The ethical framework for performing research with rare inherited neurometabolic disease patients

Title
The ethical framework for performing research with rare inherited neurometabolic disease patients
Authors
Keywords
Paediatric, Rare, Genetic disease, Clinical research, Ethics
Journal
EUROPEAN JOURNAL OF PEDIATRICS
Volume 176, Issue 3, Pages 395-405
Publisher
Springer Nature
Online
2017-01-17
DOI
10.1007/s00431-017-2852-9

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