Article
Clinical Neurology
L. M. Chahine, R. Feldman, A. Althouse, B. Torsney, L. Alzyoud, S. Mantri, B. Edison, S. Albert, M. Daeschler, C. Kopil, C. Marras
Summary: Caregiver burden is high among caregivers of PD patients, with neuropsychiatric symptoms playing a significant role. Different symptoms and demographic factors have differential impacts on various domains of caregiver burden in PD. Tailored interventions are necessary to provide support for CPD.
JOURNAL OF NEUROLOGY
(2021)
Review
Health Care Sciences & Services
Bushra Alshammari, Helen Noble, Helen McAneney, Farhan Alshammari, Peter O'Halloran
Summary: Caring for patients with end-stage kidney disease can be highly stressful for caregivers, impacting their physical and psychological well-being. This review identifies various factors, from patient demographics to environmental and psychological factors, that can influence caregiver burden, providing awareness to healthcare providers for intervention strategies.
Article
Geriatrics & Gerontology
Diego Santos-Garcia, Teresa de Deus Fonticoba, Carlos Cores Bartolome, Maria Cristina iniguez Alvarado, Maria J. Feal Panceiras, Ester Suarez Castro, Hector Canfield, Cristina Martinez Miro, Silvia Jesus, Miquel Aguilar, Pau Pastor, Lluis Planellas, Marina Cosgaya, Juan Garcia Caldentey, Nuria Caballol, Ines Legarda, Jorge Hernandez Vara, Iria Cabo, Lydia Lopez Manzanares, Isabel Gonzalez Aramburu, Maria A. avila Rivera, Victor Gomez Mayordomo, Victor Nogueira, Victor Puente, Julio Dotor Garcia-Soto, Carmen Borrue, Berta Solano Vila, Maria alvarez Sauco, Lydia Vela, Sonia Escalante, Esther Cubo, Francisco Carrillo Padilla, Juan C. Martinez Castrillo, Pilar Sanchez Alonso, Maria G. Alonso Losada, Nuria Lopez Ariztegui, Itziar Gaston, Jaime Kulisevsky, Marta Blazquez Estrada, Manuel Seijo, Javier Ruiz Martinez, Caridad Valero, Monica Kurtis, Oriol de Fabregues, Jessica Gonzalez Ardura, Ruben Alonso Redondo, Carlos Ordas, Luis M. Lopez DiazL, Darrian McAfee, Pablo Martinez-Martin, Pablo Mir
Summary: This study analyzed changes in burden, strain, mood, and quality of life in caregivers of PD patients after a 2-year follow-up and identified predictors of these changes. The results showed that burden, strain, mood, and QoL were impaired in caregivers after the follow-up period, with mood changes in both patients and caregivers being key factors associated with caregiver burden increase.
INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY
(2022)
Article
Geriatrics & Gerontology
Annette Hand, Lloyd L. Oates, William K. Gray, Lorelle L. Dismore, Katherine Baker, Jenni Naisby, Richard W. Walker
Summary: This study investigated predictors of caregiver strain and its impact on care home placement for individuals with moderate to advanced Parkinsonism through a mixed methods approach. Findings suggest that factors such as functional disability and poor caregiver sleep influence caregiver strain. The development of a predictive model can help better understand caregiver strain in this population.
JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY
(2022)
Article
Clinical Neurology
Behnam Iravani, Elaheh Abdollahi, Fatemeh Eslamdoust-Siahestalkhi, Robabeh Soleimani
Summary: This study assessed the relationship between neuropsychiatric symptoms in patients with Alzheimer's disease and caregiver burden. The results showed a significant correlation between NPS and CB, with apathy being the most common symptom in AD patients.
FRONTIERS IN NEUROLOGY
(2022)
Article
Clinical Neurology
Kate M. Perepezko, Joseph J. Gallo, Gregory M. Pontone, Jared T. Hinkle, Kelly A. Mills
Summary: We aimed to identify caregiver characteristics associated with the trajectory of quality of life (QoL) in Parkinson's disease (PD). We found that lower caregiver strain, better mobility, and better verbal fluency at baseline predicted membership in the favorable QOL class. Worse mobility and younger age predicted membership in the problematic QOL class. The novel finding of an association between caregiver strain and PD QOL trajectory suggests the importance of measuring and addressing caregiver strain in future research and practice.
PARKINSONISM & RELATED DISORDERS
(2023)
Review
Public, Environmental & Occupational Health
Ariadne Guimaraes Dias, Antoine Daher, Lucy Barrera Ortiz, Sonia Carreno-Moreno, H. Sylvia R. Hafez, Angela Marie Jansen, Mariana Rico-Restrepo, Lorena Chaparro-Diaz
Summary: In Latin America, there are 40-50 million people with rare diseases who require constant care and attention. Family caregivers play a crucial role in assisting them with daily activities and medication administration, but their work is often undervalued and their needs are not adequately protected.
FRONTIERS IN PUBLIC HEALTH
(2023)
Article
Clinical Neurology
Zach Monahan, Dyani Shores, Alyson Mack, Natasha Bray, Alicia Ford, Micah Hartwell
Summary: This study analyzed the rates of depressive disorders among caregivers in the United States and their associations with demographic and relational aspects of the care recipient. The findings showed that female caregivers, American Indian/Alaskan Native caregivers, caregivers of unknown race, caregivers with a low income, and caregivers without high school education had higher rates of depression diagnosis. Caregivers were also more likely to experience depression if the care recipient had a mental or chronic respiratory condition, or if the care recipient was their live-in partner. However, depression rates were lower for caregivers of their own mother-in-law or spouse.
JOURNAL OF AFFECTIVE DISORDERS
(2023)
Article
Neurosciences
Kristina Rosqvist, Anette Schrag, Per Odin
Summary: This study assessed the quality of life of informal caregivers to patients in the late stage of Parkinson's disease, and found that caregiver quality of life was better associated with female patient gender, better cognition, lower non-motor symptom burden, and not being the partner. Identifying and alleviating caregiver burden, as well as treating non-motor symptoms, seem essential to enhance the quality of life for both patients and caregivers in late stage Parkinson's disease.
Article
Medicine, General & Internal
Angelika D. Geerlings, Willanka M. Kapelle, Charlotte J. Sederel, Emma Tenison, Hilde Wijngaards-Berenbroek, Marjan J. Meinders, Marten Munneke, Yoav Ben-Shlomo, Bastiaan R. Bloem, Sirwan K. L. Darweesh
Summary: The study aimed to characterize the determinants of caregiver burden among informal caregivers of persons with Parkinson's disease. The results showed that caregiver burden is determined by a complex interplay of patient-related, caregiver-related, and interpersonal characteristics.
Article
Geriatrics & Gerontology
S. Brini, A. Hodkinson, A. Davies, S. Hirani, R. Gathercole, R. Howard, S. P. Newman
Summary: Our study, conducted on a large cohort of dementia caregivers, demonstrates that living with a care recipient with dementia is associated with greater burden and poorer psychological wellbeing compared to caregivers living elsewhere. Our findings highlight the importance of considering caregivers' living arrangements in strategies aimed at improving their burden and psychological wellbeing.
AGING & MENTAL HEALTH
(2022)
Review
Clinical Neurology
Sabrina Poonja, K. Ray Chaudhuri, Janis M. Miyasaki
Summary: This review outlines the impact of the COVID-19 pandemic on holistic care for movement disorders, particularly in the care of people with Parkinson disease. It discusses the challenges of recognizing infection in patients, the loss of community-based team care, and the inequalities amplified by the pandemic, such as the "digital divide".
CURRENT OPINION IN NEUROLOGY
(2022)
Article
Geriatrics & Gerontology
Manee Pinyopornpanish, Kanokporn Pinyopornpanish, Atiwat Soontornpun, Surat Tanprawate, Angkana Nadsasarn, Nahathai Wongpakaran, Tinakon Wongpakaran
Summary: This study found that caregiver burden is indirectly associated with patients' neuropsychiatric symptoms through the caregiver's depressive symptoms and perception of stress. Early detection and appropriate interventions can help in reducing and preventing caregiver burden.
Review
Social Sciences, Interdisciplinary
Sin Yee Chu, Norhayati Ibrahim, Noh Amit, Abdul Halim Abdul Gafor, Rozmi Ismail, Kai Wei Lee, Ching Sin Siau
Summary: Caregivers for dialysis patients face significant burden and responsibility, making interventions targeting them essential. This review examines interventions implemented among CKD caregivers and their effectiveness in reducing caregiver burden. Nine studies, including RCTs and quasi-experimental studies, were identified through searching major citation databases. Educational programs, supportive programs, family-centered programs, and psychological interventions were reviewed. Evidence suggests that these programs effectively reduce caregiver burden among CKD patients.
Article
Nursing
Francesca Vescovelli, Chiara Ruini
Summary: Caregivers assisting patients with Parkinson's disease experience more depression, distress, and lower well-being compared to controls. Older age, lower psychological well-being, and higher depression levels are significant predictors of caregiver burden. A focus on depression and specific areas of well-being may help caregivers cope better with the burden of care.
SCANDINAVIAN JOURNAL OF CARING SCIENCES
(2022)
Letter
Public, Environmental & Occupational Health
Sandhya Seshadri, Cathleen Concannon, Jane A. Woods, Kathryn M. McCullough, Ghinwa K. Dumyati
INFECTION CONTROL AND HOSPITAL EPIDEMIOLOGY
(2021)
Article
Engineering, Industrial
Nicole E. Werner, Rachel Rutkowski, Amy Graske, Mary K. Finta, Craig R. Sellers, Sandhya Seshadri, Manish N. Shah
APPLIED ERGONOMICS
(2020)
Article
Public, Environmental & Occupational Health
Sandhya Seshadri, Christina B. Felsen, Craig R. Sellers, Ghinwa K. Dumyati
Summary: Nursing home staff perceive ASPs as resource intensive and data driven, requiring access to and interpretation of data that are not readily available at many nursing homes. They identified critical areas for sustaining ASPs as explicit support by nursing home leadership, external partnerships with professionals with antibiotic stewardship expertise, internal interprofessional collaborations, and consistent education and training for all staff.
INFECTION CONTROL AND HOSPITAL EPIDEMIOLOGY
(2021)
Article
Public, Environmental & Occupational Health
Nora Chea, Taniece Eure, Austin R. Penna, Cedric J. Brown, Joelle Nadle, Deborah Godine, Linda Frank, Christopher A. Czaja, Helen Johnston, Devra Barter, Betsy Feighner Miller, Katie Angell, Kristen Marshall, James Meek, Monica Brackney, Stacy Carswell, Stepy Thomas, Lucy E. Wilson, Rebecca Perlmutter, Kaytlynn Marceaux-Galli, Ashley Fell, Sarah Lim, Ruth Lynfield, Sarah Shrum Davis, Erin C. Phipps, Marla Sievers, Ghinwa Dumyati, Cathleen Concannon, Kathryn McCullough, Amy Woods, Sandhya Seshadri, Christopher Myers, Rebecca Pierce, Valerie L. S. Ocampo, Judith A. Guzman-Cottrill, Gabriela Escutia, Monika Samper, Sandra A. Pena, Cullen Adre, Matthew Groenewold, Nicola D. Thompson, Shelley S. Magill
Summary: Healthcare personnel infected with SARS-CoV-2 were interviewed to describe their activities and practices in and outside the workplace. The study found that nursing-home personnel had more workplace-related factors that may increase infection risk, while hospital personnel had more selected factors outside the workplace.
INFECTION CONTROL AND HOSPITAL EPIDEMIOLOGY
(2022)
Article
Health Care Sciences & Services
Sandhya Seshadri, Sally A. Norton, Tyler Stahl, Mina Shah, Megan Dini, Nicole Yarab, Jodi Summers Holtrop, Benzi M. Kluger
Summary: The aim of this study was to understand the specific challenges faced by Parkinson's Disease care partners during the ongoing pandemic and to gather their suggestions for support. Semi-structured interviews were conducted with 19 family care partners from various locations across the United States. The results showed that caregiving became even more difficult during the pandemic due to the need to make choices between poor options. Care partners expressed a desire for timely access to healthcare teams and guidance. The findings suggest that building systems for timely access and guidance could alleviate some of the burden faced by care partners.
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE
(2023)
Article
Clinical Neurology
Zachary A. Macchi, Sandhya Seshadri, Roman Ayele, Meredith Bock, Judith Long, Heather Coats, Janis Miyasaki, Steven Z. Pantilat, Maya Katz, Elizabeth J. Santos, Stefan H. Sillau, Hillary D. Lum, Benzi M. Kluger
Summary: This study aimed to describe the characteristics, associated factors, and consequences of aggression towards caregivers in Parkinson's disease and related disorders. The findings revealed that aggression was associated with factors such as disease duration, patient grief, symptom burden, resistance to care, caregivers' depression, and caregiving burden. Caregivers believed that aggression resulted from patients' difficulty in coping with disease progression and related losses, and aggression had negative effects on caregivers' stress and mental health.
MOVEMENT DISORDERS CLINICAL PRACTICE
(2022)
Article
Public, Environmental & Occupational Health
Tobias Anker Stripp, Elaine C. Long, Ketevan Mosashvili, Andre M. Cipta, Sean J. LaBat, Sandhya Seshadri
Summary: Despite the considerable amount of research conducted, there is still much to be explored in the field of religion, spirituality, and health. Training researchers in this area is crucial for academic rigor, and efforts should be made to include non-western cultures. While mainstream academia lacks focus on this topic, there are exceptional leaders who have initiated training programs, providing valuable insights and recommendations for future programs.
JOURNAL OF RELIGION & HEALTH
(2023)
Editorial Material
Health Care Sciences & Services
Sandhya Seshadri
JOURNAL OF PALLIATIVE MEDICINE
(2023)
Review
Public, Environmental & Occupational Health
Sandhya Seshadri, Kei Sugiura, Miray Mirham, Whitley W. Aamodt, Benzi M. Kluger
Summary: This scoping review explored spirituality, spiritual well-being, and spiritual distress in Parkinson's disease caregivers. Caregiver factors (such as depression and age) and patient factors (such as faith and motor function) influenced caregiver spirituality and well-being. Caregivers experienced loss of meaning, existential guilt, and loneliness, and coped through acquiescence, cultural beliefs, prayer, and gratitude. Further research should focus on addressing the specific spiritual needs of Parkinson's disease caregivers.
JOURNAL OF RELIGION & HEALTH
(2023)
Article
Immunology
Nora Chea, Cedric J. Brown, Taniece Eure, Rebecca Alkis Ramirez, Gregory Blazek, Austin R. Penna, Ruoran Li, Christopher A. Czaja, Helen Johnston, Devra Barter, Betsy Feighner Miller, Kathleen Angell, Kristen E. Marshall, Ashley Fell, Sara Lovett, Sarah Lim, Ruth Lynfield, Sarah Shrum Davis, Erin C. Phipps, Marla Sievers, Ghinwa Dumyati, Cathleen Concannon, Kathryn McCullough, Amy Woods, Sandhya Seshadri, Christopher Myers, Rebecca Pierce, Valerie L. S. Ocampo, Judith A. Guzman-Cottrill, Gabriela Escutia, Monika Samper, Nicola D. Thompson, Shelley S. Magill, Cheri T. Grigg
Summary: In a case-control analysis, it was found that risk factors for COVID-19 among US healthcare personnel include close contact with COVID-19 patients both inside and outside the workplace, as well as assisting patients with daily activities. Interventions to protect healthcare personnel from COVID-19 may involve reducing their exposures outside the workplace and improving their ability to safely assist COVID-19 patients.
EMERGING INFECTIOUS DISEASES
(2022)
