Rare Diseases on the Internet: An Assessment of the Quality of Online Information

Comparison of different approaches applied in Analytic Hierarchy Process – an example of information needs of patients with rare diseases

(2016) Frédéric Pauer et al.   BMC Medical Informatics and Decision Making

The medical experience of a patient with a rare disease and her family

(2016) Roberta Garau   Orphanet Journal of Rare Diseases

The involvement of patient organisations in rare disease research: a mixed methods study in Australia

(2016) Deirdre Pinto et al.   Orphanet Journal of Rare Diseases

Survey of healthcare experiences of Australian adults living with rare diseases

(2016) Caron Molster et al.   Orphanet Journal of Rare Diseases

The Quality of Health Information on Allergic Rhinitis, Rhinitis, and Sinusitis Available on the Internet

(2015) Mun Young Chang et al.   Allergy Asthma & Immunology Research

Social Media Methods for Studying Rare Diseases

(2014) K. R. Schumacher et al.   PEDIATRICS

Australian families living with rare disease: experiences of diagnosis, health services use and needs for psychosocial support

(2013) Matilda Anderson et al.   Orphanet Journal of Rare Diseases

The need for worldwide policy and action plans for rare diseases

(2012) John Forman et al.   ACTA PAEDIATRICA

Does Online Health Information Seeking Act Like a Health Behavior?: A Test of the Behavioral Model

(2010) Deena J. Chisolm   Telemedicine and e-Health

What Do Evaluation Instruments Tell Us About the Quality of Complementary Medicine Information on the Internet?

(2008) Matthew Breckons et al.   JOURNAL OF MEDICAL INTERNET RESEARCH