Journal
JOURNAL OF PEDIATRIC SURGERY
Volume 52, Issue 12, Pages 2001-2005Publisher
W B SAUNDERS CO-ELSEVIER INC
DOI: 10.1016/j.jpedsurg.2017.08.036
Keywords
Hirschsprung disease; Long-term outcome; Soave procedure; Quality of life; Bowel function; Adulthood
Categories
Funding
- Japan Society for the Promotion of Science (JSPS) [25462777, 26670765, 16 K10466, 16 K10094, 16 K10095, 16 K10434, 16H07090, 17 K10555, 17 K11514, 17 K10183, 17 K11515]
- President's Discretionary Expenses of Kagoshima University
- UBE Foundation
- Grants-in-Aid for Scientific Research [17K10183, 25462777, 26670765, 16H07090, 16K10434, 16K10466, 16K10094, 17K11515, 16K10095] Funding Source: KAKEN
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Background/purpose: Hirschsprung disease (HD) is considered curable, but the postoperative bowel function is not always satisfactory. In this study, we evaluated the general condition, bowel function, and social performance in adults who were older than 17 years of age who had undergone definitive operations in childhood. Method: From 1984 to 2016, 110 patients with HD underwent definitive surgery at our institute. Sixty-three patients who had undergone the transabdominal Soave procedure reached 18 years of age. Their present status and symptoms, anorectal function, genitourinary function, and social performance were evaluated during the clinical follow-up via a questionnaire survey. Result: The mean age of the questionnaire respondents was 25.0 (19-37) years. The bowel function was mostly good. However, 56% of patients had abdominal pain more than once a week. Regarding evacuation symptoms, incontinence and soiling occurred in 18.7%. Among the respondents 33.3% were married, and 60% of those who were married had children. The respondents had achieved success in their education and professional careers. Conclusion: The bowel function of most patients was satisfactory, although some had chronic abdominal symptoms. Pediatric surgeons should continue trying to achieve complete bowel function after definitive surgery of HD. Type of study: Prospective Cohort Study. (C) 2017 Published by Elsevier Inc.
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