Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study

Title
Experiences and concerns of patients with recurrent attacks of acute hepatic porphyria: A qualitative study
Authors
Keywords
Acute hepatic porphyria, Acute intermittent porphyria, Focus groups, Psychosocial experiences, Quality of life
Journal
MOLECULAR GENETICS AND METABOLISM
Volume 119, Issue 3, Pages 278-283
Publisher
Elsevier BV
Online
2016-08-26
DOI
10.1016/j.ymgme.2016.08.006

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