Article
Computer Science, Information Systems
Dan Ma, Meiyun Zuo, Liu Liu
Summary: This study investigated the information needs of Chinese family members of cancer patients in an online health community, finding that information seeking could help family members cope with stressful events and discussing the potential impacts of Chinese culture on information needs.
INFORMATION PROCESSING & MANAGEMENT
(2021)
Article
Medicine, General & Internal
Kai-bin Yang, Yuan-Zhe Zhang, Zi-Hang Chen, Chen-Fei Wu, Wei-Hong Zheng, Jia Kou, Wei Chen, Jin-wei Chen, Si-fan Qi, Qing Liu, Ying Sun, Jun Ma, Li Lin
Summary: Married patients have better cancer-specific survival (CSS) than unmarried patients, and private health insurance plays a key role in mediating the association between marital status and CSS.
Article
Environmental Sciences
Fatemeh Khosravi, Andrea Taylor, Yim Ling Siu
Summary: Decision-makers can use climate information to adapt to the risks of climate variability and change, but the climate products need to be tailored according to users' specific information needs. Water managers in China require climate data with different timescales and variables, primarily obtaining historical, weather, and seasonal forecasts data from the China Meteorological Administration. By using external sources of climate change projections, users in China can critically evaluate the climate services provided by the CMA and understand the limitations of current services such as limited variables and timescales.
SCIENCE OF THE TOTAL ENVIRONMENT
(2021)
Article
Public, Environmental & Occupational Health
Austin R. Waters, Eduardo R. Zamora, Mark Fluchel, Echo L. Warner, Stephanie Rosen, Vannina Gwilliam, Guadalupe E. Tovar, Jennyffer P. Morales, Anne C. Kirchhoff
Summary: This study explores communication issues related to the diagnosis of cancer among primarily Spanish-speaking caregivers of pediatric cancer patients. The findings suggest that cultural and linguistic disparities contribute to barriers and negative experiences during the diagnosis and treatment process, leading to confusion and dehumanizing language used by healthcare providers.
PATIENT EDUCATION AND COUNSELING
(2022)
Article
Computer Science, Artificial Intelligence
Huiqin Cao, Peng He, Chengjin Wang
Summary: With the popularization of computers, artificial intelligence technology has become more mature. Speech recognition technology, in particular, has gained favor among people. The combination of acoustic model and Gaussian mixture model and hidden Markov model has been the leading method in the field of speech recognition for many years. However, with the expansion of speech data and its complexity, the traditional data network model has shown limitations. On the other hand, the deep neural network model is capable of handling large and complex data modeling, making it more suitable for the current needs.
Article
Computer Science, Artificial Intelligence
Jie Wang, Lei Wang, Jing Xu, Yan Peng
Summary: This study, based on question and answer data from six Chinese online health communities, identified four main information need topics related to COVID-19, providing valuable insights for improving information assistance and service quality in online health communities.
Article
Medicine, General & Internal
Austyn Snowden, Jenny Young, Denis Roberge, Stefano Schipani, Esther Murray, Claude Richard, Marie-Therese Lussier, Craig White
Summary: This study is a blinded, parallel, multi-centre, randomised controlled trial (RCT) investigating the impact of incorporating holistic needs assessment (HNA) into consultations. The results showed that there were no significant differences in patient participation, shared decision making, or self-efficacy between the HNA group and the control group. However, consultations in the HNA group were longer. This study does not support using medical colleagues to facilitate HNA in outpatient settings.
Article
Computer Science, Information Systems
Anne M. Turner, Jean O. Taylor, Andrea L. Hartzler, Katie P. Osterhage, Alyssa L. Bosold, Ian S. Painter, George Demiris
Summary: The study reveals that older adults engage in key activities such as seeking, tracking, organizing, sharing health information, and emergency planning. Three major themes influencing their practice of personal health information management include their focus on maintaining health and preventing illness, involvement of others, and their situational and context-dependent approach to PHIM.
JOURNAL OF THE AMERICAN MEDICAL INFORMATICS ASSOCIATION
(2021)
Article
Psychology, Multidisciplinary
Yufan Hu, Xichenhui Qiu, Cuiling Ji, Fang Wang, Manlan He, Lei He, Lu Chen
Summary: This study explored the experiences of older stroke patients in searching for health information, including search methods, identification of health information, and difficulties faced during the search process. It was found that older stroke patients face significant challenges in searching for health information online. Healthcare professionals should assess patients' health information-seeking skills, provide training programs, and improve online access to health resources to promote secondary prevention for stroke patients.
FRONTIERS IN PSYCHOLOGY
(2023)
Article
Medicine, General & Internal
Danielle Wing Lam Ng, Richard Fielding, Catherine Tsang, Carmen Ng, Joyce Chan, Amy Or, Izy Wing Man Kong, Julia Wei Chun Tang, Wylie Wai Yee Li, Amy Tien Yee Chang, Chi Choo Foo, Ava Kwong, Simon Siu-Man Ng, Dacita Suen, Miranda Chan, Oi-Kwan Chun, Karen Kar Loen Chan, Phyllis N. Butow, Wendy Wing Tak Lam
Summary: The purpose of this study is to evaluate the effectiveness of the Chinese version of the ConquerFear-HK intervention in improving fear of cancer recurrence. A randomized controlled trial will be conducted with 174 eligible Chinese cancer survivors who will be assigned to either the ConquerFear-HK or BasicCancerCare intervention. Various measures will be used to assess the intervention's effects and psychological impacts.
Article
Public, Environmental & Occupational Health
Fiona Crawford-Williams, Belinda C. Goodwin, Suzanne K. Chambers, Joanne F. Aitken, Martelle Ford, Jeff Dunn
Summary: The study revealed variations in seeking and processing health information among rural cancer survivors, highlighting the critical role of healthcare professionals in information provision and support. Customized and personalized information delivery is essential for meeting survivors' needs and preferences.
AUSTRALIAN AND NEW ZEALAND JOURNAL OF PUBLIC HEALTH
(2022)
Review
Medicine, General & Internal
Asma Abdullah Alfayez, Holger Kunz, Alvina Grace Lai
Summary: This study aims to identify and compare existing supervised machine learning approaches for predicting cancer in asymptomatic adults, and to identify potential research gaps. Results show that current machine learning models for predicting future cancer risk still have shortcomings in transparency and clinical utility.
Article
Psychology, Multidisciplinary
Sharon H. J. Hou, Andrew Tran, Sara Cho, Caitlin Forbes, Victoria J. Forster, Mehak Stokoe, Elleine Allapitan, Claire E. Wakefield, Lori Wiener, Lauren C. Heathcote, Gisela Michel, Pandora Patterson, Kathleen Reynolds, Fiona S. M. Schulte
Summary: This study investigated the impact of COVID-19 on the mental health status of adolescent and young adult survivors of childhood cancer, finding that participants who tied their current mental health status to fears/worries about their past cancer and treatment experienced higher levels of anxiety and PTSS. Most participants expressed interest in receiving information about potential risks related to COVID-19.
FRONTIERS IN PSYCHOLOGY
(2022)
Article
Endocrinology & Metabolism
Debbie W. Chen, David Reyes-Gastelum, Sarah T. Hawley, Lauren P. Wallner, Ann S. Hamilton, Megan R. Haymart
Summary: Among Hispanic women with thyroid cancer, those with low acculturation level are more likely to have unmet information needs, especially in terms of health literacy and access to information. The way they access the internet is also influenced by their acculturation level.
JOURNAL OF CLINICAL ENDOCRINOLOGY & METABOLISM
(2021)
Article
Computer Science, Information Systems
Betsy Uchendu, Jason R. C. Nurse, Maria Bada, Steven Furnell
Summary: This article delves into the key factors and models for establishing and maintaining cyber security culture, highlighting the critical roles of top management support, policies and procedures, and awareness in fostering a security culture. While terms have changed, many influential factors remain consistent, with questionnaires and surveys being the most used tool for measuring cyber security culture, but also raising concerns about the need for more dynamic measures.
COMPUTERS & SECURITY
(2021)
Article
Oncology
Nicci Bartley, Polly Havard, Phyllis Butow, Joanne Shaw
Summary: This study aimed to explore the perspectives of cancer stakeholders regarding COVID-19 vaccination. The findings revealed mostly positive attitudes towards the vaccine, but also highlighted concerns, hesitancy, and uncertainty. Policymakers need to provide clear tailored information to facilitate vaccine uptake.
ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
(2023)
Article
Oncology
Elizabeth Hutchings, Belinda E. Butcher, Phyllis Butow, Frances M. Boyle
Summary: Australian breast cancer patients support the secondary use of de-identified administrative health data and clinical trial data, but express concerns regarding data security and privacy, emphasizing that reuse should be for improved societal health outcomes rather than profit. Many assumed that secondary analysis was already being conducted on de-identified administrative health data and clinical trial data.
ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY
(2023)
Review
Biochemistry & Molecular Biology
Alison Luk Young, Aalya Imran, Michael J. Spoelma, Rachel Williams, Katherine M. Tucker, Jane Halliday, Laura E. Forrest, Claire E. Wakefield, Phyllis N. Butow
Summary: This review evaluated proband-mediated interventions in genetics clinics to increase genetic risk disclosure to at-risk relatives. The studies suggest that tailored genetic counseling can increase the proportion of informed relatives and relatives who contact the genetics clinic.
EUROPEAN JOURNAL OF HUMAN GENETICS
(2023)
Article
Oncology
Chloe Yi Shing Lim, Rebekah C. Laidsaar-Powell, Jane M. Young, Daniel Steffens, Nabila Ansari, Grace Joshy, Phyllis Butow, Adv CRC Survivorship Authorship Grp
Summary: This study fills a gap in qualitative research regarding the healthcare experiences and needs of people with advanced colorectal cancer (CRC-A) through interviews with 38 participants. The study identifies six key themes relating to the safety, effectiveness, timeliness, patient-centeredness, efficiency, and equity of CRC-A care. The findings highlight the importance of delivering repeated information, upskilling general practitioners, and implementing survivorship care plans or clinics to improve the healthcare system for CRC-A.
EUROPEAN JOURNAL OF ONCOLOGY NURSING
(2023)
Article
Oncology
Bogda Koczwara, Reegan Knowles, Lisa Beatty, Heather L. Shepherd, Joanne M. Shaw, Haryana M. Dhillon, Jonathan Karnon, Shahid Ullah, Phyllis Butow
Summary: This study evaluated the implementation of a web-based system for screening the symptoms and needs of cancer patients in an Australian hospital. The screening identified many unmet needs. However, the uptake of this intervention by nurses and patients was lower than expected.
SUPPORTIVE CARE IN CANCER
(2023)
Article
Medicine, General & Internal
Danielle Wing Lam Ng, Richard Fielding, Catherine Tsang, Carmen Ng, Joyce Chan, Amy Or, Izy Wing Man Kong, Julia Wei Chun Tang, Wylie Wai Yee Li, Amy Tien Yee Chang, Chi Choo Foo, Ava Kwong, Simon Siu-Man Ng, Dacita Suen, Miranda Chan, Oi-Kwan Chun, Karen Kar Loen Chan, Phyllis N. Butow, Wendy Wing Tak Lam
Summary: The purpose of this study is to evaluate the effectiveness of the Chinese version of the ConquerFear-HK intervention in improving fear of cancer recurrence. A randomized controlled trial will be conducted with 174 eligible Chinese cancer survivors who will be assigned to either the ConquerFear-HK or BasicCancerCare intervention. Various measures will be used to assess the intervention's effects and psychological impacts.
Review
Oncology
Kyra Webb, Louise Sharpe, Phyllis Butow, Haryana Dhillon, Robert Zachariae, Nina Moller Tauber, Mia Skytte O'Toole, Joanne Shaw
Summary: This study compared the levels of fear of cancer recurrence (FCR) between cancer survivors and caregivers through a meta-analysis. It also examined the relationship between caregiver FCR, depression, and anxiety, and evaluated the psychometric properties of caregiver FCR measures. The results showed that caregivers reported FCR levels similar to survivors, with around 48% of caregivers reporting clinically significant FCR levels. There was a strong correlation between anxiety and depression and medium correlation with survivor FCR. The existing measurement tools for caregiver FCR mostly relied on survivor conceptualizations and lacked validation.
Article
Education & Educational Research
Jia Liu, Anastasia Serafimovska, Sharon He, Phyllis Butow, Joanne Shaw, Christopher John McHardy, Georgia Harris, Zoe Butt, Jane Beith
Summary: The study aims to explore the barriers and facilitators to implementing a low-cost brief intervention (CIFeR) to reduce fear of cancer recurrence (FCR) in routine oncology practice in Australia. The primary objective is to assess the adoption of CIFeR in routine clinical practice, while secondary objectives include identifying the uptake and sustainability, acceptability, feasibility, costs, barriers, and facilitators of CIFeR implementation, as well as assessing the impact of CIFeR training on clinicians' self-efficacy in managing FCR.
BMC MEDICAL EDUCATION
(2023)
Review
Oncology
R. King, L. Stafford, P. Butow, S. Giunta, R. Laidsaar-Powell
Summary: This meta-review examines the qualitative evidence-base on breast cancer survivorship experiences and identifies the main themes and areas for further investigation.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Article
Health Care Sciences & Services
Madeleine L. Juhrmann, Phyllis N. Butow, Cara M. Platts, Paul Simpson, Mark Boughey, Josephine M. Clayton
Summary: This qualitative study aimed to explore the experiences, perspectives, and attitudes of paramedics, palliative care doctors and nurses, general practitioners, residential aged care nurses, as well as bereaved families and carers on the role, barriers, and enablers of paramedics delivering palliative and end-of-life care in community-based settings. The results revealed that paramedics were perceived as having a revered public identity but also expressed fear and vulnerability when providing palliative care. Consent may be required for paramedics to move beyond a culture of curative care, however, all participant groups recognized their important adjunct role in supporting community-based palliative care.
PALLIATIVE MEDICINE
(2023)
Article
Public, Environmental & Occupational Health
Camelia Harrison, Nicci Bartley, Chris Jacobs, Megan Best, Sabina Vatter, Bettina Meiser, Mandy L. Ballinger, David M. Thomas, Phyllis Butow
Summary: This study aimed to explore cancer patients' perceived importance of disclosure, predictors of perceptions, and perspectives on family communication of germline genome sequencing results. The results showed that most participants intended to disclose results to their nuclear family, considered the results as family information, and believed it was important to disclose results to family members. Education level and the level of communication within the nuclear and extended family were significantly positively associated with the perceived importance of disclosure. Low health literacy and family conflict can complicate the communication of germline genome sequencing results.
PATIENT EDUCATION AND COUNSELING
(2023)
Article
Oncology
Nina M. M. Tauber, Mia S. S. O'Toole, Anders B. B. Jensen, Phyllis N. N. Butow, Belinda Thewes, Emma Elkjaer, Sofie Knutzen, Annika von Heymann, Christoffer Johansen, Robert Zachariae
Summary: This randomized controlled trial evaluated the efficacy of an online group-based psychological intervention (ConquerFear-Group) for fear of cancer recurrence (FCR). The results showed that ConquerFear-Group significantly reduced the severity of FCR and maintained stable effects over a 6-month period.
Article
Oncology
Rebekah Laidsaar-Powell, Phyllis Butow, Bernadette Bea Brown, Kimberley Mander, Jane Young, Emily Stone, Venessa Chin, Emily Banks, Chloe Yi Shing Lim, Nicole M. Rankin
Summary: This study aimed to understand lung cancer survivors' physical/psychological challenges, experiences of immunotherapy and targeted therapy, and psychological adjustment. The findings showed that many survivors are adapting to issues as they arise and maintaining a sense of hope and optimism.
JOURNAL OF CANCER SURVIVORSHIP
(2023)
Meeting Abstract
Respiratory System
Rebekah Laidsaar-Powell, Phyllis Butow, Bea Brown, Kimberley Mander, Jane Young, Emily Stone, Venessa Chin, Emily Banks, Nicole Rankin
Meeting Abstract
Respiratory System
Rebekah Laidsaar-Powell, Phyllis Butow, Bea Brown, Kimberley Mander, Jane Young, Emily Stone, Venessa Chin, Emily Banks, Chloe Lim, Nicole Rankin