Article
Health Care Sciences & Services
Leonie Klaufus, Xiaodan Tang, Eva Verlinden, Marcel van der Wal, Lotte Haverman, Michiel Luijten, Pim Cuijpers, Mai Chinapaw, Benjamin Schalet
Summary: This study aimed to link the scores of RCADS-25 with the PROMIS pediatric item banks Anxiety and Depressive Symptoms. Different linking methods were used, and the IRT method with separate calibration was found to be the optimal choice. The results provide valid item parameters and crosswalk tables for translating the RCADS-25 scores to the PROMIS metric.
QUALITY OF LIFE RESEARCH
(2022)
Article
Multidisciplinary Sciences
Marco Tullio Liuzza, Rocco Spagnuolo, Gabriella Antonucci, Rosa Daniela Grembiale, Cristina Cosco, Francesco Salvatore Iaquinta, Vanessa Funari, Stefano Dastoli, Steven Nistico, Patrizia Doldo
Summary: The study aimed to test the psychometric properties of an Italian custom four-item Short Form of the PROMIS Anxiety item bank in a cohort of outpatients with IMIDs. Results showed that the instrument has excellent reliability and validity, making it suitable for clinical populations such as IMID patients.
Article
Rehabilitation
Aaron J. Boulton, Pamela A. Kisala, Pengsheng Ni, David S. Tulsky
Summary: This study aimed to link three Spinal Cord Injury-Functional Index (SCI-FI) item banks to the Patient Reported Outcome Measurement Information System (PROMIS) Physical Function (PF) metric and evaluate their associations through comparing assessment results. The results showed that only the Basic Mobility item bank had a higher precision connection with the PROMIS PF metric.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2022)
Article
Clinical Neurology
Chad E. Cook, Zachary D. Rethorn, Alessandro Chiarotto, Alessandra N. Garcia, Oren Gottfried
Summary: The study assessed the construct validity, reliability, and discrimination of the PROMIS-29 v2.0 in spine surgery recipients, confirming its utility and effectiveness as an outcome measure for this population.
Article
Health Care Sciences & Services
Carl F. Falk, Felix Fischer
Summary: This study investigates the suitability of monotonic polynomials (MP) for PRO data and finds that the MP model has better overall fit and higher information for physical functioning compared to the GRM model, although some items may not fit well. Simulations also support the performance of the MP model.
QUALITY OF LIFE RESEARCH
(2022)
Article
Multidisciplinary Sciences
Ellen B. M. Elsman, Gerard Flens, Edwin de Beurs, Leo D. Roorda, Caroline B. Terwee
Summary: By using measurement results and data comparison from PROMIS Anxiety and Depression item banks, the researchers found that the Dutch and US populations have similar levels of anxiety and depression symptoms, allowing for comparisons using standardized parameters. The Dutch reference values provide an important tool for healthcare professionals and researchers.
Article
Health Care Sciences & Services
Minji K. Lee, John D. Peipert, David Cella, Kathleen J. Yost, David T. Eton, Paul J. Novotny, Jeff A. Sloan, Amylou C. Dueck
Summary: This study compares classical test theory and item response theory frameworks to determine reliable change and offers reference values for researchers using PROMIS instruments in oncology.
QUALITY OF LIFE RESEARCH
(2023)
Article
Psychology, Clinical
Courtney K. Blackwell, Xiaodan Tang, Amy J. Elliott, Tracy Thomes, Hannah Louwagie, Richard Gershon, Benjamin D. Schalet, David Cella
Summary: This study aimed to develop a common metric to convert EPDS scores to PROMIS T-scores, allowing aggregation of data across various depression measures and timepoints for direct comparison and combination by researchers and clinicians.
PSYCHOLOGICAL ASSESSMENT
(2021)
Article
Genetics & Heredity
Carolyn E. Schwartz, Roland B. Stark, David Cella, Katrina Borowiec, Katherine L. Gooch, Ivana F. Audhya
Summary: This study developed a condition-specific caregiver proxy-report measure for Duchenne Muscular Dystrophy (DMD) utilizing item banks from the PROMIS system, aiming to understand the impact of DMD on caregivers. The study sample included 521 DMD caregivers and showed strong psychometric characteristics in most domains. Future research will focus on assessing the responsiveness and validity of the measure over time and its comparison to DMD patient self-report.
ORPHANET JOURNAL OF RARE DISEASES
(2021)
Article
Rehabilitation
Anne Thackeray, Robin L. Marcus, Lan Yu, Polly McCracken, Beth Cardell, Janel Hanmer
Summary: This study aimed to link AM-PAC Applied Cognition to PROMIS Cognitive Function in order to establish a common metric across scales. Calibration using item-response theory found that both scales measured cognition effectively, with AM-PAC Generic Cognitive assessment showing more reliability at lower cognition levels.
ARCHIVES OF PHYSICAL MEDICINE AND REHABILITATION
(2021)
Article
Nursing
Wen Liu, Lilian Dindo, Katherine Hadlandsmyth, George Jay Unick, M. Bridget Zimmerman, Barbara St Marie, Jennie Embree, Toni Tripp-Reimer, Barbara Rakel
Summary: This study compared the performance of the PROMIS(R) anxiety short form 6a and the Generalized Anxiety Disorder 7-item scale in a sample of U.S. military veterans, finding that the former performed better in terms of item difficulty estimates and distribution of response categories. However, further validation is needed in larger, more diverse samples.
WESTERN JOURNAL OF NURSING RESEARCH
(2022)
Article
Health Care Sciences & Services
L. H. Klaufus, M. A. J. Luijten, E. Verlinden, M. F. van der Wal, L. Haverman, P. Cuijpers, M. J. M. Chinapaw, C. B. Terwee
Summary: The Dutch-Flemish PROMIS pediatric item banks v2.0 Anxiety and Depressive Symptoms, the short forms 8a, and CATs have been validated in a general Dutch population for assessing and monitoring anxiety and depression. Reference data is available.
QUALITY OF LIFE RESEARCH
(2021)
Article
Health Care Sciences & Services
James J. Gregory, Paul M. Werth, Clifford A. Reilly, David S. Jevsevar
Summary: This study investigated the functioning of PROMIS-GH across different clinical settings, patient ages, and medical complexities, finding no differential item functioning (DIF) within the GMH and GPH domains across age groups, medical complexity, or clinical environment. Items assessing GMH and GPH within the PROMIS-GH were found to function comparably across treatment setting, age category, and medical comorbidities.
QUALITY OF LIFE RESEARCH
(2021)
Article
Computer Science, Information Systems
Hideo Hirose
Summary: This paper investigates the performance of item response theory based on distance criteria rather than likelihood criteria. A reconstructed item response matrix using maximum likelihood estimates is introduced, and the distance between the observed and estimated matrices is measured using the Frobenius matrix norm. The comparison of the distance between the observed and low-rank matrices helps evaluate the performance of the estimated item response matrix. The study finds that the predictive ability of item response theory is high enough when using test data, as the distance between the approximated low-rank matrix and observed item response matrix is approximately equal to or slightly less than the distance between the estimated item response matrix and observed item response matrix.
Article
Psychology, Multidisciplinary
Luise Fischer, Theresa Rohm, Claus H. Carstensen, Timo Gnambs
Summary: In the context of limited item pools and small to medium sample sizes, this study investigated the performance of four IRT linking methods on Rasch-scaled data. The findings suggested that in the presence of moderate model misfit, the share of anchor items should exceed 20%. Concurrent calibration showed substantial convergence issues, while other methods resulted in overall satisfying and similar parameter recovery. Future research should further explore the effects of anchor item composition on unbalanced model misfit.
FRONTIERS IN PSYCHOLOGY
(2021)
Article
Social Sciences, Interdisciplinary
Gregory Swann, Emily Bettin, Daniel T. Ryan, Antonia Clifford, Michael E. Newcomb, Sarah W. Whitton, Brian Mustanski
Summary: This study aimed to identify an eight-item short form of the Sexual Orientation Microaggression Inventory (SOMI-SF) and validate its reliability and validity. The results showed high reliability and validity of the SOMI-SF in all three samples, with significant associations with sexual minority victimization, depression symptoms, anxiety symptoms, and internalized stigma. The study concludes that the SOMI-SF is a high-quality option for measuring sexual orientation microaggressions.
SEXUALITY RESEARCH AND SOCIAL POLICY
(2023)
Article
Clinical Neurology
Lindsey Becker, Emma Condy, Aaron Kaat, Audrey Thurm
Summary: The NIH Toolbox includes a cognitive battery that provides an Early Childhood Composite score for children age 3-7. However, very few studies have evaluated feasibility when it is used in the youngest segment of this age range-3-year-olds. The current study evaluated performance on the four cognitive subtests composing the early childhood composite, two of which assess executive function, in a large sample of 3-year-olds enrolled in a Vanguard pilot of the National Children's Study. Results found that in a cohort of 609 3-year-olds (mean age = 39.6 months, SD = 1.6, 53% male, 64% White, 87% Non-Hispanic) who were administered four subtests included in the Early Childhood Composite, up to approximately 30% were unable to pass practice items on the Flanker, Dimensional Change Card Sort, and Picture Sequence Memory, whereas only approximately 3% were unable to pass practice items on the Picture Vocabulary Test. Furthermore, of those that did pass practice and achieve scores on the subtests, approximately 70% and 80% performed at or below chance level on the executive function tasks (Flanker and Dimensional Change Card Sort) and Picture Sequence Memory, respectively. Ultimately, the average 3-year-old has difficulty with three of the four NIH Toolbox tasks composing the Early Childhood Composite and may not yet have developed the requisite skills. These findings indicate that changes compatible with the developmental level of preschoolers are recommended to increase the feasibility and effectiveness of the NIH Toolbox in measuring individual cognition differences in 3-year-old children.
CHILD NEUROPSYCHOLOGY
(2023)
Article
Public, Environmental & Occupational Health
Casey D. Xavier Hall, Camille Bundy, James E. Foran, Michael E. Newcomb, Hector Carrillo, Celeste Watkins-Hayes, Brian Mustanski
Summary: This study presents qualitative perspectives on PrEP adherence strategies and highlights the importance of psychological, technical, and social strategies in improving PrEP adherence. Participants consistently reported using multiple strategies and adapting them to overcome barriers to adherence. Other themes related to adherence included a daily medication history and a positive outlook toward the PrEP regimen.
Article
Public, Environmental & Occupational Health
Brian Mustanski, Rana Saber, Kathryn Macapagal, Maggie Matson, Eric Laber, Carlos Rodrgiuez-Diaz, Kevin O. Moran, Andres Carrion, David A. Moskowitz, Michael E. Newcomb
Summary: There is a lack of HIV prevention programs specifically targeting the unique sexual health needs of AMSM. However, SMART Sex Ed, a part of a comprehensive eHealth intervention package, shows promise in changing HIV attitudes, skills, and behaviors among AMSM. The program has consistent effects across demographic subgroups, but no impact on condom use behaviors.
Article
Psychology, Developmental
Megan Y. Roberts, Bailey J. Sone, Maranda Jones, Jeffrey Grauzer, Laura Sudec, Yael S. Stern, Elaine Kwok, Molly Losh, Aaron Kaat
Summary: Coaching parents to use language facilitation strategies improves long-term language outcomes for autistic children. This study explores the impact of strategy type, maternal Broad Autism Phenotype status, and preintervention strategy use on mothers' outcomes. Results suggest that responsive strategies are more effective, Broad Autism Phenotype status does not affect outcomes, but there is an interaction between preintervention strategy use and Broad Autism Phenotype status.
Article
Psychology, Clinical
Madison Shea Smith, Brian A. Feinstein, Brian Mustanski, Michael E. Newcomb
Summary: The study found that binegativity from intimate partners is negatively associated with relationship satisfaction and bisexual men in relationships with women report more frequent intimate partner aggression. The gender of one's partner and binegativity also interact to influence intimate partner aggression.
JOURNAL OF SEX RESEARCH
(2023)
Article
Public, Environmental & Occupational Health
Misty Pacheco, Shadd Keahi Warfield, Patti Hatzistavrakis, Summer Mochida-Meek, David Moskowitz, Margaret Matson, Brian Mustanski
Summary: Efforts have been made to reach minority young gay males, but there is a lack of research on Native Hawaiian and other Pacific Islander (NHOPI) gay teens. This study conducted interviews with 20 NHOPI gay males to understand how to reach them and identified culture, confidentiality, and identity conflicts as important factors for recruitment and engagement. Online recruitment is recommended, and more research is needed on cultural acceptance and understanding of homosexuality in NHOPI communities.
Article
Psychology, Clinical
David Mata, Aaron K. Korpak, Taylor Macaulay, Brian Dodge, Brian Mustanski, Brian A. Feinstein
Summary: Sexual minority youth, especially bisexual youth, are more likely to engage in substance use compared to their heterosexual counterparts. This study explores the motivations for and against substance use, decision-making processes, and consequences experienced by bisexual and pansexual male youth. The findings highlight the diverse motivations for substance use, including coping with stress, experimentation, and seeking enjoyment. The participants also consider factors such as timing, location, and trusted individuals when deciding to use substances. Common sources of stress include mental health problems, school, and family. The study emphasizes the importance of addressing the specific needs of bisexual and transgender youth in substance use prevention and harm reduction interventions.
ARCHIVES OF SEXUAL BEHAVIOR
(2023)
Article
Education & Educational Research
Bailey J. Sone, Jordan Lee, Jeffrey Grauzer, Aaron Kaat, Megan Y. Roberts
Summary: Parent-implemented interventions have positive effects on child and family outcomes. However, the core components of these interventions used in research settings are rarely used in practice settings. This study investigates the most effective instructional strategies for teaching different types of intervention strategies to parents of autistic children. The findings suggest that increased opportunities for parent practice with feedback are predictive of parent strategy use, regardless of the type of intervention strategy or parent baseline skills. Moreover, targeting parents' existing capacities in instructional strategies may be more effective in improving parent learning.
EARLY CHILDHOOD RESEARCH QUARTERLY
(2023)
Article
Immunology
Casey D. Xavier Hall, Daniel Ryan, Christina Hayford, Ethan Morgan, Irina Tabidze, Richard D'Aquila, Brian Mustanski
Summary: Syphilis rates have increased in the United States, particularly among young sexual and gender minorities. Few studies have examined syphilis longitudinally among sexual and gender minorities. Based on a prospective longitudinal design, this study found a lifetime prevalence of 25.1% and an incident case rate of 3.3% at 6-month follow-up.
JOURNAL OF INFECTIOUS DISEASES
(2023)
Article
Pediatrics
Carolyn C. Foster, Aaron J. Kaat, Avani V. Shah, Caroline A. Hodgson, Lindsey P. Hird-McCorry, Angela Janus, Philip Swanson, Liana F. Massey, Anna De Sonia, David Cella, Denise M. Goodman, Matthew M. Davis, Theresa A. Laguna
Summary: This study tested the feasibility and acceptability of remote data collection in the management of chronic invasive home mechanical ventilation (IHMV) in children. The results showed that remote patient monitoring was effective in collecting vital sign data and capturing clinically meaningful changes during ventilator breaks.
PEDIATRIC PULMONOLOGY
(2023)
Article
Psychology, Developmental
Amanda N. Nili, Meghan Miller, Yudong Zhang, Philip R. Sherlock, James L. Burns, Anne Zola, Aaron Kaat, Laurie S. Wakschlag, Sheila Krogh-Jespersen
Summary: Attention dysregulation is a promising early indicator of neurodevelopmental risk, but it is difficult to clinically determine due to its developmental expectability in early childhood. This study presents a novel parent-report survey, the MAPS-AR-IT, which quantifies dimensional indicators of attention (dys)regulation. The scale has been shown to be valid in capturing the typical:atypical spectrum of attention behaviors in typically developing children and has potential use in identifying individual neurodevelopmental risk.
INFANT MENTAL HEALTH JOURNAL
(2023)
Article
Social Sciences, Interdisciplinary
Kathryn Macapagal, Junye Ma, Margaret Matson, Allie Chinander, Christopher Owens, Val Wongsomboon, Rana Saber, Brian Mustanski
Summary: This qualitative study examined the first experiences of sexual and gender minority (SGM) adolescents with HIV testing. The findings revealed barriers and facilitators to testing in clinical settings and highlighted the importance of ensuring confidentiality and addressing stigma. The study also emphasized the need to improve HIV testing access for adolescents through clinical settings and self-testing.
SEXUALITY RESEARCH AND SOCIAL POLICY
(2023)
Article
Psychology, Developmental
Maranda K. Jones, Bailey J. Sone, Jeffrey Grauzer, Laura Sudec, Aaron Kaat, Megan Y. Roberts
Summary: This study aimed to investigate the effects of caregiver-mediated naturalistic developmental behavioral intervention strategies on language outcomes in autistic children. The results showed that children in the directive condition had significantly higher language assessment scores, and the effect on the frequency of spontaneous directed communication acts was mediated by coordinated joint engagement.
Article
Psychology, Clinical
Jae A. Puckett, Alix B. Aboussouan, Allura L. Ralston, Brian Mustanski, Michael E. Newcomb
Summary: This study explored the stressors faced by TGD individuals through a daily diary study. The findings revealed a variety of stressors experienced by TGD individuals, including some that have not been previously addressed in the literature.
INTERNATIONAL JOURNAL OF TRANSGENDER HEALTH
(2023)