Update of literature from cystic fibrosis registries 2012-2015. Part 6: Epidemiology, nutrition and complications

An overview of international literature from cystic fibrosis registries. Part 5: Update 2012-2015 on lung disease

(2016) Donatello Salvatore et al.   PEDIATRIC PULMONOLOGY

Clinical Practice Guidelines From the Cystic Fibrosis Foundation for Preschoolers With Cystic Fibrosis

(2016) T. Lahiri et al.   PEDIATRICS

Report of the European Respiratory Society/European Cystic Fibrosis Society task force on the care of adults with cystic fibrosis

(2015) J. Stuart Elborn et al.   EUROPEAN RESPIRATORY JOURNAL

Future trends in cystic fibrosis demography in 34 European countries

(2015) Pierre-Régis Burgel et al.   EUROPEAN RESPIRATORY JOURNAL

A statistical model to predict one-year risk of death in patients with cystic fibrosis

(2015) Shawn D. Aaron et al.   JOURNAL OF CLINICAL EPIDEMIOLOGY

Cystic fibrosis mortality trend in Italy from 1970 to 2011

(2015) Gianfranco Alicandro et al.   Journal of Cystic Fibrosis

Association of sweat chloride concentration at time of diagnosis and CFTR genotype with mortality and cystic fibrosis phenotype

(2015) Edward F. McKone et al.   Journal of Cystic Fibrosis

Comparison of WHO and CDC Growth Charts in Predicting Pulmonary Outcomes in Cystic Fibrosis

(2015) Evans Machogu et al.   JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION

Cystic fibrosis and AA amyloidosis: a survey in the French cystic fibrosis network

(2014) Katia Stankovic Stojanovic et al.   AMYLOID-JOURNAL OF PROTEIN FOLDING DISORDERS

Longevity of Patients With Cystic Fibrosis in 2000 to 2010 and Beyond: Survival Analysis of the Cystic Fibrosis Foundation Patient Registry

(2014) Todd MacKenzie et al.   ANNALS OF INTERNAL MEDICINE

A contemporary survival analysis of individuals with cystic fibrosis: a cohort study

(2014) Anne L. Stephenson et al.   EUROPEAN RESPIRATORY JOURNAL

The relative frequency of CFTR mutation classes in European patients with cystic fibrosis

(2014) K. De Boeck et al.   Journal of Cystic Fibrosis

Rate of improvement of CF life expectancy exceeds that of general population—Observational death registration study

(2014) Matthew N. Hurley et al.   Journal of Cystic Fibrosis

Early attained weight and length predict growth faltering better than velocity measures in infants with CF

(2014) Sonya L. Heltshe et al.   Journal of Cystic Fibrosis

European Cystic Fibrosis Society Standards of Care: Best Practice guidelines

(2014) Alan R. Smyth et al.   Journal of Cystic Fibrosis

Liver Involvement in the Hispanic Population of North America With Cystic Fibrosis

(2014) Jeffrey S. Wagener et al.   JOURNAL OF PEDIATRIC GASTROENTEROLOGY AND NUTRITION

Pancreatic Enzyme Replacement Therapy Dosing and Nutritional Outcomes in Children with Cystic Fibrosis

(2014) Mark E. Haupt et al.   JOURNAL OF PEDIATRICS

The European Cystic Fibrosis Society Patient Registry: valuable lessons learned on how to sustain a disease registry

(2014) Laura Viviani et al.   Orphanet Journal of Rare Diseases

Exploration of the impact of ‘mild phenotypes’ ON median age at death IN the UK CF registry

(2014) Z.H. Hoo et al.   RESPIRATORY MEDICINE

The CF-ABLE Score

(2013) Cormac McCarthy et al.   CHEST

Is there evidence for correct diagnosis in cystic fibrosis registries?

(2013) Muriel Thomas et al.   Journal of Cystic Fibrosis

Pubertal Height Velocity and Associations with Prepubertal and Adult Heights in Cystic Fibrosis

(2013) Zhumin Zhang et al.   JOURNAL OF PEDIATRICS

Genetic modifiers of nutritional status in cystic fibrosis

(2012) Gia M Bradley et al.   AMERICAN JOURNAL OF CLINICAL NUTRITION

Growth during puberty in cystic fibrosis: a retrospective evaluation of a French cohort

(2012) Marie Bournez et al.   ARCHIVES OF DISEASE IN CHILDHOOD

Are Measures of Body Habitus Associated With Mortality in Cystic Fibrosis?

(2012) Andrew W. Fogarty et al.   CHEST

Risk of Post-Lung Transplant Renal Dysfunction in Adults With Cystic Fibrosis

(2012) Bradley S. Quon et al.   CHEST

An overview of international literature from cystic fibrosis registries. Part 4: Update 2011

(2012) Donatello Salvatore et al.   Journal of Cystic Fibrosis

Better Nutritional Status in Early Childhood Is Associated with Improved Clinical Outcomes and Survival in Patients with Cystic Fibrosis

(2012) Elizabeth H. Yen et al.   JOURNAL OF PEDIATRICS

Cancer Risk in Cystic Fibrosis: A 20-Year Nationwide Study From the United States

(2012) Patrick Maisonneuve et al.   JNCI-Journal of the National Cancer Institute

Effect of Estrogen on Pseudomonas Mucoidy and Exacerbations in Cystic Fibrosis

(2012) Sanjay H. Chotirmall et al.   NEW ENGLAND JOURNAL OF MEDICINE

An overview of international literature from cystic fibrosis registries. Part 3. Disease incidence, genotype/phenotype correlation, microbiology, pregnancy, clinical complications, lung transplantation, and miscellanea

(2011) Donatello Salvatore et al.   Journal of Cystic Fibrosis

Validation of a predictive survival model in Italian patients with cystic fibrosis

(2011) Roberto Buzzetti et al.   Journal of Cystic Fibrosis

The how (and why) of disease registers

(2010) Anil Mehta   EARLY HUMAN DEVELOPMENT

An overview of international literature from cystic fibrosis registries: 1. Mortality and survival studies in cystic fibrosis

(2009) R. Buzzetti et al.   Journal of Cystic Fibrosis

An overview of international literature from cystic fibrosis registries

(2009) Donatello Salvatore et al.   Journal of Cystic Fibrosis

Cystic Fibrosis Foundation Evidence-Based Guidelines for Management of Infants with Cystic Fibrosis

(2009) Drucy Borowitz et al.   JOURNAL OF PEDIATRICS

Evidence-Based Practice Recommendations for Nutrition-Related Management of Children and Adults with Cystic Fibrosis and Pancreatic Insufficiency: Results of a Systematic Review

(2008) Virginia A. Stallings et al.   JOURNAL OF THE AMERICAN DIETETIC ASSOCIATION