EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California

How Variability in the Institutional Review Board Review Process Affects Minimal-Risk Multisite Health Services Research

(2013) Laura A. Petersen et al.   ANNALS OF INTERNAL MEDICINE

The Mayo Clinic Biobank: A Building Block for Individualized Medicine

(2013) Janet E. Olson et al.   MAYO CLINIC PROCEEDINGS

Potential Bias in the Bank: What Distinguishes Refusers, Nonresponders and Participants in a Clinic-Based Biobank?

(2013) J.L. Ridgeway et al.   Public Health Genomics

Toward a roadmap in global biobanking for health

(2012) Jennifer R Harris et al.   EUROPEAN JOURNAL OF HUMAN GENETICS

Return of individual research results from genome-wide association studies: experience of the Electronic Medical Records and Genomics (eMERGE) Network

(2012) Stephanie M. Fullerton et al.   GENETICS IN MEDICINE

Managing incidental findings and research results in genomic research involving biobanks and archived data sets

(2012) Susan M. Wolf et al.   GENETICS IN MEDICINE

Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation

(2012) Kieran C. O'Doherty et al.   SOCIAL SCIENCE & MEDICINE

Identifiability in biobanks: models, measures, and mitigation strategies

(2011) Bradley Malin et al.   HUMAN GENETICS

An Australian Approach to the Policy Translation of Deliberated Citizen Perspectives on Biobanking

(2011) Caron Molster et al.   Public Health Genomics

Balancing the Risks and Benefits of Genomic Data Sharing: Genome Research Participants’ Perspectives

(2011) J.M. Oliver et al.   Public Health Genomics

Informed Consent in Genomics and Genetic Research

(2010) Amy L. McGuire et al.   Annual Review of Genomics and Human Genetics

Confronting real time ethical, legal, and social issues in the Electronic Medical Records and Genomics (eMERGE) Consortium

(2010) Ellen Wright Clayton et al.   GENETICS IN MEDICINE

Structuring Public Engagement for Effective Input in Policy Development on Human Tissue Biobanking

(2010) K.C. O’Doherty et al.   Public Health Genomics

Using computer agents to explain medical documents to patients with low health literacy

(2009) Timothy W. Bickmore et al.   PATIENT EDUCATION AND COUNSELING

Community consultation and communication for a population-based DNA biobank: The Marshfield clinic personalized medicine research project

(2008) Catherine A. McCarty et al.   AMERICAN JOURNAL OF MEDICAL GENETICS PART A

Informed Consent for Biorepositories: Assessing Prospective Participants' Understanding and Opinions

(2008) L. M. Beskow et al.   CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION

Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

(2008) Susan M. Wolf et al.   JOURNAL OF LAW MEDICINE & ETHICS

Informed consent in biobank research: A deliberative approach to the debate

(2008) David M. Secko et al.   SOCIAL SCIENCE & MEDICINE