & Metabolism
Ahmad Tauseef Nauman, Hassan Behlouli, Nicholas Alexander, Friederike Kendel, Johanna Drewelies, Konstantinos Mantantzis, Nora Berger, Gert G. Wagner, Denis Gerstorf, Ilja Demuth, Louise Pilote, Vera Regitz-Zagrosek
Summary: The study indicates the importance of gender in health, and the researchers developed a method to retrospectively assess gender, introducing the concept of gender into numerous studies.
BIOLOGY OF SEX DIFFERENCES
(2021)
Letter
Medicine, General & Internal
Thomas von Lengerke, Stefanie Helmer, Ivonne Tomsic, Claudia R. Pischke, Odette Wegwarth, Friederike Kendel, Martin Haerter
DEUTSCHES ARZTEBLATT INTERNATIONAL
(2021)
Article
Genetics & Heredity
Hannah Brand, Dorothee Speiser, Laura Besch, Julia Roseman, Friederike Kendel
Summary: The study found that illness representations among BRCA1/2 mutation carriers are significantly associated with their cancer worry and depressive symptoms, with women perceiving severe consequences and having more concerns more likely to report cancer worry. Perceiving information about the mutation as less coherent and experiencing negative emotional responses were both associated with more depressive symptoms. Women with a previous cancer diagnosis show patterns of illness representations that are potentially more distressing compared to women without a cancer diagnosis.
Article
Public, Environmental & Occupational Health
Anne Pohrt, Daniel Fodor, Hermann Burr, Friederike Kendel
Summary: The study found that factors from both work and private life are associated with depressive symptoms, especially appreciation, job control, and critical life events. Gender differences in the associations of working conditions with depressive symptoms suggest a need for a more gender-sensitive approach to psychosocial occupational health research and interventions.
INTERNATIONAL ARCHIVES OF OCCUPATIONAL AND ENVIRONMENTAL HEALTH
(2022)
Article
Public, Environmental & Occupational Health
Friedrich Kuehn, Maria Margarete Karsten, Friederike Kendel, Markus A. Feufel, Dorothee Speiser
Summary: The training course aimed to strengthen cross-sectoral care by disseminating specialized knowledge about hereditary breast and ovarian cancer in underserved areas. Results showed an increase in certainty regarding inclusion criteria for genetic counseling, but participants still faced difficulties in interpreting and differentiating risks.
PATIENT EDUCATION AND COUNSELING
(2021)
Article
Oncology
Isabella Otto, Caren Hilger, Ahmed Magheli, Gertraud Stadler, Friederike Kendel
Summary: Men diagnosed with localized prostate cancer face decisions on treatment options, with illness representations, coping strategies, and anxiety levels being interconnected. The perceived seriousness of consequences is significantly associated with anxiety levels, and the use of emotion-focused coping can increase anxiety.
Article
Urology & Nephrology
Caren Hilger, Martin Schostak, Isabella Otto, Friederike Kendel
Summary: Decisional regret in men with localized prostate cancer is predicted by factors including time pressure, erectile dysfunction, and satisfaction with sexual life. Mitigating time pressure and having realistic expectations about treatment side effects may help prevent decisional regret in prostate cancer survivors.
WORLD JOURNAL OF UROLOGY
(2021)
Article
Medicine, General & Internal
Ilja Demuth, Verena Banszerus, Johanna Drewelies, Sandra Duezel, Ute Seeland, Dominik Spira, Esther Tse, Julian Braun, Elisabeth Steinhagen-Thiessen, Lars Bertram, Andreas Thiel, Ulman Lindenberger, Vera Regitz-Zagrosek, Denis Gerstorf
Summary: The GendAge study in Germany focuses on cardiovascular and metabolic diseases, examining risk factors and outcomes in the context of sex and gender differences. Data collected includes a range of medical fields with a focus on cardiometabolic diseases and gender disparities.
Article
Psychiatry
Anne Pohrt, Friederike Kendel, Ilja Demuth, Johanna Drewelies, Tauseef Nauman, Hassan Behlouli, Gertraud Stadler, Louise Pilote, Vera Regitz-Zagrosek, Denis Gerstorf
Summary: This study aimed to develop a gender score that can be used to separate the effects of gender versus biological sex in a sample of older adults. The gender score was constructed using logistic regression and used as an adjustment and matching variable. Results showed that female sex was independently associated with lower grip strength, better cognitive performance, higher pulse wave velocity, lower body mass index, and lower rates of metabolic syndrome. Both sex and gender were also independently associated with cognitive performance and depression.
PSYCHOSOMATIC MEDICINE
(2022)
Article
Genetics & Heredity
Friederike Kendel, Katharina Klein, Stephen Schueuerhuis, Laura Besch, Markus A. Feufel, Dorothee Speiser
Summary: This study assessed causal attributions made by women with a pathogenic germline variant in BRCA1/2 and found that attributions to personality, health behavior, and environment were significantly associated with personal control.
Article
Education & Educational Research
Markus A. A. Feufel, Niklas Keller, Friederike Kendel, Claudia D. D. Spies
Summary: Many physicians struggle to interpret test results using Bayes' rule. Two effective interventions, boosting insight and boosting agency, have been identified. Boosting insight involves presenting test statistics in natural frequencies, while boosting agency involves training on how to translate probabilities into natural frequencies and apply them in Bayes' rule. It is unclear whether boosting agency alone is sufficient or if natural frequencies can additionally enhance insight for accurate test interpretation.
BMC MEDICAL EDUCATION
(2023)
Article
Health Care Sciences & Services
Dorothee Speiser, Maren Heibges, Laura Besch, Caren Hilger, Marie Keinert, Katharina Klein, Gudrun Rauwolf, Christine Schmid, Sven Schulz-Niethammer, Steffi Stegen, Viola Westfal, Isabell Witzel, Benedikt Zang, Friederike Kendel, Markus A. Feufel
Summary: iKNOW is a evidence-based digital tool that supports personalized counseling for women in Germany with a hereditary cancer risk, particularly carriers of pathogenic gBRCA gene variants. The paper discusses the clinical, regulatory, and practical aspects of personalized counseling in Germany and proposes 5 design principles for developing personalized counseling tools in cancer medicine, with iKNOW serving as a blueprint for future digital innovations.
JMIR FORMATIVE RESEARCH
(2023)
Article
Cardiac & Cardiovascular Systems
A. Brand, C. Crayen, A. Hamann, S. Martineck, L. Gao, H. Brand, S. M. Squier, K. Stangl, F. Kendel, V. Stangl
Summary: This study aimed to assess the patient-rated quality of the informed consent (IC) process and investigate the effectiveness of using medical graphics to improve the IC procedure. The results showed that the use of medical graphics significantly improved patient satisfaction and understanding of the IC process.
IJC HEART & VASCULATURE
(2022)
Article
Public, Environmental & Occupational Health
Isabel Fernholz, Juliane Menzel, Hans-Christian Jabusch, Heiner Gembris, Felix Fischer, Friederike Kendel, Gunter Kreutz, Alexander Schmidt, Stefan N. Willich, Cornelia Weikert
